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SN children

Here are some suggested organisations that offer expert advice on special needs.

Special needs role call :)

140 replies

Blossomhill · 15/04/2005 13:41

I hope you don't mind but there have been so many new people and I thought it would just be nice to remind ourselves of who is who

Well I'll start with I am a 30yr old SAHM, been married 3 years (although together 9) and I have 1 ds (aged 7) who is nt but going through a bit of a teenage phase at the moment. I then have dd is 5 (6 in August), she has a high level pragmatic disorder which effects her ability to have conversations and socialise (although she does try really hard). Dd is currently doing very well in a speech and language unit attached to a mainstream school.
We have just recently come back from Bibic and it was such an amazing experience and we learnt so, so much about dd. More in 3 days with them than the whole 4 years through the normal channels!

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Thomcat · 15/04/2005 22:11

Terrible spelling, it's that time of night/that far down the bottle of wine!

Rivers, well you must go to NP hossie?
How mad. I've almost stopped going these days as lottie is being monitored through school as she was becoming a madam and not playing up/not co-operating at hospital sessions.

Feel bad for taking this thread off at an angle.

Thomcat · 15/04/2005 22:12

Marthamoo, going from this thread or off for night?

rivers · 15/04/2005 22:12

Thought your post was great Marthamoo and not condescending at all. Since posting on this board I have learnt so much about different conditions and that can only be a good thing as it helps you lose all your preconceptions.

marthamoo · 15/04/2005 22:14

I've opened a bar - all welcome - so you can have your thread back and use as intended. Thanks rivers

Blossomhill · 15/04/2005 22:19

Where's the bar then Thomcat???

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louismama · 15/04/2005 22:22

I'm Louismama great idea bh now i get to know a bit better all the wonderful sn mns who have been sooooooooooo supportive and helpful to me lately. Many thanks all. I am a SAHM to louis ds 21 months almost positive is ASD (awaiting assesment at cdc) and undoubtly the most beautiful child in the world.(Biased i know, but people stop me in the street and say so too.) I'm 28 married for 3 years in June, been togther 13!!!!! DH 33 and we currently live in spain (currently 24degs yummy) so mn has been particuarly important too me.

louismama · 15/04/2005 22:27

Forgot to say ds dx of hypotonia at 10months been doing physio and global s. theraphy since and now runs all the time!!!!!!!!!! So proud. Been babbling since 9 months but no words yet.

Merlot · 15/04/2005 22:46

marthamoo I think that was a very sweet post

Louismama - 24 degrees!

Well done Bh for starting this - I didn't realize how many newcomers there were. Welcome all

Blossomhill · 15/04/2005 22:47

Merlot _ I was finding it so hard to keep track and thought it would be nice to have 1 thread to look up if I forget!!

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Thomcat · 15/04/2005 22:54

top idea bh. I have a very visual memory so never forget a face but rubbish with names and rubbish at recalling info on mumsnetters which I hate. feel like I should know by now. I know a lot of info on quite a few but .... anyway great thread, well done.

Blossomhill · 15/04/2005 22:58

Thanks tc

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louismama · 15/04/2005 23:11

Yeah there are definately up sides to spain when ds is aggitated we just walk to the beach he loves it and im told its very good sensory wise. Its great to know that there are loads of other young sn mns (not that i dont appreciate advise from more life experienced moms) but sort of gives me a bit of a boost, have always been 'old head on young shoulders' but have felt very young and inexperienced recently but if you all cope and get by then im sure i can too! Thanks again bh.xx

sparklymieow · 15/04/2005 23:14

I'm 26, mum to DS, 7 who has spastic diplegia CP, Dd1, 4 who also has spastic diplegia CP, behaviour issues, learning difficulties, and eye sight problems, and finally my baby dd2 who is 3 and a love.... Been married for 8 years, together 10 years....

maryz · 15/04/2005 23:18

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Message withdrawn at poster's request.

delllie · 15/04/2005 23:24

How Do!!
I'm 38, married to Dh 40 for 17 years, been together 20 years this year EEK .
I am a SAHM to DS who is 7, seemingly NT and DD who is 3, who has Global development Delay, hypotonia, reflux, Ex FTT, short stature, chronic feeding problems (she just will not swallow lumps!!) no DX but currently exploring prader willi syndrome and worster drought syndrome.
We are battling constipation at the moment as we have been cutting down on DD's fortini milk which usually helps her to 'go', so DD is very grumpy and upset and I am one stressed mummy

Jimjams · 15/04/2005 23:26

OJ - I never knew you were a SW type!!!!

(My email is playing up terribly so haven't been on the other place).

jmb1964 · 15/04/2005 23:26

Hello - I'm usually a late night lurker (after I've finished everything else..) 40 - if you hadn't guessed, married 12 years, together 18. Dd1 8 and stroppy but normal, we think, ds1 7 has Aspergers, very rocky first year at school pre-diagnosis but settling now with full-time support, dd2 4 and adorable, ds2 3 has a slight kidney abnormality but otherwise well and even more adorable. Dh is an academic and I suspect somewhere on the spectrum. I work 3 days a week as a GP and 1 day a week in another related job, always busy but I love all the stuff I do.
I am IN AWE of so many of you who make me realise what an easy time we have had really, and also eternally grateful for the wisdom of MN which has taught me so much.

Jimjams · 15/04/2005 23:37

And jmb is the only SN mum I have met- and lovely she is too

jmb1964 · 15/04/2005 23:41

aw, thank you Jimjams, you're very lovely too, and your boys! (by the way, off topic, sorry I missed your CF anxiety thread - have posted now, but too late I expect!)
Tried to put a photo on, but can't work out how. Anyone got any tips??

InternationalGirl · 16/04/2005 00:10

Hiya:
I am 36, 9th Wedding anniversary this week but been together almost 12 yrs. We have 2 DDs - DD1 NT aged 10 and DD2 aged 5 dx autism (although appears very high functioning) and continues to surprise us everyday. We think she is going to be an artist!!

Life has been a challenge and made us grow a lot learning about SN - the more we learn the more I can identify 'the spectrum' in certain members of the family. Personally I think DH and MIL are somewhere on the spectrum but never dx but also have had the ability to learn and fit in (the 'specturm' is very subtle in later years but was very prominent by all accounts in their early years). Also think a half sister was perhaps adhd - (was hyper and really had a different way of thinking than the rest of us...) Was quite sad really - unfortunately didn't get the help she needed and went off the rails in a serious way.

I am constantly learning/searching for new ideas that might bring DD2 out a little more. We had an ABA therapist work with DD2 last summer for 6 weeks who 'woke her up'. Ever since then she has gone from strength to strength. Have also considered Brain Gym and RDI to say the least.

Currently living in London about to move to South Africa this summer. Hot hot hot!!!

Wow! HITC about W. commando crawling - that's awesome! Hope we see you again before we go...

... and RnB - you go girl - fabulous about the acting - maybe we'll see you on the big screen one day...

eidsvold · 16/04/2005 11:45

just saw this thread... I am usually here when you lot are in bed or busy for the day.

I am 36 - married to dh - another quick romance. Known each other just under 4 years. We have been married 3 1/2 years. Have Dd1 ( 3 in August) who was born with a heart defect and Down syndrome. She had two surgeries at 8 weeks old to repair her heart and it is almost like a new one. She is cruising, standing up and at the moment just starting to stand alone for a few seconds. Her development has exploded since she came here - lots of signs, a few words, June last year commando crawling - now - standing, cruising, bum shuffling and generally getting into mischief.

Dd2 was born in November last year - NT. Gorgeous and has us on our toes with her seemingly quick strides in development. Her lastest - chuckling - especially at her silly, funny wonderful big sister.

We were living in the UK - where dh and I met and we moved to Australia ( or home in my case) last June. Been back almost a year wow. I spent four years in Essex... dd1 is an essex girl being born in Southend-on-Sea.

I am a SAHM having given up secondary school teaching which I did both her and in the UK for too long. No desire to return - toying with ideas of writing - just need time and energy at the moment.

Have learnt so much about so many topics since I have been posting here on the SN board.

Blossomhill · 16/04/2005 11:47

Internationalgirl - I saw an old thread recently where you asked me to CAT you so we could talk. I didn't see it then so it would be great to chat. I'll CAT you. Blossomx

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TheRealMrsF · 16/04/2005 14:34

Welcome back MARYZ- I have missed you!!!!! You were so helpfull to me 2 years ago!!

Hi...I'm A Stay @ Home MUM....don't do many abbreviations ....why use 4 letters when i can waffle a whole sentance!!!

I have been with DH 19 years...married almost 17.
He has 2 boys from his first marriage...21 and 22yrs old...one has AS/ADHD and has been in prison.
We have 3 boys Tom-11yrs with Asperger's Syndrome/ADHD;Leigh-8yrs also with AS and little Alex - 6 in May...no diagnosis (yet) ...but is a replica of Tom at age 5.....so i believe he will be DX with 'at least ADHD...maybe AS too???)
My husband I'm sure is AS too...though he denies it!!! He also is hard to 'educate' as far as the boy's needs are concerned as he truley believes that they will 'Grow Out Of It"
And finally me......... I have come to believe that the reason i have always felt 'Different' is that I too have AS.....but for the past 8 years i have been under the care of the Community Mental Health Service...with monthly home visits ...and for the past 2 years i have been there to see a psychologist weekly. My main probs are Hoarding (cannot throw anything away),Obsessive Tendancies (these vary from cutting my hair to Cleaning/Tidying),Anxiety & Depression and Binge Eating(on waiting list to see a dietician).

My posts are as long.....sorry!

I am 37 and DH is 46....and about the only thing we have in common at the mo is that we both have MAY15th as our birthday!!!!

Socci · 16/04/2005 15:13

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Pages · 16/04/2005 15:22

Hi, I am 40 and mum to DS who is 2.7 (also am 22 weeks pg with my 2nd). DS has global dev delay, and was diagnosed with epilepsy (absence seizures) at 9m, was on anti-convulsant medication for this until age 2, but has now come off the meds and grown out of it. He had low muscle tone and made very little develomental progress until age 2, could sit at 10m but did not move, roll over or crawl, etc and did not reach out for toys or do anything much at all. He was a very frustrated child who couldn't even hold his own bottle, and needed constant attention and stimulation from me.

He is still behind but has made a lot of progress in his own way in the last 6m. He is still not talking or walking (though walks nicely holding one hand, just needs the confidence to let go!), and his fine motor skills are poor, but he now cruises, crawls, inc. upstairs, climbs onto furniture and is generally into everything, plays independently for long periods, and can post balls and small shapes into holes, and bring a loaded spoon up and into his mouth.

He has also had a history of glue ear and hearing loss and has just had grommits put in.

He is very affectionate, gorgeous looking (!)has a great sense of humour and an infectious giggle and all his friends at nursery yell his name as he comes in each morning, and are soon crowding round him and crawling round the floor with him (even though they can walk), which brings a tear to my eye just about every day.