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SN children

Here are some suggested organisations that offer expert advice on special needs.

Original poster

Special needs role call :)

140 replies

Blossomhill · 15/04/2005 13:41

I hope you don't mind but there have been so many new people and I thought it would just be nice to remind ourselves of who is who

Well I'll start with I am a 30yr old SAHM, been married 3 years (although together 9) and I have 1 ds (aged 7) who is nt but going through a bit of a teenage phase at the moment. I then have dd is 5 (6 in August), she has a high level pragmatic disorder which effects her ability to have conversations and socialise (although she does try really hard). Dd is currently doing very well in a speech and language unit attached to a mainstream school.
We have just recently come back from Bibic and it was such an amazing experience and we learnt so, so much about dd. More in 3 days with them than the whole 4 years through the normal channels!

OP posts:
Thomcat · 15/04/2005 21:14

hiya Christie. i think you should stop lurking and join in the chat, it would be great to get your take on stuff. So pleased you came out of hiding

Christie · 15/04/2005 21:14

This reply has been deleted

Message withdrawn at poster's request.

rivers · 15/04/2005 21:20

Hi, I'm a 29yr old SAHM. I have been married 7years and live in Harrow. My daughter was born at 26 weeks and has problems with her throat so has a tracheostomy. She is currently attending nursery and will transfer to mainstream school (with 1-1 carer) in Sep. My DD cannot speak but communicates wonderfully using Makaton (favourite sign currently , telling people they smell of poo!!).
Welcome to all the newcomers!!

marthamoo · 15/04/2005 21:21

I'm just nosy - but wanted to add that lou and ThomCat forgot to put that their children are absolutely beautiful

marthamoo · 15/04/2005 21:21

As are Blossomhill's (almost forgot that she sent me photo's yesterday)

Original poster
Blossomhill · 15/04/2005 21:28

Thanks Marthamoo and can I add that you are exceptionally drop dead gorgeous with an equally lovely dh to match. Your kids are also very gorgeous, obviously in the genes

OP posts:
Original poster
Blossomhill · 15/04/2005 21:28

Rivers - lol!!!!

OP posts:
marthamoo · 15/04/2005 21:29

Oh I like this thread

onlyjoking9329 · 15/04/2005 21:30

o.k i am 40, how did that happen, married for nearly 8 years but together for 15 years , i used to be a residential social worker/family support worker/outreach worker have worked in SEN for many years adults and children, i am now retired due to back problems, we have twin girls almost 11 they have DX of Autism and general learning disabilities, they attend a special needs school in nottingham,then my son who is soon to be 8 he has a DX of Autism, much more autistic than his sisters but without the learning disabilities that they have, he is in a small village main stream school in a class of 18 with 10 hours support and doing o.k....for now

Original poster
Blossomhill · 15/04/2005 21:31
  • Marthamoo
OP posts:
Thomcat · 15/04/2005 21:32

Bless you marthamoo, you are such a sweetie. Would love to repay the compliment but no idea what you look like, don't even have an image of you in my head.

I think you might be petite for some reason!

Rivers, I didn't know you lived so close to me!

Vix4boys · 15/04/2005 21:32

Hi, I joined yesterday.

I have 4 boys, DS1 is a stroppy noisy NT 6 year old, DS2 is 3, he is Autistic, non-verbal and has just started PECS and has picked it up really well. He goes to a SN playgroup which he loves, he is a lovely happy little man! DS3 & DS4 are 10 months old, and seem to be NT, although I am completely paranoid about everything they do.

I also have 2 stepkids, SS is 15 and has Aspergers and Dyspraxia, and is also a hormonal teenager, aaarrgghh! SD is 12 and NT, very lovely , but starting to get those stroppy hormones now too!

Original poster
Blossomhill · 15/04/2005 21:33

Vix4boys - Welcome to mumsnet

OP posts:
SleepyJess · 15/04/2005 21:33

SleepyJess, 33.. so 'named' due to ever-wakeful DS2 age 4 who has dystonic cerebral palsy, hypthyroidism, eczema and dairy intolerence. Married to DH, aged 39.. we also have DS1, 12, who has cystic fibrosis and DD who is 6. (DH also has 2 from his first marriage, DD, 19 and DS, 17).

I'm a SAHM - who is actually not often AT home!!, (currently studying for a degree with the Open University) and DH is SAHD too.. due to being disabled with psoriatic arthritis.. and being in chronic/acute pain all the time. (He works hard at home though! )

We have been married nearly ten years.

SJ x

marthamoo · 15/04/2005 21:36

TC, CAT me with your email addy and I shall send you an invite to my online album. If only to disabuse you of the idea that I am petite, lol.

Sorry for hijacking thread - shall go away now.

vicimelly · 15/04/2005 21:36

Hello everyone I'm 24 a SAHM and have one dd 4yrs.
DD has a condition called Sacral Agenesis - pretty rare, basically means she was born with most of her sacrum missing which gives rise to all kinds of mobility problems and also incontinence. But she's doing great, far better than was ever predicted
It's great to hear everyone's stories!

Original poster
Blossomhill · 15/04/2005 21:37

Marthamoo please don't go. We want you to stay!!!!

OP posts:
Christie · 15/04/2005 21:43

This reply has been deleted

Message withdrawn at poster's request.

Thomcat · 15/04/2005 21:46

Thanks a lot Christie, that's really nice to hear from you. Well I look forward to 'chatting' to you a lot more now. So pleased this thread has brought you out Well done BH

Mathamoo - have CAT'd you, won't see email till Mon.

marthamoo · 15/04/2005 21:51

I just feel like anything I say may come across as condescending and I would hate that - I think you are all bloody marvellous and don't know how you do it. I find coping with two NT children hard enough. One of the things I love about MN is that it enables me to see other aspects of parenting - that I maybe hadn't thought of before. I posted somewhere else on here that MN has changed my perceptions of things: eg., if I see a child playing up somewhere I don't automatically think "oh what a badly behaved child", I think "maybe he is on the autistic spectrum" (thanks to jimjam's, MrsF, jaysmummy et al's insightful posts). I smile like a loon at all children who have Down's - there is a little girl at my local Mums n' Tots group who does and I have to bite my tongue not to say to her Mum "oh my friend has a dd with Down's" as I would look like a total internet sadsack if I then admitted I have never met them (TC and Lottie!) And I put money in every SN charity box I see and as I do I think of the children I now 'know' with SNs and that I am a wiser person for knowing about them. And I bought Scope Christmas cards specially for lou's ds2!

Hope that wasn't condescending...

marthamoo · 15/04/2005 22:04

Yikes, killed the thread.

rivers · 15/04/2005 22:05

Blossomhill- I have my brother to thank for teaching my DD the rude signs and he is 27!!!
TC - Have lived in lovely Harrow all my life(!), I am sure we must share the same local hospital, we are always there for some appointment!! Will look out for you!

Original poster
Blossomhill · 15/04/2005 22:06

I don't think that's condescending at all Marthamoo. I think it's very nice to hear that you have learnt so much. I have learnt loads too on here!

OP posts:
Thomcat · 15/04/2005 22:08

Marthmoo, If you were here with me I'd slap ypu then hig you. shu up you silly old mo. Ypu must, must know how fab I/we think you are. Don't you? Bless you little cotton socks. Shall we start another thread so we can gush?! You are one of my fav mumsnetters and always have been, so shut it

marthamoo · 15/04/2005 22:10

Aw Gawd, I really am going now...es madly