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Original poster

Stop the world, I want to get off

71 replies

amber32002 · 14/02/2009 07:19

I remember that as one of the phrases my grandma used to use. Seems very appropriate for a week where I've had to rush back and forth to hospital for dh who's had a brain bleed and is undergoing all sorts of tests. As people might remember, I'm ASD and so's he, and of course hospitals are a sensory nightmare for both of us anyway. So much for routine, my needs, his needs or anything else. Just sort of surviving at the moment. It made me wonder how much training any hospital has in caring for those with an ASD. They've been good, but it's like trying to recover in the midst of a warzone of noise, smells, people doing unexpected and fairly unexplained tests etc. We had to be really firm with the consultant and say "no, he can't handle that", at one stage which was respected.

I'm so tired....

OP posts:
BriocheDoree · 14/02/2009 07:43

Amber, so sorry. Sending virtual
Hope they find out what the problem is soon!

troutpout · 14/02/2009 07:54

oh i am sorry Amber
It all sounds very frightening

Try and get some rest
I hope things are easier for you soon

xx

Tclanger · 14/02/2009 08:37

This reply has been deleted

Message withdrawn at poster's request.

notfromaroundhere · 14/02/2009 09:08

Oh no, so sorry to hear this. Wishing your husband a speedy recovery and try and look after yourself too xx

HelensMelons · 14/02/2009 09:18

Oh Amber, sorry to hear that things are so stressful for you and dh. Please let us know how things are going and look after yourself.

Take carexxx

improvingslowly · 14/02/2009 09:37

As above, hope dh has speedy recovery and that you take care of yourself as well.

5inthebed · 14/02/2009 10:17

So sorry to hear this Amber. Hope your husband is ok and that he can come home soon!

Must be so hard for you, but you are doing really well x

staryeyed · 14/02/2009 11:47

That's terrible Amber. I hope he gets better soon.

cory · 14/02/2009 12:17

Oh Amber, this sounds like an absolute nightmare. I do hope he gets better soon!

magso · 14/02/2009 13:05

Thinking of you all Amber.
Hospitals usually have a room/multi-faith chapel which can be a haven of peace. Is your DH in a side room and if not could it be achieved?

Seuss · 14/02/2009 13:22

Amber, hope your dh gets better soon and look after yourself too.

Woooozle100 · 14/02/2009 13:25

That sounds awful Amber. Wishing you and yr dh all the best. Hope he's home soon.

misscutandstick · 14/02/2009 13:45

{{{gentle hugs}}} hope your DH is home again soon and on the mend too. "all power to your elbow" in keeping things together (if you're wondering, no i have no idea what it means either, but my father is an avid fan of the phrase and was hoping it would cheer you up just a little)

kettlechip · 14/02/2009 14:05

Amber, sending you my very best wishes and a big cuppa! I know you're always there to offer them to others in need. Hope things improve for you all very soon.

flyingmum · 14/02/2009 14:09

Best wishes Amber and Amber's hubby. What a stressful time for you all.

Hope he will be better soon.

TinySocks · 14/02/2009 15:10

Big cuppa from me too Amber.
How long will DH be in hospital for? I hope he can come back home soon. xx

Phoenix4725 · 14/02/2009 18:10

hope he gets well soon xxx

trace2 · 14/02/2009 20:27

amber so sorry thinking of you both!!!((hugs))

Original poster
amber32002 · 14/02/2009 21:27

No news other than that they're doing another huge test on Monday...arrghh...but thank you muchly to everyone for your thoughts and virtual hugs and cuppas. They're much needed. The ward he's on is SO noisy, and it's nearly deafening him because this has made his hypersensitive hearing even more hypersensitive, but there's nowhere else for him to be. He's just so tired as a result. Taking in earplugs and things tomorrow.

OP posts:
Seuss · 14/02/2009 22:08

It's a shame they can't give him a room - good plan with the ear-plugs though. Hope everything goes okay on Monday. Take care - both of you.

Tclanger · 14/02/2009 22:10

This reply has been deleted

Message withdrawn at poster's request.

TallulahToo · 14/02/2009 22:32

Amber, So sorry this has happened. Sending virtual hugs. Your kindness here has always been appreciated and I hope we can return the favour for you.

Our local hospital trust has a person responsible for nurse communications and works within the Corporate Nursing Department / Chief Nurses office. This person should be aware of the difficulties you and your DH have with ASD sensory issues and should be able to make suitable arrangements for you (hopefully for a quieter bed) - or at least advise the matron on this. Suggest you ask for the equivalent person to contact you on monday.

Hope this helps Amber. Will log in again on monday to see how you got on. Please email me if you'd like more information about the above.

Love & hugs

madmouse · 16/02/2009 10:53

oh poor you and dh what a horrible worrying time

made extra hard by both your asd

thinking of you

Original poster
amber32002 · 16/02/2009 10:55

I've tried contacting the patient liason service for the hospital to see if they have some good ideas. Main test now tomorrow, but at least he's feeling a bit better than the last couple of days which is good news. Only another week to go before we know how things will be for us...
Thanks everyone for your continued kind thoughts and ideas. I certainly need them at the moment as my brain is trying to cope with far too much.

OP posts:
HelensMelons · 16/02/2009 19:06

Amber

Just to let you know still thinking about you; good luck for tomorrow and keep us posted.

Take carex