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Diagnosis meeting tommorrow. Come and give me your good cheer please.

35 replies

nikos · 13/11/2008 20:01

So tommorrow is D day. We're going for the feedback session on the ADOS and DISCO test with the paed and OT. Know it's going to be bad news and I've been strong through lots of things with ds. But feel tommorrow is going to hit me hard.
You are such a supportive lot. Come and give me your words of wisdom and perspective.

OP posts:
moondog · 13/11/2008 20:05

Best of luck Nikos.
Please read the list I've just posted on the SN section about the AFASIC newsletter.

Tclanger · 13/11/2008 20:10

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tipsycat · 13/11/2008 20:44

Even though I was expecting it, the diagnosis of ASD for my DS (then aged 4) hit me hard. Don't expect too much of yourselves, have a little treat planned for later. Will be thinking of you. Hugs

feelingbitbetter · 13/11/2008 20:45

Awww, good luck. Be thinking of you.

TotalChaos · 13/11/2008 20:55

best wishes to you for tomorow.

twocutedarlings · 13/11/2008 21:00

Thinking of you Nikos ((((hugs))))

It does get easier (honestly), be kind to yourself and like others have said have a little treat planned.

nikos · 13/11/2008 21:14

Thanks everyone. We're actually moving house so have arranged to get the new keys tommorrow afternoon. Something nice happening after the meeting. We're moving over a week so we will just go and look at it tommorrow.
Oh and dh is taking me for coffee and cake after the meeting

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coppertop · 13/11/2008 21:50

Best of luck for tomorrow, Nikos. xx

misscutandstick · 13/11/2008 21:55

{{{HUGS}}} for tomorrow, will be thinking of you. XXX

PeachyAndTheSucklingBas · 13/11/2008 23:38

Good luck, we have ours next month so know how you feel (plus been through it before with ds1)

remember to really care for each other as a main priority for the weeks post dx, it won't change your child but can change you and your relationship, at least a bit. Be gentle with each other.

Aefondkiss · 13/11/2008 23:49

good luck Nikos.

amber32002 · 14/11/2008 07:07

Coffee and cake after the meeting is very important, I find. Or tea and cake, as the case may be. Let us know how it's gone?(the meeting, not the cake... )

BriocheDoree · 14/11/2008 08:24

Let us know how you get on
Have a large glass of wine ready for this evening or whatever's your favourite poison!

BONKERZ · 14/11/2008 08:27

good luck, rememebr to be kind to yourself after, no matter how prepared you are it will still hurt!

melmamof3 · 14/11/2008 09:03

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dsrplus8 · 14/11/2008 11:30

good luck 4 tommorow

kettlechip · 14/11/2008 11:32

good luck nikos, will check back later to see if you've updated. Have actually got butterflies for you..!

BONKERZ · 14/11/2008 18:06

how did it go?

nikos · 14/11/2008 19:34

Hi all. Just got to the computer after a very eventful day. We got keys to our new house so weve all been round for a look.

The meeting was with paed and OT, who were both amazing. Ds has scored in the autistic range but paed said this is 'not tattoed on his head' and is a label to get him the help he needs. We spent about an hour there talking about our concerns and next steps. I was actually really o.k. until she started to talk about how much I had done to bring ds on. Then the tears welled up (it has been a huge strain this year). Paed said she's more worried by parents who dont cry at these meetings.
Feel a bit wrung out tonight. We've all just had fish and chips and I'm about to start my glass of wine.

Think it will effect me quite deeply this. But I have to stay in the present, no point worrying about the fututre now. Thanks for all your kind words. It really means a lot.

OP posts:
nikos · 14/11/2008 19:35

Oh and the cake was raspberry and white chocolate muffin

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deeeja · 14/11/2008 19:45

Hi Nikos, glad to hear he got the correct dx, and will get the help he needs. Reminds me of how I felt when my ds' were dxed. Have a weekend off and just enjoy being with you lovely boy. Nice to hear you exchanged on your house too.
Relax, and be kind to yourself. You have done so well, and worked so hard.
Got a tear in my eye reading this thread. Hugs to you and your sweet little ds.

feelingbitbetter · 14/11/2008 19:47

Oh Good news Nikos and so lovely to hear our your hard work as parent acknowledged .
Now, after fish & chips, cake and wine - I expect you to be feeling much better!
It must have been a very difficult day, but you got through it, so as its Friday, I shall join you in a glass with a cheer to DS starting his future with appropraite support.
Well done all of you xx

kettlechip · 14/11/2008 20:11

hugs to you. Looks like we will be going through the same thing in January, and possibly with the same outcome given how similar our ds' sound. Try and relax now, there's nothing more you can do for the moment. Good luck with the move!!

jammydodger · 14/11/2008 20:14

Best wishes to you Nikos. Funny you said about the fish and chips - our ds (4) had his ADOS and diagnosis this week with paed and SLT, and the first thing we did afterwards was stop for fish and chips (which we only do once in a blue moon)..felt like we all needed it!
Best of luck with everything.

Tclanger · 14/11/2008 20:41

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