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Here are some suggested organisations that offer expert advice on special needs.

Original poster

Posting on this Board

261 replies

hels9 · 21/04/2008 20:38

I'd be interested to know what anyone else thinks, but I do find it frustrating and a real shame when people whose children blatantly do have special needs in the literal interpretation of the phrase feel that posting on this board might be inappropriate. Special needs are, so far as I'm concerned, special needs of any kind - whether related to health, physical needs, behavioural or general-developmental. And that is why I look to this board for advice and support from understanding parents. Plenty of parents have children with special needs in several or all of those categories in any event, and it really would be tiresome to have to post the same message on several different boards to get to speak to everyone you want to.

I will rue the day we ever get separate boards for different categories of special need. (Anyway, the whole argument about dividing special needs up into more specific sub-categories reminds me a bit of the witterings on the Gifted and Talented board by disgruntled mothers who feel that there are too many merely clever children's parents posting on there, so the board really ought to be renamed, or the offending parents chased off with their tails between their legs - albeit that the reasons behind fearing this is the wrong board to post on are far more noble and sensitive to others' feelings than those behind the G&T comments).

OP posts:
yurt1 · 23/04/2008 14:27

pmsl

Mind you that stopped me applying for things like mobility, DFG's etc for years. It was only after near misses that I went for it.

coppertop · 23/04/2008 14:27

Can I be in the poater clique? Pleeeeeease!

oiFoiF · 23/04/2008 14:28

its a poater quiche surely

yurt1 · 23/04/2008 14:28

Perhaps the poater clique could have their own section.

"paoters" "poater needs"

ChocolateRockingHorse · 23/04/2008 14:30

Does a Poater Quiche have fewer calories than the usual kind??! Please say it does!!

coppertop · 23/04/2008 14:32

What about a nice "Developing Your Inner Poater" section? Newbies could aspire to join our quiche.

oiFoiF · 23/04/2008 14:33

poated and quiched section

coppertop · 23/04/2008 14:34

A laminated and velcroed quiche. Yum!

yurt1 · 23/04/2008 14:35

I think you're being a cliquey velcro cow with that comment coppertop.

coppertop · 23/04/2008 14:36

I freely confess to being a velcro cow.

oiFoiF · 23/04/2008 14:36

i still cant remember the velcro cow thing though yurt tells me i was bovine

sarah293 · 23/04/2008 15:26

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mshadowsisfab · 23/04/2008 15:28

By KerryMum on Wed 23-Apr-08 13:21:45
There is currently a poster with a child with CF who doesn't feel SN is the appropriate place for her to post.

I have never felt comfortable posting here. Despite the fact that both my dss have been diagnosed with sn. Health related. I have always felt that there is a "clique" on this board and that most children have to have intellectual disability (generally very severe) to post here

can't leave that unaswered .
dd doesn't have a intellectual disability are you bored again or something.

SixSpotBurnet · 23/04/2008 15:30

Oh God I remember velcro cow okay . 'Nuff said.

mshadow I wish I could work out who you are...

yurt1 · 23/04/2008 15:32

The person with the child with CF not posting seemed to be not posting because she felt her child wasn't disabled and had been told to treat him/her as 'normally' as possible. I can see why someone wouldn't want to post on SN under those circumstances.

It's something we have to deal with in our RL support group. Providing somewhere safe for one group to be able to discuss GCSE problems and another group to discuss nappies in teens. The two tend not to mix and it can be better to provide separate help in some way (although it can be hard).

I think a chronic health section sounds a great idea actually- would make it much easier for the people with the same sort of problems to meet up.

mshadowsisfab · 23/04/2008 15:33

SixSpotBurnet twit check my profile tis on there...I am 2shoes just fancied a change.

SixSpotBurnet · 23/04/2008 15:34

Didn't think of that....

yurt1 · 23/04/2008 15:36

so perhaps there's aren't many of us with kids with an intellectual disability (I'm not quite sure ds1 does despite his severe learning disabilities - that does make sense if you know him- he;s unteachable - almost certainly).

I don't think there are that many with severe learning difficulties are there?

mshadowsisfab · 23/04/2008 15:41

I wouldn't worry Yurt. I have never found anyone with someone like dd on here.. tbh in rl either. she decided to be different

yurt1 · 23/04/2008 15:41

different is good

GooseyLoosey · 23/04/2008 15:46

Can I just say, I posted here a while ago worrying about asd afer some comments had been made about ds. I was hugely grateful for the many kind responses I got from people at a time when I was feeling really low. No hint of a clique and I was not made to feel that my concerns were trivial compared to those of you who clearly have greater issues. Thank you! Keep things as they are.

TheMadHouse · 23/04/2008 15:52

Can we not just wait for Janni to answer people rather than make a mountain out of a molehill.

It seems to me that other people are trying to cause a rift for reasons of their own accord

sarah293 · 23/04/2008 15:56

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sarah293 · 23/04/2008 15:57

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pagwatch · 23/04/2008 15:59

hmm
are you sure this is the place for head boggling. Shouldn't that be under the poater thread?
I am with you riven.
I think the board works fine and people should post where best suits them