She's replied to you riven.
It looks as if she's not going to allow my comments to be seen. Perhaps she will but she's replied to 'Shirley' so she's been on her website but my comment is still 'awaiting moderation'.
So it's here:
Louise Says: Your comment is awaiting moderation. 
March 29th, 2008 at 10:08 pm

It?s very unfair to suggest that families just accept their lot and therefore allow the dreadful state of affairs to continue.
My son is profoundly disabled and over the years I have written to MPs and counsellors, I have demanded a properly written statement, I currently have a complaint in against our local authority. My friend?s with disabled children are all the same. 
One thing I have learned over the years is to choose my battles. Fighting takes time away from my family. Usually armed with the facts I can get some sort of result, but sometimes it?s not worth the time taken and energy it take. I will now go hell for leather for a battle I think worthwhile, one that will make a difference to us. But I leave others and instead spend that time enjoying my son and his siblings.

Saying: ?Why don?t they use their parental rights (which are very solid in law) to force the system into helping them?? is not particularly helpful. It?s too vague. Which parental rights? Parental rights for what? Share them on here if you want to help. Tell us which parental rights we can use to force action. Save us having to search for them. 
Most people can?t afford access to solicitors. If we have parental rights we don?t know about we need to be told them.
Parents are ?letting them get away with it? because we can?t be bothered to battle for every little thing - especially when we?ve done it for years. This doesn?t actually mean we?ve given up, or we?ve not taken on the cause, it means we have some balance in our lives. People who spend their whole time on a cause become very dull.
I have to agree with Shirley I don?t think you really understand the complexities of fitting in fighting with all the day to day caring (and working- the majority of parents at my son?s SLD/PMLD school work as do I). 

Families don?t parent a disabled child in isolation, they do it around the rest of their (usually full and active) life. Sometimes we?re too busy enjoying ourselves to start some battle just for the sake of it. After a day of working caring for my disabled child and his siblings I find a glass of red wine over dinner with my husband more useful for my health and happiness.