DLA

[Shauna2866]

Does anyone know how successful MR’S are for DLA ? My son got refused so I’m doing a MR one of the reasons was because
children don’t see salt until there 3 when I sent in evidence to prove he’s seen them and under there service so I feel like they’ve not even looked at anything he’s been under them since he was 15 months of age! And another she said he was 12 months of age 🤦🏻‍♀️ and he is not 12 months i wouldn’t ever put a claim in for a 1 year old as I know they wouldn’t award it and my HV said the same

so I have some new evidence HV has wrote a letter well typed a letter up and SALT have done a report and I have his paediatrician referral letter

I’ve never done anything like this before my disgusted gets DLA high rate care and has done since she was 17 months she wasn’t even diagnosed then she is now
and she has been giving a 10 year award last month when turned 3!

I sent no evidence in with hers other than a HV letter and my son I sent more in and they said no 🤦🏻‍♀️ I wasn’t going to go through the MR but my HV said I should I have nothing to lose anyway as they have already said no so I’ll see what they say in the next month or so x

Sorry not my disgusted🤦🏻‍♀️ I meant my daughter predicted txt 😑

Anyoneeee ??

There is a whole discussion about DLA and child DLA wait times it may be best to post it on that thread. Definetly do a MR though. Yes they are worth it as you would have a different DM. They seem to all have different ideas/rules. However it does look like now, with more and more people claiming they have tightend up on things and you do have to have evidence to back everything up.

Hope this helps and good luck.

@mooneigh hi thank you for replying I have sent in more evidence from salt and HV
I’m not clued up on using this only just getting used to it so that’s why I done a new thread
hope the next DM looks at my information properly as I don’t feel like it was looked at correctly the first time x

There are so many that do get turned down and all say to do a MR as most of them do then get the decision over turned.

It seems to be the case of sending in as much evidence in as possible to back up your claim.

@mooneigh yeah my HV told me to do the MR as I was just going to leave it cos I have heard it’s rare for them to change there original decision but I’ll just wait and see now what they say
think it’s 3-5 weeks for a MR x

If the MR isn’t successful you should appeal.

@YellowRosesWithRedTips yeah I think I will do that definitely I’m just hoping with the extra evidence form HV stating her concerns and then one of SALT even though they was one from salt with my son claim that they will award him don’t know how they can say he’s not with salt when the evidence was there with his claim 🤦🏻‍♀️ baffle me they do honestly! X

Can I ask what a MR is. I've sent form off with a lot of evidence EP report, draft EHCP, consultant diagnosis review and salt reports. Surely that would be enough? My son is 4 and non verbal and needs help with virtually everything and often is awake at night?

@Everythinghasgonetoshit MR - Mandatory Reconsideration. So if they turn you down and you don't agree with it and have or can get evidence to back up your claim then you need to do a MR and then a different DM - Decision Maker will look at it, and quite often the decision is then over turned.
Not in all cases, but quite a few are.

If you have sent in lot's of evidence then I shouldn't worry. That is the main thing they want so everything you have said can be backed up with what a doctor or a proffesional has said then they can't argue with that and it's all good.

I sent in evidence with mine and that still wasn’t enough

My HV done a report and salt did but according to the decision maker he’s not under salt !! When he is as the evidence was there so I don’t even think they looked at him claim correctly they mustn’t of done x

It’s crazy my nephew has been in receipt of DLA since he was 16 months old for suspected ASD ! Which he is now diagnosed with ASD but he just had a letter from HV got given HRC straight away but I sent in 2 lots of evidence and they said no to me

It all comes down to the DM, that's why it is best to have a MR so another DM can look at it plus they have to go through it all and they check all the evidence. I think there is such a back log (having to wait 18 weeks for a claim to even be looked at) I think it all just depends on who you get look at it, what mood there in and if they feel there is enough evidence or a clear disabilty. If not then they just decline it. So annoying as I know people before who sent in claims with no evidence and been awarded. where as others have sent in evidence and genuinely have disabled/disadvatage children and they have been declined. The system is so wrong.

Hopefully the MR will go in your favour, I know many others have. Good luck.

@mooneigh yeah that’s what gets to me! There’s another girl I know she said she never sent nothing in other than what she said in the form and got awarded straight away and then when they refused my son I couldn’t believe it my HV said the same she said it’s probs all down to who looks at it and what mood there in ect
x

Thanks for explaining the terms. Agree that another set of eyes need to look at it. Was it a statement from SALT or an assessment. I dont understand their arguement about your sons's age when they can just call SALT themselves and speak to them. Might be worth asking SALT for more evidence to provide.

This is why we waited to make our claim as we know they will quibble about it, so wanted to have EHCP, duagnosis and EP report first etc. We still expect them to quibble on mobility as my son is 4.5 and he is able to walk, but refuses and sits down a lot and is dangerous if not supervised 1 to 1 at all times and often has lots of falls too. He should fit the remit of at least lower rate mobility (but too young now) but we think he should be higher for both as he does not have the cognition to understand dangers and needs support day and night for care.

Good luck with the MR. Hopefully you will get someone that understands the process better.

@Everythinghasgonetoshit hi yeah it was a up to date assessment from salt and salt have also sent in another report along with my MR and my health visitor has wrote another letter to

I would ask MN to remove the image because it gives your/DS’s full names.

Much of it is about how you write what you write. Think about the care, support and supervision DS needs in excess of what is typical of peers the same age. For example, the HV letter states total supervision with toileting/nappy changes is needed, but you need to go into further detail because many toddlers need total supervision with nappy changes/toileting, so you need to explain why your care/supervision is in excess of what is typical. Same for waking during the night. You need to go into more detail because many toddlers wake in the night and need supervision.

Did you use the Cerebra guide?

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@YellowRosesWithRedTips I had some one come out to help me and I explained everything in there but I also said please refer back to the original claim where it states everything in there
but I don’t think I done it correctly like fully explained myself 🤦🏻‍♀️ but I’m hoping the 2 reports form HV and salt are but more helpful x

Just an update the Decision maker called me on Friday and said he was sorry it was never awarded first time he hasn’t even looked at the new evidence what I already sent in was enough for them to award it me my sons been giving HRC only due to age !
but thought I’d just post incase anyone who’s in this position comes across the post x