Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA MR advice

33 replies

Needanewadventure2021 · 11/05/2022 18:41

Hey

After over 10 weeks of waiting yesterday my child received a decline. I will be honest I broke down when they listed their reasons. To the point I had to ask 'are you sure you have even looked at my child's claim?'

It felt like their reasons were read from a generic document and have no relevance to my child's application. Nothing at all related!

However it wasn't until the care part that really upset me. My DS needs alot of extra help/care/supervision. I find it draining how demanding he is of me still. They dismissed he needed any additional assistance with anything and apparently he is able to do everything I gave very clear examples of that he actually can't. The list is very very long!

I know it sounds strange but has anyone experienced this where it feels like their reasons have no relevance to the claim you submitted?

I sent off his medical records, medical diagnoses, CAMHS referrals, OT, details of therapy through school and school SENCO details. His isn't diagnosed yet with additional needs but we are pursuing an ADHD/ASD diagnosis.

I'm absolutely gobsmacked over the decision. It doesn't make sense to me at all. Not at all!!

I need to wait for my papers for come back to file an MR but what the hell do I need to do? Yesterday I felt so drained with it all and how things are escalating at home so all I did was cry. Today I'm full on 'they are taking the piss, telling me he doesn't need any assistance'. I dont wish my child to struggle like he does. I wish his life was easier. But its not.

Any advice would be appreciated. Thank you

OP posts:
AReallyUsefulEngine · 18/09/2022 20:17

Both, the evidence bundle will include everything.

Needanewadventure2021 · 20/09/2022 20:29

@AReallyUsefulEngine sorry can I ask the appeal process please or is there a link for me to read on it?
I asked for a copy of the dla report today for my own evidence and I was told the surgery doesn't keep a copy of this letter? My worry is the GP report will arrive (to dla) late and won't be part of the evidence used to further decline. How can I make sure I get it included?

OP posts:
AReallyUsefulEngine · 20/09/2022 21:59

The letter from DWP will explain how to appeal. Once you have submitted the appeal you can manage it e.g. add evidence online. If you can’t do it online you can send additional evidence by post to the address in the letter you will receive. Once you have submitted the appeal DWP will respond with their arguments and evidence, and you will receive a copy of this - if the GP letter isn’t in this bundle you can raise it then.

Needanewadventure2021 · 21/09/2022 17:41

@AReallyUsefulEngine so today the GP surgery said they don't think I'm allowed to have a copy of this form that was for the DLA? Is this true because it is about my son and about his claim for DLA and was for evidence purposes anyway? My concern is the GPs form (I'm not sure the contents but I'm assuming medication, appointments, referalls etc) was not sent in time therefore isn't part of the evidence used to form their decision. How can I make sure it is used if they haven't had it but I know its been done?

I'm surprised I'm not allowed a copy. I believed I was able to access information about my child by requesting it?

OP posts:
Needanewadventure2021 · 21/09/2022 17:42

Sorry just seen if not included I can raise it then but is it true I am not allowed to access a copy through my GP?

OP posts:
AReallyUsefulEngine · 21/09/2022 18:29

The Access to Medical Reports Act 1988 doesn’t apply to medical reports written for benefit purposes. The GP doesn’t have to discuss or show you the report prior to sending it, and you are approaching the wrong people about accessing it now - it is DWP who give a copy on request with the exception of if it is considered harmful. You just have to be patient while it is uploading on to the system.


You can see further information here.

Needanewadventure2021 · 21/09/2022 19:43

Oh I didn't realise. Thank you

OP posts:
Needanewadventure2021 · 24/09/2022 14:11

@AReallyUsefulEngine I've PM'd you

OP posts:
New posts on this thread. Refresh page