Dimples tell the nhs service you are looking at specific schools, that require diagnosis, you were told summer 22 for assessments / diagnosis and want to know if you are on track to have these appointments at the specified times as a diagnosis is now key to ensuring your ds gets the right school provision etc. I think it’s totally rubbish people are forced to go private especially with children! I look at therapy in America, and yes I know it’s expensive and paid via insurances, etc etc but they have so much more available than we do!
I just wanted to update on ds.
He’s still eating loads, more snacks than meals but I’m not bothered he’s always been a grazer like that. He’s getting the calories in though. His sleep is definitely better. He’s been going to sleep by 8.30pm at the latest consistently all week, he’s still taking his 2 sleep medications, but he could have had those previously and I’d still be trying to get him to sleep come 10pm.
His mood is more steady, so rather than up down up down up down argghhhhhh!!! it’s more on an even keel, not to say we aren’t having some kick offs but given all the things going on with him I’d expect that whichever medication he was taking. He’s still anxious, but his worried expression that was permanently painted on his face has gone, so I’m sure he must feel better to a degree,
his expression has relaxed if that makes sense? plus I expect anxiety to a degree will persist, that’s just part and parcel of his asd, it was never intended for his anxiety to go away completely, it was only to help reduce it.
He’s hit me twice this week, compare that to the week before when he hit me err let’s say 50 times?
Ds has taken 6 days of the new stuff, he’s on 12mg now but will take 30mg when he’s weaned on to full dose by the end of the month, and it’s not due to work for 6-8 weeks properly either.
His ADHD, which the medication is actually for, I don’t think it’s having any kind of impact yet, he’s v distractible, needs putting back to task constantly (but i think personally that was always the same on old stuff to a degree!) I’m like ds leg in trousers, no ds not the remote, that’s it leg in trousers, ffs no ds not up the stairs, LEG IN TROUSERS. No I didn’t say underpants off I said LEG IN TROUSERS!!!!!! 20 minutes later we have progress, 2 legs in 1 hole! 🤣🤣 things like that, constantly.
Then he’s being really silly like rolling on the floor making daft noises and acting like he’s 2, purposely spitting when he’s talking, constantly giggling and giving himself hiccups all day etc, and he’s being daft at school and well they have nothing nice to say but then there’s a suprise!
Hes still sitting and playing on his games and stuff, I wouldn’t say his hyperactivity is any worse / better just same old ds.
He’s still impulsive (nothing new) school are saying he’s worse, I can’t say he is, he’s just the same impulsive ds.
Hard to make accurate judgment calls with ds because he’s always been bonkers on and off medications.
But overall in my honest opinion, his eating, sleeping, lability of mood are improving.