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Original poster

Blue badge - they are really winding me up now

38 replies

Thomcat · 01/11/2004 23:46

This has been going on since July, this time round.
They refused this time round the 1st time because we won't getting high rate DLA. Now we are so re-submit form. It comes back, can I just prove she has DS, something on paper from the hospital to say she has DS! Okay fine, sort that for them, it comes back again, They now want me to provide a letter from doctor/consultant stating 'that her inability to walk or stand unaided is a long term condition tather then due to her young age'. Are they taking the piss or what. Oh yeah because most 3 year olds can't stand, nothing wrong at all with the fact that she finds it hard & distressing to stand, arms wrapped round my leg, wailing for more then a minute. The fact my back is ed from carrying her around for 3 years, oh that's normal, she's just young that's all it is. ing **ers, I just want some slack until she's walking man, they want to make me beg, want to make it as hard as possible. Wonder how many of them have / need blue badges? Wonder how they'd feel if they had to do what I do for a week.

I'm getting that badge, just bloody watch me, I'm not taking this crap, it's another bloody principle thing again now. Cheeky **ards, they want a fight then fine, no bloody problem.

OP posts:
Original poster
Thomcat · 01/11/2004 23:47

Sorry massive rant, VERY pissed off in case you couldn't tell!

OP posts:
lydialemon · 01/11/2004 23:52

{{{{hugs}}}} thomcat, can't really offer anything useful to say!

blossomhill · 01/11/2004 23:54

They are taking the piss Thomcat
What more do they want FFS
Take it all the way if you have to. I realy cannot believe all of the hassle you have with statements and now this.
It is hard enough having a child with special needs without having the stress of getting things that are rightfully yours.
I jst cannot believe this at all

Original poster
Thomcat · 01/11/2004 23:58

I mean why do they think she gets high rate DLA?

Ohhhhhhhhhhhhhhh, i'm on that phone tomorrow.

OP posts:
mieow · 02/11/2004 00:02

Thats odd, here if a child gets high rate they are automataly entitled to the badge. I put Dd1 claim in for a blue badge when she was nearly 3, a few days later I recieved the DLA letter saying that from her 3rd b-day she would be getting high rate mobility. I just phoned up and explained that she are getting it from this date and if they still needed to see her, fair enough but it was only about a month before her b-day so they allowed her to have it, without someone coming out to see her.

Original poster
Thomcat · 02/11/2004 00:04

That's what I thought Mieow, another f'ing postcode lottery again.

OP posts:
mieow · 02/11/2004 00:05

yep, sorry you have another fight on your hands

lou33 · 02/11/2004 00:06

If she gets higher rate dla she is entitled to a badge. No question about it. Go get em!

Original poster
Thomcat · 02/11/2004 00:10

Why is it all so hard? Not a happy bunny tonight.

OP posts:
lou33 · 02/11/2004 00:15

I don't understand why they are arguing it TC. It states clearly that if you or person you are driving for is in receipt of higher rate dla, then you qualify for a badge. Open and shut case to me. I'd give you one!

geekgrrl · 02/11/2004 06:58

I think it's the law - higher rate mobility = getting a blue badge. I know Lottie isn't 3 yet, but have you had a letter confirming that she will be getting higher rate mobility from her birthday onwards (I'm sure you posted you had, but just checking...). I think they really need a kick up the arse, can't believe the people you have to deal with where you are . Seems like they're all conspiring against kiddies with SN, huh?! This is the bit on blue badges on the government's website on disability. Maybe you could threaten to turn up at their office with Lottie so that they can see it with their own eyes if they won't believe anyone else? If in doubt they should get a physio to confirm that the child is in need of a blue badge, which is what they did here in N. Yorks. when dd had just turned 2. Maybe getting the DSA involved would help? Also, asking to speak to someone's superior often works...

pixiefish · 02/11/2004 07:24

Go girl- you give them what for. What really pisses me off is that they treat it as if you want something from them personally- it's a job ffs- giving you a blue badge won't ffing kill them- god these people wind me up and i bet they've issued them to loads of people who need it less- the fakers get them straight away because these people in offices are scared of them (sorry tc- so cross on your behalf)

RnB · 02/11/2004 08:16

Message withdrawn

roisin · 02/11/2004 08:41

I find these threads so humbling. It is really shocking to read how hard SN parents have to fight for even the most basic of services.

Give them an earfull.

coppertop · 02/11/2004 09:19

Grrrrrrrr!

onlyjoking9329 · 02/11/2004 09:29

no wonder you are pissed off TC, keep pushing them lottie should have a badge my three all have a badge, as do i, its handy when you get dirty looks for parking in the disabled bit, cos i can take it in turns to shove them up peeps noses.

have you got a radar key?

mieow · 02/11/2004 09:31

RnB, I know just what you're saying, My kids very rarely see the GP for their disabilities (CP) and one day I was at the docs with DD1, when I looked at the screen, and it said she had a eye problem, now DS's screen says he has Spastic diplegia CP, and I questioned why her screen didn't say it too. The doc turned round and said "she doesn't have CP" I was like "yes she does she was diagnosed two years ago, look through the reports you have in her file and you will see" He went through it and found the letters stating she has got CP. I was so angry because if I had asked the GP to do her DLA report or blue badge report they would have written back saying she doesn't have CP!!!

SoupDragon · 02/11/2004 09:31

ar$es

eidsvold · 02/11/2004 09:35

so sorry to hear that they are not abiding by their own rules...

here you are not automatically entitled to disabled parking badges and there is no disability allowance for children - so we lost that when we moved from the UK.

You can get a carer's allowance but the child gets nothing until they are 16 when they are eligible for a disability pension......

so whislt the up is the therapy etc, there is the down side too

but for you tc - GRRRRRRRRRRRRRRR I know what it feels like to carry a little one around all the time.... she's just young is just rubbish!!!!

Jimjams · 02/11/2004 10:47

do yo mean higher rate care (no badge entitlement) or higher rate mobility (automatic entitlement). Is it higher rate mobility you are going for? If so is there anyone in the DSA or other groups that you have met- just wondering if there's been a court case on this. There usually has! In the other info section I quoted that at them and asked them to take that info into consideration when processing ds1's claim- success. If you are on any email lists for DS I bet there's someone who will know of any previous court cases.

lou33 · 02/11/2004 10:49

we got a blue badge when ds2 was only 2, so couldn't qualify for higher rate mobility anyway.

Original poster
Thomcat · 02/11/2004 10:54

Just been in tears on the phone to the blue badge people. She's asked me to go and see them on Friday morning.
They said they ask for a doctors note to go with everything I have just for their records incase they get audited. I asked her if she had any idea how it felt to have to fight tooth & nail for everything when you have a disabled child (and I HATE having to refer to her like that), how hard it is and how it breaks my heart a bit more every time I have to go through this. She said she was so sorry, that I should never have had to prove she has DS and that I should go in and see her and hand everything over and she would sort it for me.

Still so angry I have to go in there at all tbh and that I've been trying to get this sorted since July, the 2nd time round.

I'm getting that badge man, I am so getting it, I'm carrying Lottie in there in my arms, handing her to whoever is responsible for getting me my badge and telling her to hold Lottie and have a conversation with me, standing up for about 10 minutes, see how she likes it.

Bastards, the whole lot of them. I don't want their sympathy and understanding, I don't want to be told there there dear, you poor thing, just give me the blue badge and get out of our lives.

There, rant over.
I'll let you know when I have the badge.

OP posts:
lou33 · 02/11/2004 10:57

Go and get them Tc. Make them apologise as well. And when you have the badge, sit back, have a drink, then write a letter of complaint. I'm simmering on your behalf.

Jimjams · 02/11/2004 11:03

I didn't mean you can't get it wiithout higher rate mobility- just that you don't automatically qualify so you have to deal with all the council crap. It might be easier if lottie is 3 to apply for higher rate mobility and then get the blue badge that way. If she does qualify for higher rate mobility (and it sounds as if she should) then TC could get a car as well! Or at least extra cash- all helps! I think sometimes getting higher rate mobility is easier than dealing with council officials

Dingle · 02/11/2004 11:03

Oh TC, why, why, why!!!???
It is absolutely ridiculous. It makes me so mad, we shouldn't be spending this amount of time, effort, frustration on stupid forms and fighting for something that we ARE entitled to. We should be using that energy on our children, to help & encourage them.
I am such a coward, I haven't started any attempt at statementing, the mobility aspect of DLA, the blue badge-I have been tied up with getting dd settled into nursery. Let's face it, hearing the crap that you are going through it isn't very inviting it is!
Even though my dd is walking she still needs a lot of physical support as well as encouragement to walk, and getting her in and out of the car is an absolute nightmare-do these people have any idea of what you are trying to cope with?
It got so bad for me last week I took pain killers for my back, because I really don't think I could have got dd to her SALT otherwise. I have suffered for long enough, I just couldn't go on.Saw an osteopath the next day, but things are only going to get harder as dd gets bigger-I can't see a light at the end of the tunnel ATM, and she IS "walking".
Who do these people think they are,GOD?