Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Primary school auties : spring 2021 and beyond - thread 6

999 replies

danni0509 · 15/02/2021 20:57

Hi. New thread.

This is the continuation of the thread for parents / carers of autistic children / children with additional needs. Most of us are parents of children in year 1 / year 2.

Links to old threads

Thread 1 - www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2 - www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3 - www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4 - www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5 - www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Everyone welcome x

OP posts:
LightTripper · 30/03/2021 09:53

That was a long wait @dimples76?! Glad it was negative in the end.

She is totally unbothered @openupmyeagereyes - definitely no regrets or anything (so that makes me not feel like I should be "doing anything" about it. though I do wonder whether later she will wish she was in her class photo etc? I bought a copy anyway so she can remember her friends. I don't suppose she'll be that bothered - it's not a big deal really is it, how often do we look at childhood photos at all, still less a class photo?) Have fun in your parents' garden. We are all going to my folks' garden on Friday. Can Not Wait - so excited! I think it must be September or October that we last saw them in person. Too long!

Great to hear about all the good school and arty work going on. We have a creative little bunch!

Good luck for the reviews tomorrow @MrsDuBeke and @Mumofsend - will keep everything crossed for you!

danni0509 · 30/03/2021 18:00

Hi.

Ds breaks up Thursday, he has 20 days off then goes back for 2 weeks minus the bank holiday Monday and then he leaves, think he has 16 school days left at current one, he leaves his current one on the Friday and starts straight at his special school on the Monday. Literally leaving one, weekend off, straight into another.

He’s doing 3 hours a day at his special (I said a week max, the heads saying 2 weeks then she will review and see how he’s settled. Just hope I’m not going to have a repeat performance with all the reduced hours as I don’t and won’t stand for it long term) I have to take him myself whilst he’s part time as the transport team from my la won’t transport for reduced hours his ehcp caseworker tried to get them to and they said no, so I told the new head this and she was like, so what.

(Im just putting this here now in advance, I think I’m going to have problems with the new headteacher. Ffs)

So I have to drive ds 35 mins to school part way on a motorway (possibly longer than 35 mins as my trial run was with no traffic and I don’t speed so can’t unfortunately get there quicker 🤣) then wait in this town in my car that is literally middle of nowhere and then drive him back, won’t have time to come home. So I’ve got to do that until she decides to have him all day (2 weeks minimum) then the transport will start.

I said to the La, petrol? You placed him in an out of borough school, why is it on my shoulders to get him there and back everyday? No response to that yet.

His new school have made zero contact with me, I’ve had to phone them about 3 weeks ago for advice and that’s when they told me his start date. They’ve told me nothing about uniform, I haven’t spoken to his class teacher, they haven’t contacted current school for any information whatsoever, they know nothing at all about ds. I’ve had to read there website and have to go pick uniform up from the town the school is in after the 12th April when the uniform shop re opens.

The head said a teacher would call me but yet to hear anything.... I have so much to tell them about ds. I won’t send him unless they are fully prepped and know everything they need to know.

OP posts:
danni0509 · 30/03/2021 18:10

Ds school have actually emailed his new school last week and haven’t had a reply yet, they wanted to know what his new class teacher would be called and his class and a few other bits of info so they can make a social story to read with him.

His 1-1 said yesterday have you heard anything yet? I said no, have you? And she said no,
We thought they may of been on Easter break but we checked and they aren’t.

Doesn’t look great does it.

I’m hoping they do all the necessary things phoning / making contact straight after Easter and if they don’t I’m not sending him! Not a chance.

OP posts:
danni0509 · 30/03/2021 18:33

I just can’t get over 8 children with additional needs severe enough to warrant a special school in a class and only 3 members of staff.

On the new schools website in the FAQ’S, it says will my child have 1-1 support? and there answer is.

No, many of our children come to us having had 1-1 support in their previous school but as we have much smaller class sizes and expertise with SEN we can adapt the curriculum to suit individual needs, we find our children don’t rely on the 1-1 support as they may well have previously done as each child’s learning is carefully planned to their current level which is reviewed on a termly basis.

Ds has never been in a busy classroom so the smaller classes makes zero difference for him, that won’t take any stress away as he’s got his own classroom for just him anyway so it’s not something that has been an issue for him and he has 2 armed guards with him, for safety, not so much his learning.

Then I found out local special school he would of gone to, he would of been in the Asd unit, where each child has full time 1-1 !

I can’t in a million years imagine ds without an adult supervising his every move! I worry for his safety.

But then also on the other hand he needs to learn to be unsupervised momentarily and adopt some independence and not have someone stuck to him like glue!

It scares me to death! Especially when he shoves things (whopping toys in his mouth then lays down laughing etc) which is a regular occurrence, what if they miss it and he chokes and then a thousand other scenarios. He locks the toilet door at his school takes all his clothes off and flushed them and drinks the toilet water etc. What if they don’t take him to the toilet and wait with him?

I’m going to apply for a job there

😆😞

OP posts:
openupmyeagereyes · 31/03/2021 10:21

danni I can imagine how worried you are. For him 1:1 isn’t about just his education, it’s also about keeping him safe isn’t it and the FAQ doesn’t answer that part. I think dc can still get 1:1 support but it will need time for them to assess. Hopefully they will be in touch soon.

openupmyeagereyes · 31/03/2021 10:22

Light it’s good she’s not upset about it afterwards, sounds like she knows what she wants and why.

openupmyeagereyes · 31/03/2021 10:24

dimples glad your meeting went well 😊

danni0509 · 31/03/2021 12:09

Dh has got a day off work, it’s nice and warm which is rare! we went to the range and planned to get some dinner and go for a walk before I pick ds up, never do we do anything or go anywhere, set off, got to the range just walked down the first aisle, 10am school phoned.

Can you collect ds he’s had a Pooh under the picnic bench he won’t come out he’s in one of his moods etc, so I very impolitely told her I was on my way. (At least twice a month do I have to collect him, telephone manner isn’t quite what it used to be now as I’m sick of it)

Got ds, showered him, they thought I was keeping him off for the rest of the day.... from 10.30am 🙄

I showered him, clean clothes, 25 mins later he’s back to school.

Why would I keep him home for the rest of the day?

Open how’s ds settling back in? Is he full time now?

OP posts:
dimples76 · 31/03/2021 15:23

Good for you Danni and sorry that this is so stressful whilst you wait for answers.

I had two medical appointment letters arrive in the post and was excited that progress might be made. Unfortunately one was from OT to CAMHS saying that they could not accept the referral (which was made a few months ago) because it did not cite any functional skills issues (he has 1000s) and they don't accept referrals just for sensory. The other letter was an appointment letter from the continence team. DS was referred in November, they sent me diary sheets in February which I returned within a fortnight and the appointment is not until the end of June - so 7 months after support was requested. DS turns 8 in June and unless some miracle occurs in the next few months still having accidents day and night. Sorry v boring post, it's just so frustrating, especially the toileting issues.

dimples76 · 31/03/2021 15:25

Got too carried away with my rant. Meant to add hope that the reviews are going/have gone well.

Light have a lovely time with your parents

MrsDuBeke · 31/03/2021 17:57

Blimey how annoying @dimples76, no worries rant away!
Spoke to preferred school who want us to visit again. Said they're full though and would worry about their numbers if they accepted DS. Might try to apply for 2022 intake but need to show why he needs special school first.
Review went well but highlights how Ms school can't meet needs long term. Anyway.
Easter hols nice so far. I bought this set of cones, hoops, and bean bags that we've been using for garden games. Had some walks, lots of maths, and even some reading! Lovely to finally eat dinner outside too!

Mumofsend · 31/03/2021 18:30

@danni0509 8 children and 3 staff does seem low, the one I want for DD is 10 children and 6 staff as a minimum.

DD's review went well, all in agreement she needs specialist so need to get it past panel. Have been told 6 weeks-ish before we can consult with schools if they agree.

danni0509 · 01/04/2021 12:45

Good luck to all who are waiting on special school places / looking for special schools Flowers

I found the getting the LA panel to accept ds for special school the easy bit, it was finding the special school with a place. I spent months ringing around and visiting them to be rejected as everything was / still is full. It’s draining.

The one he’s going to, I haven’t even visited they wouldn’t let me because of covid.

I still don’t think it’s the right fit for ds but didn’t have any other choice.

I read something last night on an old ofsted report that by the end of year 6 pupils could count to 100 and and could add single digit numbers together and in reading the children could read a growing repertoire of words including recognising their own names and most children were working towards level 1 of the national curriculum in all areas by the end of year 6 and had made better than expected progress.

Ds is in year 2 and can do all of that now, never mind in 4 years time. Academically he is behind his peers, but around 18 months - 2 years.

Anyway not even sure what it is I’m trying to say, the school fits him for his sensory / emotional level / difficult behaviour, but not academic level I don’t think.

I do know he will enjoy what they offer though, plenty of cooking / baking, outdoor work, planting flowers (he is a mini gardener, he’s growing his own vegetable patch at school currently!) swimming, and they really focus on independence they use team teach and it’s incorporated into every part of the school day.

As long as he’s happy that’s all that matters for now.

Dimples, I’m sorry toileting is still an issue, ds is still ok at home during the day (he wears nappies for bed still) but school is another story he’s fell off the wagon again with that. Hopefully they can offer you more advice when your appointment comes around and I hope the other appointments for your ds go well x

OP posts:
danni0509 · 01/04/2021 12:49

Light I hope you have a nice time tomorrow seeing your parents x

OP posts:
openupmyeagereyes · 01/04/2021 13:33

danni I’m sorry your shopping trip with dh was spoiled. We have half term this week, ds was doing 5 hours before he finished, we’ll try for full days after Easter 🤞

dimples sorry services are rubbish. OT are the same here unfortunately.

Light enjoy your visit with your parents.

Mrs glad review went well and holidays ok so far.

mum great everyone is in agreement, hopefully you can get a place at the school you want.

openupmyeagereyes · 01/04/2021 13:35

danni hopefully getting your ds in one school doesn’t preclude you from finding something that’s a better fit and being put on their waiting list.

openupmyeagereyes · 01/04/2021 13:40

Things are ticking along fine here. Last night we tried ds in pants overnight and he was dry this morning. I’m hoping he’s ready this time.

MrsDuBeke · 01/04/2021 13:53

It's such a worry isn't it @danni0509 but hopefully he'll settle and be happy for now then you can always reassess. We have so much evidence for special provision but still it is a battle.

danni0509 · 01/04/2021 16:36

Ds new school phoned me this afternoon, it was his class teacher. (He has a male teacher for the first time) I was talking to him for 45 mins. He seemed really nice.

So anyway he said he’d read his ehcp I said I don’t have a copy and he asked me if I needed time to find it, I said no I don’t have a copy at all, I haven’t been sent one! He said it says It was issued September and amended in January and he had the up to date January one, which i don’t have either copy of.

So I said I don’t know what information you have on ds as I can’t see what’s on your paperwork but his ehcp doesn’t usually go into too much detail anyway, ie it’s a pile of shit! so he give me a run down of what it said and it was fairly accurate but basic.

So he asked me to give him an idea in my terms, so I did.

He said the classes are 10 pupils (not 8!) 6 staff, they are split into 2 groups of 5. 3 staff per 5 children.

He said ds is one of 4 children in the class at the same academic level (he had a copy of ds current academic level from January apparently) there are 3 children that he said are higher functioning than ds and 3 who are working below ds.

He said that from what he’s read about ds from his ehcp and how I’ve described him there are 3 other ds’ in the class. Who on paper look like they are all the same child Grin they put things in their mouth, impulsive, no danger awareness. He said they have some children in the class who can be more trusted and don’t need as much support.

He said they don’t have 1-1 as such but still have a high adult to child ratio but someone will always have there eyes on him he said they are good at that. He also said if ds is having a particularly bad day someone will whisk him away to do some calming 1-1 activities to lessen his anxiety.

He asked me to email a picture of ds over, he said I’ve read so much about him so I want to put all this information to a face so he gave me his email and said to email him the picture and I can email at any point with any concerns or questions.

They have put his start date back by a week (no idea!) and I have to take him as planned on a new date and wait in the car for him for 2 weeks, then it’s half term, then first day back after half term I need to book the transport to start for full time.

He told me loads of info.

One thing I said is, ds often hits other kids, is this an issue? As it’s been a major issue for his mainstream school hence why he’s banned from the classroom and I honestly shit you not he burst out laughing! He said ds will come home and say so and so thumped me today and the next day that same child will go home and say ds thumped him etc.

Not sure how i feel about that tbh. Still don’t want my ds getting hit even if he does it to them. I’d rather ds didn’t do it and nobody did it to him. But oh well!

So yes I feel better now they have phoned me, loads to take in x

OP posts:
Mumofsend · 01/04/2021 17:40

I suspect the lashing out will just be part of the parcel.

Otherwise it all sounds really positive.

dimples76 · 01/04/2021 18:16

That sounds good Danni - also good that you have direct contact details for his teacher.

Had a call from CAMHS earlier and DS has at last been put on the waiting list for ASD assessment. No idea how long the waiting list is though. Not really in a hurry, it would just be useful to have the diagnosis for future school choices.

openupmyeagereyes · 02/04/2021 09:03

That's great news dimples.

danni glad the teacher has been in touch and seems good. The lashing out is due to emotional immaturity and impulsivity isn't it, rather than malice, hopefully they all grow out of it soon enough but at least you don't have to worry about the 'no violence' policy that was stated on the website. As mum says, it sounds really positive otherwise and great that there are other dc at ds' level. It's also great that there are a few above.

We've had a quiet week so far. Ds was dry again this morning so so far so good there. We've got him back on the (slow release) melatonin. It's debatable whether it does anything but it's possible that it helps to get him past 4am rather than before it. We'll see how the next few weeks go.

MrsDuBeke · 05/04/2021 08:28

Good news @dimples76!
Great news on the staying dry @openupmyeagereyes we've had some accidents again when going from room temp to outside temp when the weather got colder the other day so I think that is a sensory thing that sets my DS off.
Great news @danni0509 and good to have direct link to teacher.
Hope everyone is having a good Easter. We had a fab day yesterday but all a bit much for DS excitement wise I think, coupled with the sugar, meant a 9.45pm sleep time! Argh. Still, he loved the egg hunt and the crowns we made, and we went on a bike ride (DS on bike, me and DH running alongside) that was nice.

LightTripper · 06/04/2021 14:40

Glad you had a good Easter overall @MrsDuBeke, hope everyone else did too! Loved seeing my parents though it was cold and I had a bit of an emotional wobble the night before, overreacting to something my OH said. It made me realise how much I've been bottling everything up since the summer just to get through the practicalities of everything. Kids did well though, and DD was much less anxious than she's been some previous times despite not having seen my folks for ages. I think the fact we set straight off walking helped, as it gave her something else to think about and she didn't just have to stand around while grown-ups did chit chat.

The call with the teacher sounds positive overall @danni0509. I see what you mean about the hitting, but hopefully that means they won't overreact and it's not hitting to hurt each other, just in that way that kids sometimes act out until they've learned other ways to manage their emotions. As @openupmyeagereyes and @Mumofsend said, hopefully they'll grow out of it soon enough, and it won't be blown out of proportion in the meantime. Good that the teacher sounds so positive and engaged though, and not intimidated by DS having needed a 1:1 up to now.

Good news on the sleep and dry nights too @openupmyeagereyes, and that you're finally on the list for assessment @dimples76. Do you have any idea how long it is likely to be seen until he gets his assessment now he's on the list?

Weird to think that when DD goes back it will be her last term at her current school. It's been very good for her overall I think, so will be sorry to move on: but of course one of the reasons it's been good is because it's so tiny due to not going up beyond KS1. Really hope she settles in OK to the next school, but have decided there is no point worrying about it. One thing I do need to do though is get her some clothes with waistlines, as she lives in dresses at the moment and the new school uniform is skirt or trousers in the winter. I'm sure there'll be a way around it if she can't manage it, but it would be really good if she can. Anyway, we'll have a look online and I'll see if I can find her a couple of things that she really likes with a waistband so she'll be excited to try them - probably elasticated to start her off.

openupmyeagereyes · 07/04/2021 08:01

Light what’s the school that you’ve gone for like? Are any of the children from her current school moving there? Glad dd coped well with seeing your parents. Also good that you were able to get some emotions out that you’ve been storing, hopefully the weight has eased a bit now.

Ds has been dry every morning so far. I’m sure we’ll have a wobble at some point but so far so good. This has never happened before, previously when we’ve tried it’s sent him wetting again even when he’d been dry previously.

We had a lovely visit to a park with friends we’d not seen since last summer. Ds enjoyed himself so much and he’s really matured too. Grumbled but waited his turn on a couple of pieces of play equipment when a couple of years ago he’d have kicked off and refused to wait.

3 of our last 4 mornings have been 5am-ish starts. I’ll enjoy it while it lasts!