Mamadadawahwah are you still around?

[staryeyed]

whilst going through old posts- information gathering I see that you have tried a lot of biomed stuff. Would love to know how its going for you and what you have tried.

Are you on the biomed UK list (I'm not MMDDWW!) You can join it from the Treating Autism website- it's the best place for UK based biomed info.

No gess Im not I want aware there was one. I will sign up.

#wasnt

Hey, i am still here, not for months though.

Been busy, taking care of my child. Yes still using biomed in a big way.

Our boy has thousands of words now and we are loping along with him.

Im really pleased that you have had good progress. We can talk off the forum if you'd prefer but Id really like to know more if you dint mind sharing.

glad to hear your boy is doing so well with his speech mama.

staryeyed, just ask me what you would like. happy to answer

What do feel has been most successful for your son? Is there anything that hasn't worked? Why did you think your ABA programme wasn't successful? Do you/did you use PECS? Sorry to fire the questions at you but Im really interested. My son is 2.5 ASD and Ive been trying some stuff with him.

Most successful was doing the research first and talking to other parents so i didnt waste time and money.

supplements that worked best for us was MB12 and transfer factor, together with the gf/cf diet and getting rid of all processed foods and additives.

Quit ABA as it wasnt right for our boy (its not for everyone)
No we didnt use pecs, i felt it restricted our child and I was right, now he is talking. I feel had I used pecs they would have been a replacement for talking.
but thats just us, someone else might be different.

do your research, talk to other parents, listen to your gut and dont believe someone just cause they have letters behind their name.

remember most professioals are autism tourists and go home at 5.00pm.

Have done loads of research mmddww but its hard to know whats hype and whats genuine. Are currently doing some biomed but no one much talks about biomed on here.

What improvements did you see with MB12 and what is transfactor?

*transfer factor

Transfer factor, look it up on google, its made by "4Life". Its an immune builder made from cow's colustrum.

MB12 we saw big changes at first but we hadnt prepared our boy properly with the vits and mins to take the added pressure of it so we stopped. We did see language come about quite quickly with it though after first using it.

Started it again about 6 months ago and our boy is doing better on it, constant updating of language and better pronounciation. Its no the be all end all though.

Best thing to do is get a practitioner, one that you can afford (there are plenty in the UK) and get your boy tested with all the basic blood tests/chemistry like liver and kidney panels, immune markers etc.

Learn from other parents on the biomed websites. They are willing to give you info.

There are definitely parents here using biomed but there are also parents who think they know about it, but dont and try to put you off.

If you want to learn about it, keep the company of other parents who are using it. This is not the best forum to learn on. Its quite conservative here, in my opinion and you get the usual sarcastic and ill informed remarks.

Dont let anyone stand in your way. The UK is way behind the U.S. in terms of treating autism but dont let that keep you back.

Get books cheap on Amazon.co.uk. Get Brian Jepson's new book and Dr Kenneth Bock's book and of course the DAN bible "Children with Starving Brains. Your child is unique and you cant do what everyone else is doing because it may not apply to your child. You have to have the whole picture of your child to understand.

Get tests for free on the NHS. You can get a basic picture of your child from these tests. Then take the tests and let someone who knows their stuff help you.

Ideas: Dr Christopher Heard, Breakspear Hospital, Hemel Hempstead

The Autism Clinic in Edinburgh (look up Lorene Amet)

Look up rescue angels on the DAN website. There are a few in the UK.

Phone IWDL labs in the uK and ask them for referrals of persons working with children with ASD. They work with most of them.

P.S. dont get bogged down in trying every little thing on your child. You waste a lot of money that way. NOt everything will be useful for your child despite others saying how wonderful this or that product is.

might be great for their kid and useless for yours.

Autism is inordinately complex and the biomedical aspect of it is equally complex. If your child has medical issues, see a doctor who knows what he is talking about. Be sure that doctor knows about gut dysbiosis, methylation cycles, etc and isnt just talking out of his hat and trying to "blame" your child's illness on autism.

MMDDWW have joined yahoo groups enzmyes and autism for autism and ABMD but they are mostly American on there- so not same products etc.

We currently have a nutritionist and doctor who are not DAN but do a lot of the same things. Although they are more on the conservative side.

Tranfer Factor -is it supposed to be instead of vits and minerals or as well as I did look it up honest but I just keep finding research that says it works but nothing saying in what contest you use it iyswim.

mmddww ~ so what tests did the NHS do? thanks

Transfer factor is used in addition to required supps/diet, chelation, etc.

NHS will do a full blood chemistry, they will check thyroid (though their testing doesnt test TS3 which is most important)

They will even check blood lead levels, if you push them.

Ask for a full blood chemistry. We got organic acids and a vitamin/mineral screen done including iron studies, etc.

They will also do faecal testing though their tests are pretty useless.

The bloods though are the same as what you pay for at a lab. Save a lot ofmoney going through NHS.

Your child, like any child is entitled to a check up and you dont know what is going on until you know about what is doing with the blood/liver/kidneys, immune markers etc.

dont ask, DEMAND

MMDDWW are those tests invasive?

I mean the liver kidney etc

Also did you use TF for kids or the classic one?

dont know what you mean by invasive? A blood test is a blood test, and no way of getting blood out except via needle.

It all starts with determining whether your child has medical problems or not. If you believe he or she does not, then dont do the tests.

No one can convince a parent to investigate their children's health, and its up to you how far you want to take it. YOu can observe your child's behaviours and general presentation and along with your doctor, determine if there is anything untoward.

If you feel there is not, then there is no need to go to the lengths of getting blood tests done.

If your child is constantly ill, has strange viruses, has gut problems, etc, then this may warrant further investigation, whether he has an ASD, anything else, or not.

ASD, for our child has been very invasive. He did not eat for the first two years of his life, had bad excema, rotting teeth, a distended belly, copious amounts of diarrhea coupled with constipation and was generally unwell looking. Something was wrong with him. We realised after much research, this was common with other children who had an ASD.

Totally up the parent how far you want to investigate but for us, we were only interested in helping our boy medically which we thankfully have done. We would have done it whether he had autism or not and a blood test was a small price to pay.

WE have also found out via blood tests that our boy is borderline diabetic, and extremely iron deficient, something we never would have known otherwise.

hope that helps.

MMDDWW, maybe I was letting my imagination run away I thought maybe it might involve more than blood tests.

Sorry, forgot to say we used Transfer Factor Advanced at first. Now we are using Advanced Plus.
check the ingredients, as your child might be allergic (Advanced Plus has mushrooms in it)

MMDDWW where do you get your TF from? is there a reliable UK supplier?

Thanks for all your advice by the way youve been really helpful.

starryed, i dont buy mine in the UK. too bloody expensive. Its over £37.00 a bottle plus postage to buy it here. I have friends in the U.S. who ship it out.

However, I believe you can purchase it on Ebay, 4 bottles for about 120 bucks or thereabouts which is way way cheaper than here.

Make sure you are buying 4life transfer factor and not the other transfer factors out there as they are not authentic. They just call it transfer factor when its not.

Get some books. I just bought the Bryan Jepson book about biomed. get it on amazon cheaply, Its brand new. His daughter is autistic and his wife is the granddaughter of the idiots at Autism Speaks ( i think). They harangued her for using biomed saying it was ineffective, etc etc.
Anyway, its a really really good book, tells you everything you need to know. That book together with the biomed bible "Children with starving brains" by jacqelyn McCandless should set you right.

Join some lists as well. I learned so much from parents cause doctors dont know diddly. You probably figured this out already.

MDW - a quick question if you don't mind - I notice that your boy's speech has come on really well, and just wondered what you felt had helped that - whether it was any particular intervention, or work you had done with?

I can't put my finger on one thing. Biomedical approaches, coupled with ABA and my own work with him and my own reserch have all added up. Too, he is maturing. He has been in the world for longer now, has picked things up and processed them. His brain i think works better now. Before he was in a complete "fog". He couldnt learn. His guts were all messed up and I am quite sure he was in pain (still is with his tummy)
Try learning with a severe toothache. I think that is what it was like for him.

How did we know? - our boy had a constant distended stomach. He was covered in raw excema, he wouldnt eat, he constantly had viruses. He was so hyper that he couldnt sit still for more than a second. How can one learn when all that is going on.

for every thing, there is a reason. If you think about hyperactivity, and where it comes from, well it must come from inside. Its not like he was that way on purpose. We have cleared that up somewhat by addressing some of his nutritional needs.

We still have a long way to go as its a process. But the process has to start somewhere. Thats why i say to parents, read all you can and talk to other parents. Get a practitioner, get some tests done to see what is going on inside your child.

To look at me, you wouldnt know i have a number of auto immune diseases. I look perfectly healthy. You should see me in the morning, though trying to get out bed with terribly stiff joints. I feel like I am 70 years old half the time.

A simple blood test will show that i have these auto immune diseases.

I address them with good diet and supplements.

Many of our children cannot speak but their behaviour and presentation is screaming at us telling us that they need help.

It doesnt take a big leap of faith to understand that children can be ill, that their "difficulties" can be accompanied by illness.

But of course, because the system thinks our children are just a drain on society, they dont care and they wont spend money.

whether its speech therapy or whether its heavy metal toxicity.

funny, Blair coughed up 20billion to enter into this ridiculous war. Yet, i have to pay private to get a simple £30.00 blood test done for a young child who has a great future ahead of him.

go figure.