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Original poster

DD is in hospital :(

31 replies

vicimelly · 25/07/2004 22:14

Yesterday DD got very very bad pains with constipation she's been suffering with for a week, I'd been giving her all the normal medication she normally has (she suffers a lot due to her condition) But she took a really bad turn for the worse, it was terrifying how quickly it happened, one minute she had a few niggly pains, next she was screaming in agony and writhing about, vomiting continuously and was becoming confused and disorientated
I rushed her straight into hospital where they found that she is very seriously constipated, she is completely blocked solid, and it is all compacted and rock hard, it must have been building up for a very long time! The reason she was so poorly is because she was very dehydrated because of it.
They have put her on a drip to rehydrate her, but the Dr has said that instead of taking her to surgery and "clearing" her out, he is going to just continue the medication I was giving her at home and see how she goes!! I told him over and over again, that she has had the max doses from me for a week now, not to mention this has obvioulsy been building for a while during which time I can garantee she has had this medication for extended periods of time too, and that it ISN'T WORKING!!!!! All falling on deaf ears, I am so angry and don't know what to do, they want to leave DD for at least three days and give her a chance to clear herself poor baby is in so much pain, for which all they are giving her is calpol! It's killing me to see her go through this, knowing that they can do something about it and won't
I can understand the Dr wants to leave a general anaesthetic as a last resort, but as far as I can see, it had come to that when I had to rush her in there!
I am so stressed an worried and sad for DD, she's with her daddy tonight, I was ordered home to rest! I think he realised I was probably a risk to the Dr's health! lol
Sorry for long rant, but am so wound up and scared for my baby

OP posts:
misdee · 25/07/2004 22:16

oh dear, why wont they listen to the mothers??!!

hope u and dd feel better soon. let us know how she is in the morning.

Flip · 25/07/2004 22:20

Sorry you're going through this. It's awful seeing your children in hospital. I hope your dd feels better soon and that the doctors start to listen to you.

littlemissbossy · 25/07/2004 22:21

calpol, is that all?? oh your poor dd and you. However, I'm sure they know what they're doing, they'll have dealt with this so many times before and it's always best to try an alterative to rushing into something that involves a general A. I'm sure she'll be on the mend soon and, however cheesy this may sound, she is in the right place. Let us know how she gets on lmbx

Chandra · 25/07/2004 22:34

Well, it seems very much we are in the Calpol era when doctors wait for weeks or for the thing to be REALLY bad before doing something> DS has suffered a lot for many things that could have been easily stoped at the beggining but instead was left to suffer until the problems were unbearable...however, I can only recommend you to get a little notebook and write every single detail about what is going on (times she had the medicine, times she is pooing, how much she cried, how was the poo, etc.) as this could be a very good tool to convince your doctor that something must be done or for him to explain you why he thinks is best to wait.

Original poster
vicimelly · 25/07/2004 22:34

I know she is in the right place, but I really don't trust the Dr on this at all, I have had to fight Dr's since she was born, as none of them know nor understand anything about her condition, especially from the constipation side of things, the Dr we saw in A+E told us that given the extent of her constipation and how often she suffers, we should have been told that DD needs a daily enema, as this was blatantly obvious to him. Her bowel surgeon who she sees to manage the problems she has, has never even mentioned this to us, never considered it, as he too does not listen to me when I try to explain how it is.
I know how she works! but no-one is listening to me, the Dr actually said to me when I tried to explain, "I'm sure it's not as bad as that" Oh no of course I'm lying to you!!! AARRRGGHH!!
Can you tell I'm angry! lol

OP posts:
Davros · 25/07/2004 22:35

I'm sure you're right VM but maybe the rehydration will help? Maybe if you go back in there'll be someone else there, another Dr, who will listen to you. Sorry to hear about this, horrible for you all. However, can't agree that they necessarily know what they're doing (not saying they don't either) ... they might but no mum can leave it to chance and I'm sure you'll get back in and sort it out.

sobernow · 25/07/2004 22:41

This reply has been deleted

Message withdrawn at poster's request.

eidsvold · 26/07/2004 03:44

sorry to read this.... hope things start getting better.... you might be lucky to get a different doc on rounds tomorrow ( your time) that will listen to you...

Thomcat · 26/07/2004 09:43

God how scary and awful for you. So sorry that the doctors won't listen either. Hope she's right as rain in no time.

Hulababy · 26/07/2004 09:45

(((hugs))) I hope your DD is oklay and home soon.

Twiglett · 26/07/2004 09:53

message withdrawn

Jimjams · 26/07/2004 10:01

Bloody doctors. My friend has the same thing with her dd (with SN) she is gaining weight at a ridiculous rate despite eating half the recommended calories per day. The doctors keep telling her that she must be stealing food (she isn't capable of stealing food). Friend wants a blood test to check hormone levels at least. Drs won't do it. And this is the girl whose (new) peadiatrician has just informed her that she has been brain damaged because no-one bothered trying to control her seizures properly.

Get in there and keep at them. I also agree that you might have better luck with a different doctor. So keep on at every one you see. Tell them that if anything happens to her you will be holding that particular doctor personally responsible. Sometimes that gives them the rocket up the arse that they need.

gscrym · 26/07/2004 10:08

Hope she's home soon. Please look after yourself and hope that someone soon will listen to you.

Blu · 26/07/2004 11:25

Oh Vicimelly, poor you and poor DD. How are things today?

sobernow · 26/07/2004 15:08

This reply has been deleted

Message withdrawn at poster's request.

Davros · 26/07/2004 21:49

opened this thread hoping for some news

misdee · 26/07/2004 21:49

no news yet then

Jimjams · 26/07/2004 22:27

I was hoping for some as well

Chandra · 26/07/2004 22:31

Me too, probably she is spending the night with her DD at hospital?

coppertop · 26/07/2004 22:34

Hope you get some good news soon, vicimelly. xxx

Original poster
vicimelly · 27/07/2004 16:05

Hi everyone, thanks for all the replies, I have been at the hospital with DD so havn't been able to get on, am just home for a quick bath and change of clothes!
DD is doing a lot better, still not all the way there but definitely improving. I did get to see a different Dr, I demanded to see someone who specialised in bowels. We got to see a bowel surgeon, who was mortified at how DD was being treated, he changed the medication she was on to something much stronger as well as giving her enemas twice daily, and to my relief stronger pain killers!!
So she is doing much better and is much happier in herself now
I better get back to it anyway, gotta get back there.
Thanks again for thinking of us xxx

OP posts:
Thomcat · 27/07/2004 16:10

Oh thank god. Thanks for checking in, what a relief to see your name come up with soem news and good news. Bless her. Wish her a full speedy recovery. Love TC xx

Blu · 27/07/2004 16:22

WELL DONE vicimelly. Hope she's well and back home soon.

bundle · 27/07/2004 16:23

glad she's on the mend.

mckenzie · 27/07/2004 17:32

great news vicimelly.
Thanks for updating us.