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Original poster

DS3's Visit to paediatrician today- potential DX given

31 replies

PeachyClair · 22/01/2007 14:52

We're rather in as the Paed thinks DS3 has ASD and SLI. So the child we thought was NT six months ago clearly isn't, some form of regressive ASD.

So very that within 6 months we've had two children dx'd as on the spectrum.

Harry may get the extra year at nursery with support from a learning assistant 1 - 1, after that he'll go to special school- there's an ASD unit in newport he can access.

Does anyone know about the earlybird course? paed is wanting us to go on it.

And we are going to sort out Pecs.

And make a complaint about teh HV who refused to hear our concerns re language at 18 months old (he's 3.5 now) saying it was tooearly, not to worry until 3.

both feeling very, very delicate and now.

OP posts:
Socci · 22/01/2007 14:54

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Original poster
PeachyClair · 22/01/2007 15:49

Bump so everyone knows

OP posts:
SoupDragon · 22/01/2007 15:58

Oh bum, sorry to hear this

coppertop · 22/01/2007 16:05

Peachy

I couldn't do Earlybird in the end as there was no childcare available but I've only ever heard good things about it. It's worth doing it if you can.

about the useless HV.

MegaLegs · 22/01/2007 16:12

Sorry to hear that Peachy.

FioFio · 22/01/2007 16:16

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QueenEagle · 22/01/2007 16:17

Peachy, I can understand your shock as my ds3 has recently been seen by a paed and she thinks he has asd. It's a to hear it but also don't you feel a slight relief that it is recognised and he will get the help he needs?

about the HV.

Ladymuck · 22/01/2007 16:19

So sorry to hear this.

Original poster
PeachyClair · 22/01/2007 16:21

QE I did with ds1, but DS3 regressed relatively recently so we hadn't really ahd time to get sued- he was seen as an emergency case.

SLI- specific (?) Langauage impairment, ie can't talk very well.

OP posts:
jenk1 · 22/01/2007 16:22

sorry about this peachy
Our lives are sooooo parallel arent they?

both of us having 2 children dx,d with ASD withing a matter of months and both our eldest DS,s so alike, we will have to arrange a meeting!!!!

Im with Fio, though what is SLI

maddiemostmerry · 22/01/2007 16:23

I have been on earlybird. I think maybe you will already know a lot of the info, however, it is a great way to meet people in local area who are going though the same experiences. All the children in our group were functioning at a similar level whcih meant we went through statementing etc together. I am in touch with three of my group over four years down the road.

PinkTulips · 22/01/2007 16:24

so sorry peachy

i know it's no real consolation but hopefully now you have a dx you'll be able to move forward with deaing with his conditions. not that thet helps much now

misdee · 22/01/2007 16:28

oh peachy. i didnt know until recently that you had concerns about ds3. so sorry to hear your concerns have been confirmed. feel as delicate as you want, you need time to absorb this news.

QueenEagle · 22/01/2007 16:31

Ah, I see peachyclair. Sorry to hear this. I too was wondering what SLI was.

Don't mean to sound insensitive, but how severe does it seem your ds3 is? Like you, we thought ds3 was (NT - what does that stand for btw?) until last summer and everything seems to have happened soooo quickly since then - it has hit us hard too.

ps I'm starting to use these boards more and more even though I still feel a bit of an imposter somehow. ds3 recently was provisionally dx'd with asd and he too has a language disorder. My SALT is pushing for a statement for when he starts school in April.

misdee · 22/01/2007 16:32

nt=neurologically typical. ie normal (haha, none of my kdis are normal )

FioFio · 22/01/2007 16:44

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Aloha · 22/01/2007 16:45

Sorry about that. It's a horrible shock, isn't it.

macwoozy · 22/01/2007 16:50

Oh I'm sorry to hear this peachy

Like coppertop, I too was offered the Earlybird course but couldn't arrange childcare. My ds's SALT really praised it up though, so it might well be worth you checking it out.

mummy2aaron · 22/01/2007 16:59

Peachy I am so sorry to hear this it is one thing having suspicions but it's like a physical blow when it is confirmed. If there is anything at all I can do let me know.

Original poster
PeachyClair · 22/01/2007 17:01

QE ds1 is HFA, DS3 is I think quite severe- he does cuddle and imitate, but she said that he may never speak properly.

OP posts:
isgrassgreener · 22/01/2007 18:41

Peachyclair I haven't really spoken to you before, but I'm so sorry to hear your news.

Kittypickle · 22/01/2007 18:51

Peachyclair, I am sorry to hear this

2mum · 22/01/2007 18:56

Hi Peachclair so sorry to hear this I also have 2 kids with sn its very hard and also hard to take in that you have not one but 2 children with sn. My ds2 has low functioning autism, hes not much older than your ds3 and is non verbal and has all the classic signs of autism. I thought it was bad my ds1 and ds2 were diagnosed just over a year apart but 6 months is an awfully short time to deal with the shock. I could have fell aprt this last year if it wasnt for the support of my family.

Original poster
PeachyClair · 22/01/2007 19:17

I am lucky that ds2 is NT, I must remember that

OP posts:
jenk1 · 22/01/2007 20:14

peachy dd sounds like your ds, she cuddles and imitates but most of her language is repetitive speech, we have been given a provisional dx of ASD but are waiting to see the specialist next month, i dont know if she,ll confirm it though.

Is DS3 dx ASD and not HFA same as DS1?