JJ...just wanted to say that i am totally with you when you said about the people who say its wrong that your son gets help...whch they say is pointless...cos he won't ever be independant.
that makes me so angry....and i'm speaking as you know...as mum to kids like hers...that are seen as not needing the help and support that we know they need....
but...where i differ...very strongly... is that whilst i wish desparately that my boys got more help...i certainly don't think other kids shouldn't get the support...or that its wasted!!!
i ofetn think of your son...when mine are screaming and arguing ...and driving me nuts. ds1's abusive abrupt manner really upsets me...and i am embarressed frequently by him outside the home....BUT.... i know from so many posts you write...that whereas "anyone" could understand my boys...(if only they'd bother to listen as they do tend to 'lose' people in their indepth monologues!)....whereas your son cannot .
i am desparate not to offend you with this...i am basing this on my own experience of the NV autistic kids i meet...who use PECS etc to cmmunicate....and how few people even try to understand them!!
one lad at the club they go to only speaks as 'charlie' from charlie and lola...and lives every day as an episode of the show....his mum says if they go shopping....he stays 'in character'...and the only way she can communicate with him is to 'join him'...and then he speaks....but none of her friends/family are interested. my ds2 was a bit like his at 3 or 4yrs...so if he ran off down the road...he would only respond to my shouting 'stop!'...if i shouted "Stop! Percy/Gordon/Thomas" or whatever train he was 'being' that day!!!
And...no suprises when i tell you that noone else 'entertained' this method!!!