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Here are some suggested organisations that offer expert advice on special needs.

Time for another

73 replies

coppertop · 15/11/2006 10:28

With lots of new posters joining the SN board I thought it might help if we all introduce ourselves. I keep forgetting who's who too. (Try saying that after a few drinks! )

I'll start:

I have 3 children. My 2 boys are aged 6yrs and 3yrs and both have a diagnosis of high-functioning autism. Dd is 8mths old (or "isn't a number yet" as ds1 says ) and so far seems very NT.

If you leave me here in the Unanswered Threads section I shall plague you all with Davros' favourite poetry.

OP posts:
FioFio · 16/11/2006 20:12

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reiver · 16/11/2006 20:28

Evenin' all! Reiver here. My DD is 8. She has a condition which has restricted her growth and development, but she's a wee poppet and great fun. I was a teacher in a former life, now a (very ancient) SAHM .....& taxi service!

bubble78 · 16/11/2006 20:33

hi i have one ds aged 3 1/2 he has asd and we just found out im pregnant with our second child due july 2007

aaronsmummy · 16/11/2006 20:43

Hiya, I have ds1 age 7 who is nt - ds2 age 3.9 with speech and communication delay, autism and suspected adhd and behaviour problems - dd who is 17 months and already suspected speech and communication delays. I am a sahm, very frazzled as ds2 and dd don't sleep. Can I also put in that dh had has a dx (done by me) of being an arse lol. I am a golf widow! I am in the North West and won't tell you may age as I can't quite come to terms with how old I am. Last week I was singing along to Duran Duran and Wham and wearing a rara skirt.

Glad you did this ct as I get muddled and so now i can keep referring back to this.

cleo1 · 16/11/2006 21:58

Hi,

i don't usually post,any way i have DS1 NT, 10 years,DD2 is 8,severely autistic and non verbal, will be attending residential school weekly from next spring.
DS 3,22 months seems okay so far. Have been on a

long maternity break but hope to go return to work next year.

Bethron · 17/11/2006 08:07

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redbullandbump · 17/11/2006 08:18

im redbull live in brum
we have ds who is 5 1/2 and has ASD, we are expecting our second in may and im really pooly today and want lots of sympahey

gracej · 17/11/2006 14:09

I have posted from time to time, but I have never really introduced myself (how rude!).
I am 33 years old, happily married for 4 years.
DS is 22 months, delayed in all areas due to a brain atrophy. At 12 months we had to travel to the other side of the world to get a diagnosis and help.
He is wonderful, DH and I adore him to bits.
I am now expecting our second baby, due in february.
I stopped working when DS was born, I feel he really needs me now and spend all my time with him. But hopefully I will return to work one day!!!

Joggeroo · 17/11/2006 14:24

I post now and again, rediscovered this site recently and like the busy SN board as parents of shildren with all sorts of SN use it.

I have a DS who's 4 with global developmental delay, DD ages 2 and a 5 month old. Ds started reception at special school in Sept and loves it. The rest of us miss him when he's there and really notice it when he's home!

Mitchell81 · 17/11/2006 15:17

I too feel like I know alot of you from reading your posts, But I don't write that often.
I am 25, married to DH for 6 and 1/2 years and a SAHM.
DD who's 6 has an unknown genetict syndrome, born with dislocated hips, knees and elbows, cleft palate. Has had sugery to correct some of her dislocations. She is unable to move her legs so is a wheelchair user. She has complex partial seizures (epilepsy). Currently not yet talking, but we hope one day she will be able to communicate if not with speech then maybe switches or something. Attends Special needs base attached to a Mainstream school, where she gets the benefit of both worlds. She is a happy little angel. We also have a DS who is 5 months old yesterday, now things get hard with spreading my time between the two. We are very grateful that DS is perfectly healthy, we had 1 in 4 chance of our next child being born with the same condition.

onlyjoking9329 · 18/11/2006 22:58

Hi nice to see some new people, i am 41 married and we have twin girls 12 both have autism and attend a SN school and DS 9 who also has autism he is currently in mainstream but will move to his sisters school for comp. my hubby is deffo on the spectrum which makes life interesting.
i used to work but was pensioned off with a couple of slipped discs, i spend a lot of time supporting families with SN children, i do a couple of days at DD school and am a parent gov.

Anoah · 19/11/2006 13:20

I've been hanging around here quite a bit but I will introduce myself.

I have three DC.

DS is 6 and has aspergers and semantic-pragmatic language disorder. He is in mainstream school and his having an incredibly hard time. I cannot get him statemented (I am trying) school and other childrens' parents want him out. Sob.

DD is now 4 and has had ear/hearing problems and is speech delayed as a result. She seems to be neurotypical, just a bit quirky and they expect her pronounciation problems to resolve.

DS age 19 months seems totally neurotypical and has great social skills. He is talking in sentences and we have no worries yet. Thank god.

I'm a staff nurse on a medical ward. I work 15 hour days twice a week and it is incredibly stressful. But working all those hours over only 2 days a week keeps childcare costs down. I do in two days what some people do over 5.

mum2seb · 19/11/2006 14:14

Hi, I'm 33, and an ex-teacher (secondary languages), and now a SAHM to Sebastian, 29 months. He has a low lesion Sina Bifida, and started walking the day before his 2nd birthday (we were told he wouldn't when I was pregnant with him!). He'll have continence issues, and walks a bit funny, but he's my boy, and wouldn't have him any other way - although it'd be nice to change a nappy without a fight! I'm expecting ds2 in January (I hope - Seb was 7 weeks early, so I'm keeping my legs crossed!). All tests seem to show that this little man is ok.

mum2seb · 19/11/2006 14:15

Oops, that should read Spina Bifida - pregnant brain not functioning properly again!

saintmaybe · 20/11/2006 10:39

Thanks, headlessgirl. Had a computer-free weekend so just saw your message. DS1 is feeling angry, life's unfair, that we let his brother get away with everything but expect a huge amount of him. He doesn't get to do a lot of things his friends do because it's hard to find anyone to look after ds2 and impossible to include him in lots of 'normal' activities. All of which is true and makes me feel even guiltier than ....before! Ds1 is showing behaviour that seems bordering on slightly disturbed; scratching his face till it bleeds under his fringe, and other stuff. Ds2 also having hard time. It's all a bit tough just now, though I know it'll pass. Lovely to 'meet' everyone.

expatinscotland · 20/11/2006 10:52

I have two children.

My daughters are 3.4 years old and 11 months.

My elder daughter has gross motor skills and learning delays first noted at her 8-month check up.

She didn't walk till 22 months and shows no interest in toilet training.

No known cause as of yet. Chromosomal abnormalities have been ruled out, so it's back to the paed w/us on Thursday to start the rollercoaster ride.

From hell.

She is in mainstream nursery and socially fine - imaginative play, empathy, plays well w/others, speaks reasonably well.

Younger daughter appears NT - already standing and has three clearly discernible words.

wads · 20/11/2006 12:02

hi all, I'm a very occasional poster, 37 & live in Portugal with DS 6yo,no DX but prob HFA along with severe language delay, sensory probs & fine motor skill delay. He's in MS school as no SN schools here to speak of with a support 1 hour a day. Also have NT DD1 2yo who is a little madam & much harder work than DS ever was & 6 week DD2 who I'm watching like a paranoid hawk, & stressing myself that she's not really smiling yet so is already missing milestones!! That could be a whole other thread - paranoia about other kids when you already have a SN one

Blu · 20/11/2006 12:49

hello and welcome new people!
My DS, 5, has 'leg issues'. In one leg he has no fibula, he was born with talipes, and his leg is 5cm shorter than the other. He is also missing a 'ray' from his foot.

He had surgery spanning his first birthday to enable him to put his foot flat to the floor and be able to learn to walk, and is currently managing (very well) with splints and a shoe raise. In a couple of years we will start the very gruelling bone-lengthening process.

sharonkitten · 20/11/2006 14:14

Hi - i am Sharon, frequent lurker, infrequent poster

I am mum to Caspar (4.5yrs) and Constanze (will be 2 on New years day, known as tanzie, she has Down syndrome)

Sharon x

flyingmum · 20/11/2006 18:32

Hello
I'm Mum to two hugbugs and we live in surrey. The eldest chap is 11 and has a complex set of difficulties ranging from severe dyspraxia, aspergers, dyslexia, auditory and visual processing. The usual stuff, drives me potty but is also incredibly nice. We have just battled to get him into a special school. Second hugbug is 6 and is just a regular boy, although he can be a bit of a pickle!

Woooozle100 · 21/11/2006 17:34

Hello. I'm a fairly new poster. 30 yo living in brum. DD is 18 months and has rare chromo disorder (5p- / 14q+). She has GDD, hypotonia, GERD, urinary reflux, and probs with one eye.

Am quite rabid for another child (lol - was attracted to this thread all psyched up for this conversation!) V complicated tho cos I have balanced translocation (which caused my dd's probs - she has unbalanced translocation) 50/50 chance of happening again (though only small chance of live birth - mostly MC)

fubsy · 22/11/2006 00:04

Bit of a lurker - not a parent to SN child but am a physio and dont mind if anyone wants to pick my brains (whats left of them) on CP, dyspraxia, why the nhs is shit etc. (oh no, now I can never reveal my true identity....)

TeeCee · 22/11/2006 10:31

Hi I'm TeeCee, formerly Thomcat.
I have 2 daughters, Lottie who is 5 in Dec and Eve who will be one 2 days after Lottie's b.day

Lottie has Down's syndrome. She's not yet walking but just very recently has started taking unaided steps. In between a few unaided steps she uses a walking frame or bum shuffles.

She is also long-sighted so needs glasses but doesn't actually wear them. I figure worry about the walking then focus on the glasses.

She has chronic constipation and goes about once a week if she's lucky. She isn't toilet trained yet but agin I fugure once she's walking, we'll worry about it again in the summer.

For a little girl with a limited vocabulary she doesn't stop talking!

She attends mainstream school where she is apparently the most popular girl in the year, and especially popular with the boys!

She's fun, fiesty, naughty, strong willed, stubborn, and wonderful.

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