Gosh, this has been a very interesting thread to read. I've been following from the start, but have not had time until now to post.
Yes, I would very much like to be involved in anything that comes out of this (Kojacks, I'll PM you shortly).
IMO, the whole education system is flawed, but particularly the SEN system. In my LA, the education budget last year was 20% less than it was in 2008! Not just the SEN budget, the entire amount allocated to schools. So I can only imagine how tightly the education budget has been squeezed 
I fully realise that budgets are at the heart of many of the perceived problems with the current SEND system, and this is where the issue lies. Teachers, SENCO's and Schools are at the mercy of their budget, which is negotiated through the LA - and their education budgets, which in turn is negotiated from central government.
BUT, the law trumps all. The legal duties related to the Children and Families act came into force in September last year, which promised to "reform the way support is provided for children and young people with special educational needs and disabilities." As Ed Timpson pointed out in his letter to Lead Members, Chief Executives and Directors of Children's Services: "The Act places the views, wishes and aspirations of children, parents and young people at the heart of the system and requires a culture change in the ways in which professionals work with families and with each other."
Note my emphasis on "culture change": this is the key thing. Parents need more awareness; LA's should (and hopefully will) be held accountable, more so if parents are aware of the law. If more training and larger budgets are required for LAs to meet the requirements set out in law, central government need to know and develop strategies to manage this.
Oh, I could go on about this all day, but I don't want this to turn into an essay...
In addition to the other (possibly interested) organisations mentioned on this thread, I'd also like to point out SEN Jungle, in particular this post: www.specialneedsjungle.com/parents-must-advocate-for-each-other-to-make-the-new-send-system-work/ It makes for very interesting readiong (as do many other posts on the site) and reminded me very much of the intent behind this thread - that we need to work together in order to make change happen.