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Original poster

Could EyeQ be affecting dd's behaviour (for the worse!!!)??/

44 replies

KPB · 27/04/2004 17:35

I posted recently about giving my dd aged 4.8 months, who is hyperactive and has language difficulties, EyeQ. Have noticed that her behaviour has got quite bad recently. Very hyper and hard to talk too, just won't listen. Had a really bad experience in a shoe shop today (my idea of a nightmare) running around and not letting the lady check the shoes, it really wasn't a pleasant experience. Anyway I have tried EyeQ before and found that it affected her behaviour negatively and stopped. Out of desperation wanted to try it again and again at about the 3-4 week mark her hyperactivity is really bad. Is this the storm before the calm and can this be linked to the EyeQ? I def. think it is. Any advice gratefully received. Shall I stop giving it, can some children react - I am desperate!

OP posts:

Jimjams · 27/04/2004 18:25

I have heard this about Eye-Q from others. Try changing brands. Efalex is an easy to get hold of alternative, or there are others available. Some from the States for example. I may have some you can try if you get stuck. Contact me off list if you want.

I wouldn't go for the cheapo supermarket stuff as it won't be mercury purified.

Original poster

KPB · 27/04/2004 20:28

Thanks Jimjams I'll give Efalex a try. Do you think dd may actually be allergic to something in EyeQ as you have heard of this before? Thanks

OP posts:

Jimjams · 28/04/2004 10:56

probably not an allergy- maybe a sensitivty. Do you have the list of ingredients there?

Bogwoppit · 28/04/2004 11:01

funny you should mention this. I was wondering about my ds. he's been on eye-Q for about 10 weeks now. the last month or so has been a nightmare - tantrums all over etc etc.

now I don't know if it's just coincidence or not, but since you mention this I have my doubts.

hmmmmm

Chocol8 · 28/04/2004 11:07

There is a post further down the list called "Eye Q - Does it work?"

Just a warning: my ds (6 - ADHD/Asperger's) has been taking Eye Q as a supplement for about 4 months now (it costs a fortune). I took him off it when I could not find any in the shops and his behaviour deteriorated that it ended up with me being virtually beaten up.

I spoke to the Managing Director of Equasen who make Eye Q and he assured me this was quite normal, not because he was addicted to it, but he suffered without it as it is not made naturally by our bodies and has to be a supplement.

There is another supplement which is similar called Eskimo Kids which has a higher rate of EPA etc, but as far as I know, it only comes in liquid form, not capsules.

Good luck KPB - my son's behaviour has not been any better or worse since, but I think it keeps him a little calmer, so is worth it...but please do not take your dd off it suddenly!

binkie · 28/04/2004 11:26

Adding my tuppence: I started giving it to ds before Xmas to see if it would help him be less giddy and silly at school and I thought only fair to dose myself too. Any effect on him has been pretty subtle - didn't take it over the Easter holidays and I don't think I've noticed much difference (which supports what other people have said about the effect being proportionate to how extreme the problems are). Haven't noticed any bad reaction though.

Anyway: effect on me: amazing difference in eyesight - can use computer without specs/headaches & as to peripheral vision - kept getting frights at first because could see things at edge of vision that never had before. But on the downside I am SURE it makes me more anxious - maybe something to do with increasing concentration span - so that feelings/ideas (both good and unpleasant ones) sort of persist for longer?

Davros · 28/04/2004 11:47

I've heard of it sending a child bonkers! I think he was on some other medication too though and it might have been a reaction. He never got back to how he was before I've used Efalex before (no difference) with no problems but I'm a bit scared of EyeQ....

Original poster

KPB · 28/04/2004 12:29

I feel so down because her behaviour is really bad. She just seems extremely hyper and the same thing happened before. When I took her off it she improved. Thought I was imagining it and as I had read so many good things about it felt I should give it another try. Again same scenario. She has also had to have antibiotic cream where her eczema flared up so much
Jimjams the ingredients are:
Hi-EPA Fish Oil, Virgin Evening Primrose Oil, Sunfloer Oil, Flavourings - Natural Lemon and Lime Oil, Natural Vitamin E

OP posts:

gloworm · 28/04/2004 12:42

kpb
i own a small health shop so maybe i can help. we dont stock eyeQ (seems v. expensive and i think you are paying more for brand name, many other brands are cheaper AND better quality)

i can definatly reccommend Eskimo oil. we sell loads of it and `take it ourselves and give it to our ds. they do liquid, capsules and kids liquid. no sugar, no addititives, nothing artifical etc.
have many customers using it for add, adhd and dyslexia, after almost have not heard of any side effects or problems.

hope this helps

Original poster

KPB · 28/04/2004 12:51

Thanks a lot for that Gloworm. I am def. taking her off of the EyeQ as I know that this is causing her current problems. It's as if it is aggrevating her? Can I buy the Eskimo Oil from most Health Food shops??? Thanks KPB

OP posts:

gloworm · 28/04/2004 12:55

can get in any good health shop.
if they dont stock it they would propably order one in for you

Original poster

KPB · 28/04/2004 16:38

Do you think I shoould just stop the EyeQ now, like today? Thanks

OP posts:

Chocol8 · 01/05/2004 22:30

I would emplore you to not just stop the Eye Q KPB, for the reasons I mentioned below - the problems seems to be a recognised side effect.

Could you either reduce the Eye Q until you get something like Eskimo oil?

Some health authorities do prescribe fish oil supplements - mine won't, but I have written to my ds' consultant to ask if he can help me get it prescribed.

Interesting what Binkie said though! Wow! Was gonna take them myself, but the capsules are gelatine and not good for veggies.

Good luck. x

gloworm · 02/05/2004 16:28

cholol8-eskimo oil also comes in liquid form, so suitable for veggies. (Has lemon oil added so doesnt taste too bad )

charliecat · 02/05/2004 16:46

Is Eskimo Oil the same sort of stuff but just different name Gloworm?

Chocol8 · 02/05/2004 20:25

Thanks Gloworm - I am just not good at taking medicine - besides which, it is an animal (it's got a face), so not keen....however, my memory is shot and I am not getting any younger, so may have to reconsider!

My ds and I really had such a bad time when he came off Eye Q suddenly, and didn't want anyone else to suffer the same way...quite easily one of the worst days of my life.

gloworm · 03/05/2004 08:20

Eskimo oil is fish oil(omega 3). is similar to eyeQ but has a different ratio of EPA/DHA (the "good" part). It is a more pure version, its comes from artic seas (hence eskimo name!) and so fish are not polluted as they are in many other seas. Kids version also contains evening primrose oil(omega 6) as well as fish oil.

chocol8 sorry about that silly suggestion, am also a veggie so dont know why I suggested it!
If you are interested you could try Optima Health Oil Blend, comes in liqiud, is blend of flax and evening primrose oil (flax is similar to fish oil but is a plant ) or you could just try flax (also called linseed) on its owm.

RexandBen · 03/05/2004 08:33

DS1 has been on EyeQ for a couple of months and we noticed massive changes in his behaviour and speech.

however we went on holiday last week and because of the change in routine we forgot to give i to him for 3 or 4 days. He was HORRENDOUS!!! Absolute nightmare - started improving when we put him back on it but completely ruined our break

Chocol8 · 03/05/2004 09:45

Thanks for that info Gloworm, a trip to Holland & Barratt's feels imminent...seeing as they have a good sale on at the mo.

RexandBen, I totally know where you are coming from and this is why I posted about my experience of ds coming off them quickly (previous thread). I now feel stuck in a catch 22 because they are expensive (£16 a month, as still on 4 a day) but I can't NOT give them to him. I will try him on the Eskimo Oil as Gloworm suggests. I have not received a reply from the consultant as to whether he can prescribe them or not...but will let you know if he does.

gloworm · 03/05/2004 11:45

ZolaPola-this is thread you might be interested in

Original poster

KPB · 04/05/2004 09:38

I have taken dd off of EyeQ and all other oils and have def. noticed an almost immediate change in her behaviour. My dd seems a lot calmer so may try the Eskimo oil. I truly think that she is allergic to an ingredient in EyeQ and Efalex!!! Would love to find one that works though as dd has such poor concentration skills!!!

OP posts:

Jimjams · 05/05/2004 17:45

spoke to ds1's nutritionist today. He is doing quite a bit with oils at the moment- and is introducing a new oil. He said that if he got worse to stop and ring him- apparently the ratio of omega 3 : omega 6 can affect behaviour. Most people have too much omega 6 (so the oils arew high in 3's) but often this isn't the case for autistics and they need more omega 6 (I may have remembered that incorrectly). Anyway point being that different brands have different ratios of omega 3: omega 6 so it may well be owrth you trying different brands.

I have a brand you may like to try if you have no luck with the eskimo oil- contact me off list if you are interested. I should be able to send you some samples to see how you go with it (assuming you saw a deterioration quickly that is?)

Original poster

KPB · 05/05/2004 19:14

Thanks Jimjams for the information it was really useful!!! I will def. take you up on the offer if the Eskimo oil fails. Must go into High Street and buy some tomorrow. How long shall I wait this time? Am slightly concerned that maybe I shouldn't have come off of them as abruptly as I did as dd didn't have a very good day at school today. Apparently her attention was bad (ie wasn't sitting down, concentrating) and was calling out in class which she hasn't done for a while apparently. her teacher was fine about it and just said like most people we all have good and bad days. I just feel that I need to do something and hopefully the fish oil may help. My dd loves sardines and makeral but I am not sure that this is enough.
With regards to the Eskimo oil are there different types and dosages? Is it the same as EyeQ in the fact that you have to build it up???

OP posts:

Jimjams · 05/05/2004 20:23

I don't know much about eskimo oil sorry- but usually you do build up. With introducing this extra oil ds1's nutritionist said to start him on one tsp, then go to 2 then 3 over the course of about 3 weeks. I think we eventually end up on tablespoons!

gloworm · 06/05/2004 10:50

kpb, i will be at work in afternoon and will look up info u want on eskimo. will post again tonight

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