To think it is ridiculous there is no help for us

[Edenviolet]

All four dcs have disabilities/other health problems.

All four receive dla, 2 receive higher rates for both components.

Recently had a CAF referral done, initially we were told we would get 3 hours respite a week, then the sw manager said no we didn't qualify for that scheme.
We were told the early intervention team couldn't help us and we we referred to children with disabilities team.

CWD team said no, they would not take on our case as none of dcs have learning difficulties.

Sw then referred to the children in need team, they said they would not take the case on as dcs have lifelong conditions and they only deal with short term conditions whereas CWD deal with long term (but only if there's a recognised learning problem as well).

Sw is closing our case, thes nothing she can do and no help she can offer.

I can't believe we are stuck in between each SS team and none of them can offer us any help or support.

Children at my school with Type 1 diabetes aren't statemented (Secondary school teacher). However, they have a medical plan and are on the SEN register ( school action or school action plus) as having medical needs.
TBH, the SW has assessed your case ( thoroughly you say - interviews, assessments, paperwork etc) and have told you that you are not eligible for more help.
I don't see how anyone on this thread can say that you are/ are not eligible for more support based on the few facts you have given us.
Sorry, it must be difficult bringing up 4 children, let alone 4 children with additional needs.

The sw herself has said it is unbelievable as every referral she has made has been rejected by the teams she thought should be involved.

Fair enough hedgehog. I may have missed the threads where you say what positive changes have been made I only go in active convos so the ones I have seen are quite negative.

As I said I hope your situation improves soon.

Either way, it is impossible for anyone on this thread to say whether or not your DC should qualify as none of us are informed.
However I am sympathetic as you are obviously tired and frustrated.

How could DH be a carer if he has problem of his own, I am glad that was rethought because of he isn't able to safety look after the DC for a few hours no way could he be a full time carer.

Is he even safe to drive, what would happen if he dislocated his legs or arm while driving.

A statement is a bitch to get it has taken me numouros appeals and letters and form over 3.5 years to get DS.

If you are referring to me Maryz then I am neither smug nor a mummy of 1 perfect child. I am a mother of 4 demanding and sometimes difficult children.
I have not seen anyone make the kind of comments you have listed. I have seen posters offer advice support and sympathy. No one said it was simple but when OP posts thread like, DH does not help enough, gives family all our money, we pay too much for the car and it is not always available to meet Dc's needs then what else would you suggest posters advise if not give up work, you and your children need him. Get rid of the car, or learn to drive. Stop giving the family money.

I do not know what other advice people can give. If you can do better then crack on.

Dh dislocates his knees almost daily, sometimes it has gone whilst driving but he has stopped ok.

His shoulder dislocates sometimes but he can put it back himself now. He gets a lot of severe pain but just takes strong painkillers.

We both have eds but what choice do we have but to be dcs carers.

Those are threads from before, I have explained on this thread how things have moved on, what problems are resolved, which problems remain and things iam in the process of trying to sort out.

Sorry hedgehog I did not mean to rehash the threads that you have previously said have improved, I was trying to make a point to Maryz.

Is he safe to drive?

Why don't you qualify for a motability car?

Funny - Maryz was referring to the ever lovely HappyMummyOfOne, who always pops up with really helpful advice on threads like this.

Yes he is safe to drive. He is so used to dislocations that if it happens when driving he can ope and stop.

Its worse when he's going up and down stairs- he never carries dd or ds in case it happens and he falls.

Maryz, i never mentioned giving up work to rely on the state.

The OP is easily recognisable and has several threads all in the same vein, ie paying too much for a car, family wont help with the children etc. Most follow the same pattern and nothing changed.

Nobody has a magic want, the OP had four children by choice knowing that the elder ones had care need above a normal child. Whilst hard, she and her DH made a choice to expand their family and now appear to expect everyone else to make it better.

Oh, well now my post looks pointless and a bit crappy now Maryz.

I do think the system is wrong on so many levels and I see the affects daily in my line of work. It always seems that the people that need the help most don't get it. That's my biggest frustration.

But how can he just stop. What if there are cars behind him? Or he's on a motorway?

Things were manageable (just) until dd2 got diabetes . It was the straw that broke the camels back.

We did not know she would get it, it was bad luck. It is not genetic so we couldn't have taken it into consideration when planning our family.