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Not looking forward to school restarting

55 replies

Perchkin · 05/01/2014 21:19

It's actually making me quite anxious and giving me sleepless nights :(.

Thinking of all of you who are feeling the same about your DC going back to school after the Christmas break.

Fingers crossed it all turns out better than we imagine x

OP posts:
claw2 · 07/01/2014 08:15

I phoned this morning to see where the taxi was and was told 'sorry I tried to phone you yesterday, but didn't have a number for you...oh sorry, yes I do have a number for you'!

I asked could I be informed of any changes in future and was told yes I could. However, this the latest in a long list of 'blunders' by transport company.

Ds has been left at school twice. The company have also tried to pick up twice from school without an escort, resulting in school turning them away and another taxi having to be called and a long delay for ds. Not to mention the times, a different escort has picked up ds from home.

What started as quite a pleasant experience for ds is turning in ds not wanting to travel by taxi.

PolterGoose · 07/01/2014 08:19

This reply has been deleted

Message withdrawn at poster's request.

claw2 · 07/01/2014 08:32

No bus option. He shares the taxi with 5 other boys from the same school. He is usually the first to be picked up and last to be dropped off, so he is in the taxi for 3 hours round trip.

That in itself is a long trip and not the maximum 45 min journey, however ds travels with a great bunch of boys, much older than him and all very calm and quiet, which suits ds and he was enjoying it. They have lots in common and they chat about interests etc and I was treating it more like a social opportunity for him.

However, if there is a change of escort, this changes the routine ie the time he is picked up and the order. He was so stressed this morning, he has taken headphones and doesn't want to interact.

Travel is supposed to be the 'least stressful' option. I could ask for a separate taxi, with less children. However ds was previously enjoying travelling with his 'friends' and having something in common with them etc

lougle · 07/01/2014 09:36

Oh dear, claw Sad I hope they sort it quickly.

claw2 · 07/01/2014 09:52

So do I Lougle, seems a shame to have a positive experience turned into a negative one.

Last term his usual escort was off sick for about 2 weeks and looks like she may have left or be on long term sick. Ds tells me the usual driver was quite offended when the school wouldn't let him take the children, without an escort and took it quite personally and was 'arguing'. All drama ds could do without witnessing!

Hopefully they will sort out a permanent escort and driver ASAP and ds can go back to enjoying the experience. If not I will have to look at other options.

Perchkin · 07/01/2014 09:59

Oh Claw I feel for you. Not what you need to start the day. And the whole getting to school issue is something both you and he could do without. I understand why you want him to go with the other boys and share the journey - I'd be feeling the same.

Well our school run this morning turned out just fine (although the getting ready for school and getting out of the house was hard work). We played silly games and told stories on the way in the car and DS ran off happily to play in the playground when we arrived. He then managed to fall over in the mud, which I fully expected to bring on a melt down as he had mud all over his hands and coat and up his sleeves! But he just ran over to me and asked me to clean him up - which I did (after a fashion) and he ran off again to play. I was Shock! I'm so proud of him.

I'm sitting here willing the rest of the day to go well for him. He desperately needs to have a good day to prove to himself that he can do it and to boost his self esteem. I just have no confidence in the school being able to achieve that :(.

OP posts:
claw2 · 07/01/2014 10:40

That's brilliant Perch having a good school run, that is, not falling in mud! But well done your ds for managing it so well though Smile

Having confidence and trust in school helps so much and makes all the difference, although I am sitting here doing the same, willing the school day to go well! Ds's school are very good, ds's TA has already emailed me before start of school today to wish me a happy new year and to say that he is sure first day back with be un-nerving for ds and he will be keeping a close eye on him and trying to reassure if needed.

Previous schools didn't even give out email addresses of TA or SENCO, let alone email me!

OneInEight · 07/01/2014 12:59

We had the opposite problem Claw - taxi turning up on Monday but no school! Luckily, ds1 was still in bed and not aware otherwise there would have been major problems as he was demanding written evidence that school was closed on Sunday night.

ds2 has survived his first morning back and has even tolerated an exciting trip to the tip on the way home so can't have been that bad. Hopefully, ds1 is having a good day too - he trotted off quite happily this morning anyway

claw2 · 07/01/2014 13:43

Blimey Oneineight, yes I can imagine the problems that would cause! Im hoping its just start of term hiccups and things will improve. Although I really hope they don't forget him again, where he travels with much older boys, all of them are in upper school, a different building.

Fingers crossed for you, me and everyone else that today will be a good one Smile

pannetone · 08/01/2014 09:22

Can we keep this thread going please - or start another one for those of us with DC who struggle to go to and be in school? I had my own thread here but I want to join in on this one instead for support from others going through similar. (Also DS clocked that I had started a thread about him Blush and later today I am going to get MN to delete it).

So background on my other thread but this morning -3rd day of term- HFA with severe anxiety Year 7 DS has not gone into school - yet?? He went in on Monday after lots of panic and distress, and struggled throughout the day. Yesterday lots of panic first thing til we said he didn't have to go in. He stayed off all day. Panic again this morning and I am working on getting him to go in for even just one lesson... I am feeling pretty clueless on how to manage this - I know staying off makes it harder for him to go in the next day but his panic is severe and he is talking about self-harm. Sad

Oh and today for good measure DD ( age 8 y4 HFA selective mutism) won't get dressed for school. Apparently I have made her have a stress attack by telling her she has CAMHS appt this afternoon. It is a much quieter (!) panic but DD has staying power! Just been to talk to her again and to try and persuade her to get dressed - I am very concerned that although she has had times when she has been stressed about going into school, that today there is a definite element of 'copying' her brother.

pannetone · 08/01/2014 13:13

Hopeful bump

pannetone · 08/01/2014 13:15

Hopeful bump

claw2 · 08/01/2014 13:42

Pannetonne, I think the key is how school are supporting him while he is at school.

Ds started to refuse school, literally as soon as he started in reception and started to self harm too. Have to pop out for a bit now, but didn't want your hopeful bump to go unanswered Smile

OneInEight · 08/01/2014 14:32

Yes, we have an awful lot of copying behaviour here between ds1 and ds2 and of course it is always the bad behaviour that gets copied not the good!!!! Would your son compromise on going in late rather than not at all. Sometimes that has worked for ds2 when he is in school refusal mode. Are school putting in any support for him as realistically unless this happens the school refusal is going to continue. ds2 is always worse after a holiday or on a monday morning so you might find it improves a bit as the half-term goes on.

claw2 · 08/01/2014 15:22

Right Pannetonne, I have been to shop, I have milk for my coffee now and can try to support you a bit more!

When ds was school refusing, self harming and having suicidal thoughts due to his school anxiety and was referred for an emergency mental health assessment in A&E (just to give some idea of how serious it was). CAMHS method was to reduce his hours. Their theory seemed to be that anxiety is made worse if it is avoided totally. So to kind of face your fears at a reduced level, rather than avoid totally.

I also applied for a SA of ds's needs and got onto school asking that IF I could get ds to school what support what he get once he got there. Their answer was none, so I didn't send him. They had neglected his needs for so long, I had no intention of sending back there. If you can work with this school, then by all means do. If they are refusing to acknowledge that there is even a problem, find another school.

Ds's school refusal was caused by years of attending and not having his needs met.

OneInEight · 08/01/2014 16:15

Claw - that is sort of what ds2's present school is doing as he has been on restricted hours since November. It is probably helping as he has not made any escape attempts from school since this was started although we are still getting the school avoidance behaviour at home. He has a two year history of school refusal / anxiety so it is going to take time to overcome this. We did try the medication route for him as well but the side effects for him out weighed any benefits in anxiety lowering so we have stopped giving it too him. We were always dubious of the ethicalness of medicating a child rather than providing them with an appropriate educational setting anyway.

lougle · 08/01/2014 16:16

Pannetonne, do you find that your DS copes once he's at school, and it's the thought of going that is worth than the actual event, or does he find school itself as awful and he thinks it's going to be?

Can he be motivated by a particular subject? Is there anything he looks forward to or enjoys?

pannetone · 08/01/2014 22:57

Thank for responses - I haven't been able to respond sooner as I had a CAMHS appt for DD and then DS is currently super suspicious that I am posting about him.

lougle sadly at the moment DS isn't coping while he is at school. (Although there is also the issue that some of his anxiety is about not going to be able to cope, which takes up so much energy and causes him so much stress that it affects his ability to cope IYSWIM.) The not coping takes the form of becoming panicky which gives him distressing physical symptons (feels his head is 'exploding', rapid heartbeat etc). He also becomes readily upset - sometimes because of his ASD difficulties in coping with all the social and communication stuff within class and also because of his sensory sensitivities.

I think that at the moment DS is finding school as difficult as he fears it will be. He has lost any ability he had in 'recovering' from a 'difficult' lesson and the stress just continues to build. On Monday he struggled in the first 2 lessons, went to the learning support base and the SENCO tried to calm him. As he was still upset he did work from the 3rd lesson in the library. He went back to lesson 4 but then at lunch he was miserable and stressed and went to a place he has found in the library where he can be upset without being noticed. Sad And sadly ATM the moment he has stopped enjoying activities in school he used to like eg drama club and choir. Even in the subjects he likes he usually has some niggling worry.

claw and OneInEight I got to speak to the Head of Year today and he has said that a restricted timetable is an option. But apparently this means DS being in school full time but doing the lessons he finds difficult (most of them currently) in the learning support room, or the HOY's office. I had in mine more of a reduced hours option. I agree that it is best for DS to keep going in albeit for less hours. (Though at the moment DS is becoming so tired and depleted that he is becoming unfit to go in at all. Which is why I am desperate for a 'plan'.)

Today I tried to get DS in school for the last 2 lessons - which at his school means from 12 to 3 with a lesson each side of lunch. We drove there DS getting increasingly agitated. He couldn't/wouldn't walk into school himself as he had said he wanted to. I said I would phone learning support to get someone to meet him at reception. He said if I did he would make a scene and not go with them. He was super stressed by this stage saying if he did go in, it would because I had 'made him',so he wouldn't be coming home again because I was cruel. And he was suggesting that he would run off over the common which I had parked next to, rather than walk into school. I said it was his decision and we could go home if he wanted. I felt mean making him decide, but I thought he had to make the choice. He agonised, had to be prompted loads to come to a decision and eventually he said he couldn't do it and we came home.

The going in late doesn't work at present because DS can't cope with the change in routine - and worries about having to explain where he has been to his classmates. What DS wants is to be allowed to come home if he is upset. Which the HOY says can't happen as once DS is in school they want him to stay. I don't know what I think - I obviously don't want DS to continually ask to come home - ATM he might consider himself upset 'enough' to come home each day! There again, I don't know if he is just looking for a 'safety net' if things get too tough.

Please tell me what sort of support the school should be offering. He has a leave-the-lesson pass which he currently won't use because his classmates will notice him go out. He also says going out for a short time won't deal with his panic. He can go and speak to the SENCO at breaks, but he thinks that she is minimising his difficulties - sitting with a friend in a lesson isn't enough and he doesn't want to be taken to the lesson. He has been allowed to do a couple of lessons in the learning support room - he found that hard as there were unfamiliar children and an assistant there. On my other thread homework suggested a 'learning support mentor' which I think might help if it was someone he saw in private. Apparently there aren't any LSAs in his lessons because he is in the top sets for core subjects. Anyway, he wouldn't accept LSA help/attention in a lesson.

The school have suggested he sees the counsellor - but I'm not sure he will agree to do that or that it will help - CBT at CAMHS for DS last year was not a success and in theory the therapist had experience of ASD. I have wondered about medication - OneInEight - how old was your DS when it was prescribed and what was it? My DS2 with HFA was prescribed Sertraline at 14 and has continued to take it - 5 years on....

BTW I didn't get DD into school either. She is much less eloquent about her difficulties at school than DS, but she said school was 'scary' and we had tears. I decided that the CAMHS appointment was enough for her to deal with today and kept her at home - which unfortunately did mean she witnessed a lot of DS's panic - and was probably making mental notes on how I dealt with it....

DS was very tired this evening. He wants a 'normal day' tomorrow but is agitated that he can't do it. If he doesn't go in first thing I will take him in with me when I go to meet the HOY. I am a bit bemused that the school seems to be making a distinction between SEN support and then the HOY who is in charge of 'pastoral care'. For DS they definitely need to be 'joined-up'.

ouryve · 09/01/2014 00:08

Oh, they're very definitely separated in most secondary schools, Pannetone. If anything, SENCO is seen as a very separate necessity and sometimes looked upon with suspicion and even derision.

We've had a shit 5 days. Shit weekend, shit monday morning, shit monday at school, shit afternoon at school, today and 3 solid evenings of being ranted at. He was a lot more tearful than angry, today. I'm on the verge of saying sod it.

claw2 · 09/01/2014 09:15

oneineight school have also raised medicating ds with CAMHS, something that I am totally against. I don't see why I should medicate my child, JUST so he can attend school. I would rather home ed.

Pannetonne Feeling 'different' is a something ds hates too. If there is a need, not giving support as it makes a child feel 'different' is no excuse not to give support. They will have to find a way to give support without making him feel 'different'!

What support your ds should get, depends entirely on what his needs are? What does he find difficult?

OneInEight · 09/01/2014 09:56

Sympathize ourvye. ds2 has been making his feelings clear too. Are you getting any respite for you and the boys from social services. They have just put in a buddy system for my two which hopefully will be good although getting ds2 to engage is going to be very difficult.

Pannetone - ds2 was 10 when he was prescribed risperidone. It did reduce the anxiety a little but disrupted his sleep (despite the listed side effects saying it made people drowsy) leading to several nights when he apparently had no sleep at all and was absolutely raging in the mornings & made him constantly need the loo.

Is you son being helped by anybody outside of school? For example, advice from CAMHS or an education psychologist for a restricted timetable might help you get the school to consider it. You could also use the education welfare officer to help as it sounds like your son is missing school already because his needs are not being met.

It can be a dangerous strategy allowing the child to choose whether to miss lessons as I know at least one instance where the child ended up not attending any and is now home schooled. We probably played it wrong ourselves (although I am not sure there was a right way) in that we did take ds2 out of school for a period when I finally lost patience with his old school without really thinking of what he was going to do instead.

Had relatively good morning with ds2 today (he actually chatted to me on the way to school) so hopefully will continue like that for the rest of the day.

OneInEight · 09/01/2014 10:05

Claw - it actually says on the prospectus of the BESD secondary that the LA would like my sons to attend that they will send children home if they have not taken their medication which enraged me. We only choose to medicate ds2 because we hoped it might benefit him (he has anxiety about going anywhere not just school) and certainly not just so the LA could put him into an inappropriate school.

claw2 · 09/01/2014 10:05

Oneineight makes a good point about it being unwise letting the child choose whether to attend or not etc. I think it is important to let a child who is obviously feeling very out of control and school refusing to feel they have some control, however you control the choices.

I also think it is very important to have a plan and for you to be able to trust the school for any plan to work.

If you think school are not meeting your childs needs and he isn't coping once in school, it becomes impossible for you to send him, knowing he isn't coping, restricted hours or full time.

claw2 · 09/01/2014 10:09

oneineight exactly I haven't completed ruled out medication and if I felt it was needed then I would give it a try. However, ds's anxiety is greater reduced, his self harming stops completely when not at school, which tells me the issue is with school and not ds.

claw2 · 09/01/2014 10:11

completely