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Do children with ASD or similar behaviours get easier as they get older?

38 replies

sammythemummy · 18/10/2013 13:02

I ask this after having a conversation with a friend of mine who has a 6yo dd with ASD. She said that her dd was a lot easier to manage when she was 3 as she could pick her up after a meltdown, choose things for her (i.e clothes/toys) but now that shes a bit older, dd has a big say in a lot of things so everything turns into a meltdown. This has obviously scared me to death because Im finding my dd much much easier to handle now that her language and understanding is coming along, so I really hoped that as her language progressed, so would her behaviour. But feeling scared now!

So how are you dc in comparison to when they were younger?

OP posts:
AmberLeaf · 22/10/2013 13:52

Sammy I'm not sure re girls being better at coping with frustrations, I think its possible that they internalise them more? but then I think boys can do that too. I have read that girls are diagnosed less as they are better at hiding it/or mimicing NT behaviors.

I don't know though as I have all boys.

Some things get easier, but new challenges appear

Yes.

claw2 · 22/10/2013 15:17

I have found the difficulties/differences have grown or become more obvious, however so has my knowledge and understanding of ds and asd.

sammythemummy · 24/10/2013 06:17

All very beneficial knowledge, so thank you.

I think I need to deal with problems as they arise and not think of future problems that may occur.

OP posts:
magso · 24/10/2013 08:28

That's true although thinking ahead to get suitable support in place can save stress later on.
My ds (who has ASD,ADHD with SLD) started MS school without support having been turned down for a statement. I wish I had known that the system is not geared up to support our children (professionals procrastinate) and that I could have applied for the statement myself ( I was wiser the following year and did). Attending specific courses (preferable those other parents with similar children have found valuable), and lining up medical support ( eg OT SALT if needed) earlier can help you be on top of the new challenges as they come along.
So it is best to prepare but not to worry. Your friend with the 6 year old may be able to give pointers to help your child have a smoother ride.

Ilisten2theradio · 24/10/2013 10:26

Lots has changed!
It is much easier to communicate and reason with DS now so that he understands. Part of that is due to my increased knowledge of how to deal with things (thanks to books and valuable ideas from all on MNSN Thanks), and partly due to his growing up and maturing (albeit at a different rate to his peers).
So far I have not had the urge to be able to pick him up and carry him away from situations lately ( at 12 and almost as tall as me that would be difficult) thank heavens, as I can hiss at him very effectively in public that he is and deal with it all later.It has taken time to get there and sometimes its more difficult than others.
Its true that the differences seemed greater the more he got older, but since he started high school and has made some good like minded friends, it has not seemed so much of a problem.

The sensory stuff has modulated so that he can cope while out for longer now as long as we know to give him space to wind down and recoup later.

Ds does not really have much in the way of meltdowns as such now, he either shouts very loudly or withdraws. he is learning socially acceptable ways to deal at school and then telling us about it at home so that we can deal as appropriate. Its great progress!!!!!!

As you can see from all the responses here , they are all so different that you can't second guess where you will be in 10 years time.
All you can do now is deal with problems as the arise, and your knowledge of how best to deal with your DD will increase and hopefully you can learn to avoid/minimise the triggers that lead to meltdowns.

pumpkinsweetie · 24/10/2013 10:39

I agree with your friend too, sadly.
My dd turned 5yo in august and physically picking her up now and carrying her isn't possible and when she runs off after a melltdown my only option is to chase her until i finally catch up, with being 7m it isn't easy.

Her behaviours imo are actually worse than ever and getting through the day with minimal to no meltdowns is a feat, it doesn't happen oftenSad

I noticed something when she was 2 but i have only recently in july applied for a statement but i now Know she has autism and anyone that knows her has actually said they agree with me wholeheartidly and even friends have admitted they don't know how i have coped.

When she was 3 it was easier, she was transportable in a buggy and if she ran off i could scoop her up and carry her, same with a meltdown. Now she is heavier, bigger and her meltdowns can lead to her kicking and punching me, with shoes on it really does hurt and it's hard to control her now, it's out of my hands and most days when she does this she is off in a world of her own and trying to get eye contact whilst she thrashes around is awful.

I personally think it's easier when they are smaller

pumpkinsweetie · 24/10/2013 10:40

*7m pregnant

heart101 · 02/11/2013 17:41

please help I have 14 yr old daughter recently diagnosed, asd. She self harms which result in many trips ae after cahms told me if she is in melt down and bolts call police take her ae, but we wait hours then sent home. The police are annoyed that cahms would tell me this. education statement done but cant find high functioning special school in Berkshire, the education dept want her continue home school get cats team involved until I find something, she doesn't meet criteria for lld team or direct payments, she went through main stream until 11 months ago when finally she couldn't take the physical, mental or racial bullying anymore. feeling concerned by all services as she is socially isolated due to post traumatic stress, co morbid depression and asd. please advice me as im heartbroken and only want the best. have been advised to find independent residential mon to fri and she come home weekend as they have 24 hour care and help her rebuild her life. we feel so alone.

PolterGoose · 02/11/2013 17:59

This reply has been deleted

Message withdrawn at poster's request.

sickofsocalledexperts · 02/11/2013 18:29

I have heard good things about Hassocks schools.

Would the GP or Camhs not give her some medication (prozac?) and/or some CBT "talking " therapy?

I would email your mp just what you have written here, you need some muscle on your side.

How vile her bullies were!

The SoS-Sen or Ipsea websites might help too?

Tell her that self harming just means she is hurting herself like the bullies did, she must be kind to herself. They are terrible people!

TimidLivid · 02/11/2013 19:39

Heart101 my son same age is at spark of genius residential school chain in scotland. They live in little lodges cottages and go to school separately and come home at weekends and holiday if not a full placement my son stay during holidays too as has deteriorated. It is so hard I know my son has some of the same issues can be agressive and absconds. And we were having police returning him home when he would run off from us a lot and put himself in danger. Some kids there are from england. May be too far from where u are but if any questions can ask me or pm me. To op I found after twelve years old to be the worst and son would attack us. But was lovely baby and eloquent sensitive child when not in meltdown.

TUL105 · 02/11/2013 20:25

Heart, have you considered residential care? My friend had similar issues until she eventually gave in and sent her son to a specialist residential school.

As for the original poster, I'm sorry, but when your darling asd is good, the sun really does shine brightly. When its a bad day though, those clouds are very dark. However you learn to manage the bad times. I have learned the art of distraction. If my ds(8) gets angry and I don't distract him quickly, it will escalate into violence. He is beautiful most of the time, but lately he has become destructo again and we have to follow him around. We simply cannot leave him alone! I am working on physical exercises we can do, to help him burn energy. I have made a conscious decision to let the detailed housework slide and just do the basics daily, getting him involved. I do tell him off when he is mean to me. I remind him that he doesn't like being hurt physically or by names, but on the whole, I have found he is very good. I think implementing a 30 minute chill when we get home from school has been really successful in preventing major meltdowns too. Hugs hon because asds are so special x

MariaNoMoreLurking · 03/11/2013 00:06

Hi Heart.
I've heard good things about Littledown in Slough. They only do primary afaik, but should know which schools their y6 girls with ASD go on to. 'Berks' might not have shared all the 'Reading' schools and 'Slough' resources with you

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