Tinsley House Support Thread Part 4!!!

[Mangomanila]

This thread is for anyone interested in the Tinsley House programme. All welcome!

A brief synopsis of stage 1 of the programme can be found in the books "is that my child?" Or "the brain food plan" by robin pauc;

Stage 1 of the TH therapy consists of:

1. Daily Multivitamins

• Omega
• Zinc & Magnesium

1. Healthy eating

• High protein, low sugar, no artificial sweeteners, additives etc.

1. Specific neuro development exercises done 3 times a day

• Takes about 4-5 mins

And that's it smile

Stage 2 involves computer programmes to sort out eye tracking and convergence which over 80% of children with reading/writing problems have.

• www.engagingeyes.co.uk

Thank you Indigo for all of that information. It is just as I thought but it is always good to hear other people confirm what you know. As you can imagine if I can save dd3 any/ all of the heartache that my other two have been through then I am going to damn well try!
I am so glad that your 3 are doing so well and thanks to you I know my 3 will be just fine.

Hi Travelling
We had quite a lot of anxiety before starting TH - DS was 4 and having nightmares and really hated nursery - he was frightened of the girls who sang in assembly, didn't like the teacher and very naughty. It got a bit worse once we started with Robin, but after a few months totally disappeared. I found the Relax Kids website really useful and laminated their positive affirmation cards - he picked one every morning and it was ours for the day. It sounds a bit full on, put like that, but it wasn't ;)

Does anyone know which gluten free bread does not taste like cardboard (if any)?

Massive boast time.

I just met with DDs Y7 science teacher, to explain her difficulties - and she had no idea that DD had SEN!

i.e. she does not present with any difficulties at all in science. The teacher thought she was a very able student who had no problems.

She was astounded that she'd come up a level 4 not a level 5.

:) :) :) :)

Fantastic news Indigo, so glad she's doing so well.

Well done! So all the earlier hard work has really paid off, and no regression or losing of skills! Inspirational! You must have lost that constant feeling of panic and worry in the pit of your stomach by now?!

I have lost that constant feeling of panic and worry now. :)

I have done it. I really have. My 3 are now all fine.

I feel brilliant.

In fact - I'm just out celebrating with DS2 because he passed the 11+

The 11+ is designed to exclude kids with SEN. Because it uses VR and NVR and you'd expect kids with ASD etc to have a big difference between those scores, and therefore to not pass.

When I looked round on open day, out of a school of 1,000 pupils, the SENCO said they had 10 pupils on the SEN register!

So passing, (with a v high score) really shows how little ASD he has.

I'm thrilled. I feel brilliant. It most certainly has all been worth it. Every bit of it.

Wow, wow, wow Ingigo. I am so pleased for you. What an inspiration your story is and what fabulous kids you have. I think your kids success is the best revenge on all the doubters and people who believed your children would never achieve. Let's hope we are all as successful as you in turning our kids life's around.

Indigo, congratulations to DS2!......We went to AIT in St Albans and Dd's hearing in right ear is super sensitive (was off the scale!). The practitioner, who is also a professional SaLT was really lovely lady, and thinks the AIT therapy would help, and I really do too. She did advise to wait until after our APD assessment at GOSH, so that they would see the full picture, and can maybe monitor her progress? Anyway only have to wait until mid Nov but am itching to start! We're on the last Eye Tracking parts of Engaging Eyes, and Hemi T. Dd so feels all the benefits of the therapies and is therefore willing (most of the time) to do them without too much of a fight!
Best wishes to all!

Wow Indigo, as others have said your story is inspiring! Your children are so lucky to have you. What a different future they now have! Thank you again for sharing your experiences / advice on Mumsnet. I doubt I would have found AIT or TH otherwise!

Genius bread is the best gf bread IMO.
Also, the doves farm gf flours and pasta are excellent.
In fact we have just made some gf Halloween cupcakes :)
Can get all of the above from most of the big 4 supermarkets.
Like Indigo, at the first parents evening of secondary school none of ds1s teachers knew he had been on the sen register from year 1 to year 5!

I'm considering trying a GFCF diet for my son (5 yrs old, no diagnosis but poss ADD/ASD) wondering what everyone thinks about getting biomedical advice first. I've heard of Dr Gowal and wondering if anyone's seen him and would recommend the financial investment in blood tests etc? Or is it possible to do it alone?

Dr Goyal no longer sees patients without a dx.

It's worth finding a very good nutritionist and getting the blood tests done.
But start GFCF today. You don't need blood tests for it to be a good idea.

The blood tests would be for specialised advice about supplements. But you don't need to start with it.

Start with:
Gluten free / dairy free
Omega (vegepa)
B12 (mega dose)
Zinc and magnesium
Probiotics (optibac)

And in time you can do the blood tests and get more advice.

Did anyone go to the conference yesterday?
It was very very interesting, came back with lots of things to try out.

One of them being the GAPS diet, although my dd will hate the soups, vegetables and broths (the whole diet in a nutshell).

Any good recipe books to recommend?

The TA conf was brilliant, wasn't it.

Probiotics was the big take home for me.

And A2 milk.
And broccoli.
And no grazing. :)

Can you tell me more about the A2 milk?
No grazing - very interesting, but my own body and metabolism has been balanced by avoiding grazing. I now don't eat / drink a thing (apart from water) between meals and my digestive system is much happier!

No grazing is to improve digestion. Don't want old food rotting in the gut because you keep putting new food on top of it.

A2 milk comes from a certain breed of cow which produces milk which is more similar to human milk than normal milk, and is therefore easier to digest.

With the no grazing, was it in reference to snacking?

We already do probiotics but I wonder if they are the clinically tested ones

I really want to try the A2 milk as my dd2 is on goats milk which is supposed to only have the A2 protein.

My dd1 is strictly no casein as she really came out of her fog once she was off it(literally, in days she was making conversations).

Yes, no grazing is no snacking.

If your DD had such a good reaction to removing dairy I wouldn't rush to reintroduce it.

Were your probiotics recommended by your nutritionist? Which ones are you using?

Is she also gluten free?

No snacking at all? Not sure how that will go down with my dd.

Yes they were recommended by her, after research they are "guaranteed" and tested.

She's also gluten and soya free.
I really don't think I'm going to go ahead with the GAPS but I will try low carb with lots of vegetables and meats. I'll try giving her broths, although last night's broth was met with "eeeew that's disgusting!".

I'm also going to introduce saccharomyces boulardii and Digestive enzymes (as prescribed as her results show that she can't break down proteins and fats).

I need to start her on omega supplements but she's on vitamin A as she's low, does that mean I can't give her omega as well (because of the vitamin A content)?

Sorry I missed your question, biocare acidophilus in the powder form.

I'm fairly sure biocare will be a good probiotic. I thought she was referring more to supermarket yoghurt drinks when she said be careful which one you buy.

Omega (vegepa) is crucial. I don't know about taking it with Vit A.

Your whole brain works on omega (the myelin sheath is all omega) so without enough omega your brain literally doesn't work as well as it could. Synapses can't talk to each other without their myelin sheath being coated in omega.

(That's probably not an 100% accurate description. But the gist is right)

shop.igennus.com/Vegepa-EPA-fish-oil-with-GLA-60-capsules.html

Is that it?