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Tinsley House Support Thread Part 4!!!

668 replies

Mangomanila · 14/10/2013 22:59

This thread is for anyone interested in the Tinsley House programme. All welcome!

A brief synopsis of stage 1 of the programme can be found in the books "is that my child?" Or "the brain food plan" by robin pauc;

Stage 1 of the TH therapy consists of:

  1. Daily Multivitamins
  • Omega
  • Zinc & Magnesium
  1. Healthy eating
  • High protein, low sugar, no artificial sweeteners, additives etc.
  1. Specific neuro development exercises done 3 times a day
  • Takes about 4-5 mins

And that's it smile

Stage 2 involves computer programmes to sort out eye tracking and convergence which over 80% of children with reading/writing problems have.

  • www.engagingeyes.co.uk
OP posts:
IndigoB · 21/09/2014 21:14

Hello everyone!

DDs just started secondary, so I guess it's a good time for an update from me....

My boys are doing really well, and I have no concerns over them. Especially DS1 who is now in Y9 and doing brilliantly. Top sets in all the academic subjects, plays sport, scouts, has friends. Absolutely fine and well rounded.

This is very different to where he was when he started TH in Y6. At that time he was middle of the class, didn't have friends, found sport very hard. Was generally very anxious and stressed. And needed a lot of 'managing' in class.

DD's come along massively and has just started secondary school. I'm no longer concerned about her. She can read and write. And organise herself. And cope at school.

She's even coping in French! And I have a speech therapist report, done in Y6, which says she won't be able to learn French. So she's doing much much better than everyone thought.

She's still a bit behind where I think she should be. She doesn't read and write as well as she should. But she hasn't had the years of practice that other kids her age have had.

In Y6 SATs she got a 4 in reading, a 4 in writing and a 5 in maths. So good results - but I know that she should be doing a lot better than that. However I do think there's a very good chance she will catch up to where she should be in the next year or 2.

Her brain seems fixed now. She appears to learn at the same pace as her peers, but she does still has huge gaps, because she missed so much in the first 6 years of schooling.

This is the girl who in Y4 when I asked her what she did in Maths said 'a line and a dot and a dot'. At the start of Y3 she couldn't write a single word correctly. I remember asking her teacher to teach her how to spell her name. (She could read and write the diminutive, but couldn't read or write her full name.)

Even at the end of Y4 her spelling was so bad that it was impossible to read her work. She didn't start to write phonetically till Y5.

So the fact that she got level 4s and 5s is a miracle.

She's learning spellings with Spelling Tutor and doing really well with it. It does feel like she can learn easily now.

Both kids are very clear that they're pleased they did TH, and all the other stuff we did. They feel better now and enjoy life more.

I've been depressed for a long time, but am coming out of it now. I managed to use DD leaving primary as a big milestone to turn myself round.

I'm really pleased to hear how many other children are also doing well on TH. And I'm even more pleased that I'm at the end of the journey not the beginning. :)

whojamaflip · 21/09/2014 21:31

Hi

Just wanted to update on my 2 boys

I found TH through MN and both of mine have gone through
the process.

Ds1 has just transferred to secondary and has been placed in the top set!!!!! This is the child who in yr4 struggled to read cvc words. Thanks to the intervention he went from age 7 reading to a reading age of 15 in 18 mths!

He was predicted level 3 at the end of yr6 but ended up with level 5 in everything apart from the spelling and grammar but hey level 4 is better than we had ever hoped for.

Ds2 who was the original reason we went to TH has now been weaned off his epilepsy medication and his melatonin and has achieved level 2s in his yr 2 sats! This is the child that I was told would always be at least 2 yeRs behind! He has a reading age now 2 years ahead of where he should be and is keeping up well in class. He still has some emotional delays but this is improving and the gap between him and his peers should narrow as he gets older.

I can never thank Dr Pauc enough for his help and for giving both my boys the tools to achieve their potential. The program really does produce miracles Smile

reddragon1 · 22/09/2014 07:32

I have just read the posts from Indigo, Whojamaflip and Mango and I actually have tears in my eyes. This thread is so crucial, I would never even have heard of TH without it. I am so pleased for your DC but you too. I dream of not carrying that worry about my DS around each and every day.

GreenApple7 · 22/09/2014 09:02

Hi Dragon, I would say around month 3/4 of TH when we saw reduced anxiety, it really kicked in once we started the Eye program. We had an increase in crankiness for a week once we started Eyes and after that things were much better. But we were on summer holiday during that time, the real obvious change has been now that we are back at school, and even the school notices he is happier and with less/no real transition issues.

That being said after such great gains and a recent positive post, this weekend has been rocky, where DS cranky and frustrated and a bit spacey. But still much more manageable than a few months ago, and I am probably over analysing it.

DS did his reading test this morning on EE, his speed is now quite high, but its the comprehension we have to work on. He gets the broad sense of the story but specific detailed questions are hard. I will have to ask Robin how to handle this. Does anyone have experience on this? I think the next stage, once we are done eyes will start dealing more with comprehension and focus. Just have to be patient......

DS age 7, TH 5 months in.

nellieellie · 30/09/2014 12:15

Hi, have been reading threads as feeling very despondent at the moment. Have been doing Tinsley House for over a year now. (A year was original estimate for 'fixing' things). DS, now 9, just gone into yr5, the gap between him and peers seems wider than ever in terms of behaviour. He seems so much younger than them, his speech remains odd, his responses can be odd. Still has problems making friends, issues re appropriate behaviour, and although his academic ability is good, he still has no concentration, is unable to sit still, or organise himself physically or mentally. His physical co ordination is better. Robin has suggested stopping the hemis so I can fit in more help with maths. So he is doing Lumosity, yoyo (in place of toothbrush), stairs. He is good at Lumosity and has been doing it for a few months. I thought that this was meant to work on front of brain, so expected to see some change as Robin said his issues were connected to front of brain. I did email Robin with my concerns and worries after last Skype but just got a brief 'I'm sure he'll be fine'. DH is saying to ditch it as we are paying £70 every 2 months. I feel a bit abandoned by TH to be honest. What I can't get out of my head is the suspicion that TH is aware that the programme is not working for my DS and so responses are deliberately off putting so as to get rid of us. DS has had a not very good start to yr 5, and I feel that the TH avenue in which I had so much hope is now closing off. Are there any other exercises after Lumosity that are meant to help with front of brain, or am I near the end of the programme? We were signed off E.E a while back.
Sorry to sound so negative. I am so pleased for those who have seen dramatic changes, I just wish I could see some light at the end of the tunnel.

reddragon1 · 30/09/2014 13:06

Hello nellieellie I'm sorry to hear things are not progressing as much as you hoped yet. I can't comment on TH as we are too new but I would like to mention the latest online research I personally have been looking at. There seems to be a lot of talk about children with developmental delays having high metal toxicity and low essential amino acids as a result. It seems there are lots of practitioners who can check and then rebalance with homeopathic 'cures' for this. I am currently speaking to one at the moment and she says that without eliminating the bad metals other therapies may not seem to work as well. Just a thought and I would love to hear if others have tried this?

GreenApple7 · 30/09/2014 13:40

Hi Dragon and Nellie. We are still a newbie at TH but I fully agree with Dragon, metal toxicity is a common issue. I think there are many pieces to this puzzle, I think I had candida metal issues myself when pregnant, antibiotics at delivery, as well as forceps made DS have a weaker start. This made it harder to eliminate toxins particularly metals. This then contributes to immune issues and DDS as the nervous system is not as effective and then it snowballs from there. In my experience, one must approach chelation very carefully and I really really researched it. We are currently on a break as we are seeing such gains with TH. We also did asyra homeopathy, and had another big jump, the asyra method provides a remedy and dose specific to your child. By far TH has been the biggest jump, but I think chelation and homeopathy helped set us up for these gains.

DS age 7, TH month 5

IndigoB · 30/09/2014 15:18

Hi Nellie,

Sorry you're feeling so despondent. It's a very long very hard road we're on.

Are you following the TH diet and on the vegepa etc that he recommends?

I don't think Robin is deliberately trying to put you off. I think he believes you just need to keep doing it. And there's really nothing else he can say besides stick with it.

TH hugely helped my DC. But the other things that were necessary for my lot were:

  • Gluten free / dairy free
  • AIT
  • Cranial Osteopath (Needed due to concussion DD had had years ago)
  • Proper supplements from a nutritionist.

I know DD had metal stuff going on, because the blood tests from the nutritionist showed she did. I can't remember all the things she prescribed, but I do remember huge doses of B12. But DD was on about 10 pills a day from the results of her blood tests.

Badvoc123 · 30/09/2014 18:36

Hello all!
Another update from me...
Ds is now in year 7 and doing very well :)
He came home with a maths commendation today and his work in RE yesterday was held up by the teacher and the children were told "xxx has set the benchmark"!!!! :)
My "severely dyslexic" son got a level 5 in reading in his sats :)
He still struggles a little with spelling (but so does his dad, it might be genetic!!:))
I so remember being where some of you are now.
Feeling alone and scared for my son.
I can only tell you how great things are now and what a difference TH has made.
(He also did RRT and AIT prior to TH)
Keep the faith x

Badvoc123 · 30/09/2014 18:37

...oh, and he is top set for science and is top of his class in French!!

Badvoc123 · 30/09/2014 19:44

Thank you pinkpelican...and you are very welcome x

Badvoc123 · 30/09/2014 19:47

Travelling circus...you too x
So glad to hear all the positive stories :)
From what I remember - it seems so long ago!! - we were pretty unconvinced with both RRT and TH at first Blush
It took about 4 months to see any change with RRT and about the same with TH.
Thank god we stuck with it.

Anomaly · 30/09/2014 21:00

Badvoc that really is amazing that your son is doing so well!

We're just at the start of the process, we've not had an appointment yet but started the supplements and cleaning up DS's diet. He's also having a go at stairs.

DS already gets some support from occupational therapy and we have another appointment with a pediatrician as we don't have any kind of diagnosis just trying every avenue for support at the moment. DS appears to have a bit of everything but none of it especially serious but cumulatively it's causing real issues academically.

DH and I have agreed we're going to get an appointment in the new year. I was wondering about cranial osteopathy as DS was delivered using forceps despite it being a emcs. How would I find one?

nellieellie · 30/09/2014 21:42

Thank you very much for your posts Indigo, Apple and Dragon. I will look at metal toxicity, but he has been seen by a nutritionist who thought there were no real indications of allergy or toxicity to warrant tests although we did get him tested some years ago for food allergy which was negative. There is so much stuff out there it is difficult to know where to start. I wanted to give TH a clear run, but maybe now is the time to consider other options. He is on the TH diet Indigo, although he is vegetarian so has a veggie version of Vegepa, together with Saludynam and vit/min supplement.

IndigoB · 01/10/2014 08:52

Anomaly - I just googled. I use one in Windsor if that's any use to you.

Cranial Osteopath has been amazing - though I don't know if all kids need it.

DS had a very stiff neck with not much movement in it. That's gone. And he used to get dizzy all the time. ie he took travel sickness medicine every day. After 2 years of cranial that's gone as well. He's off his medicine now. Which I think is amazing, and obv has made his life a lot better (he used to get dizzy every day at 5pm when the medicine wore off).

DD had had concussion when she was about 6. It turned out one of her eyes was ever so slightly out of alignment which was making her eyes sore when she read for 5 mins. No one else had picked up on this. Not Robin, or her optician, or a behaviour optometrist.

Took about 6 sessions to put her eye back in place.

Nellie - it really is hard and long and lots of trial and error. I know I'm so lucky that I stumbled across so many people who could help me. Robin and the cranial osteopath and a few others.

What I would say about gluten, is you cut it out not due to a food allergy, but due to a digestive problem. We cut it out for 2 years, were on all sorts of probiotics etc, and then were able to re-introduce it with no problems.

Symptoms of digestive problems:

  • Purple circles under eyes
  • Hypermobility ( when he straightens his arm does his elbow bend backwards?)
  • Sore tummy, diarrhoea, constipation, excess wind, bloating
  • brain fog
  • spiky performance (can read / concentrate some times but not others)

So if your DS has any of those problems it is worth trying gluten free for a month. The Dr who told DD to cut out gluten did it purely by looking at DD straighten her arm.

Feel free to PM me if you want to discuss in more detail.

PinkShark · 01/10/2014 14:34

nellieellie I am so sorry TH hasnt worked for you and I am only posting to say you are not alone. We stopped it all over a year ago and DS has been progressing massively doing other interventions.

My rule of thumb is if its hasnt worked for 3-6 months move on. We were on a real rollercoster of emotions and behavior while on TH, you may find my older posts. The only reason I broke my 3-6 months rule is because my son ADORED Robin. He was even paying attention to him and briefly talking to him on Skype. Now that he is more verbal when we drive through an unfamilar countryside he asks when are we ging to see Robin/are we going on the way to Robin? :)

I dont believe he gives some parents false lead although he appears a very wise businessman, the brain takes time to recover/repair and takes longer for some kids. I was just tired of 'I am sure it will all be fine' and 'that looks the way I expect', 'things will only get better'. A year or so was enough!

I just decided one day we are stopping it and moved on.

It is very upsetting when you feel you have found a hope and it doesnt work. But on the other hand look at all these people reporting progress.

Be brave - if its upsetting you just move on and find something else.

Cranial osteopathy
Acupuncture
Tuina Massage
Speech Therapy
OT
etc etc

As Indigo said test dont usually show gluten sensitivity or other alergies. Watch out for the symptoms some of which she described, his behavior after certain food group, sleep patterns, tantrums, bloated tummy etc.

And you can always pm me for more info or support on anything, I dont come here very often these days.

Badvoc123 · 01/10/2014 15:43

I must admit cranial osteopathy was next on my "to do" list for Ds!

Lookslikerain · 01/10/2014 20:30

Warning: mammoth post follows! Smile

I don't think I've posted since the start of the summer, and a lot has changed for us since then. I remember saying I was going to make more effort to post on the thread. Well, at the end of June, I found out I was pregnant again! Mis-timed rather than unplanned Wink but we're all happy. So all my plans for the summer holiday went out the window as I was knackered and feeling sick! Anyway, much better now and we're all back on track.

Hello to all the newer people, and the old ones that have reappeared! Smile

Onto DS. He is doing really well. Going through a grumpy teenager patch this week and last week, but good otherwise. We've been doing TH 18 months; DS is 4 and a half. He was diagnosed with autism just after we started. Would he still get a dx today? Not sure but he has definitely come very far since then, and I do feel he is slowly moving away from that dx.

His language and undstanding has come on in massive leaps. Sentences longer, more complex etc. He still often babbles. It's in English but doesn't make sense. It's kind of like he's seen people having conversations but doesn't really know what to say so makes something up.

His eye contact has improved hugely in the last 3 or 4 months. This is really noticeable when we're talking.

He was in nappies until about a month ago, then (bizarrely) toilet trained himself overnight. He has only had a couple of accidents since and it's really been quite amazing! Still wears one at night but it's always dry in the morning. However, we are now constantly reminding him to remove his hand from his pants!! There was definitely some kind of developmental brain leap because at the same time, his nursery commented that he was suddenly far more engaged than he had been (though his attention is still pretty poor on activities he didn't pick).

Social interaction is coming but still quite behind. He does enjoy playing with other children but isn't too good at initiating it. This has improved as his language had improved, and I've always been convinced the 2 are linked for him (despite being told otherwise). He's better with them when it's a running about game/hide and seek rather than imaginative game. His imagination has come on but he would never pick that type of game to play.

I am considering giving gluten free another go. We tried it for a month last year and saw no difference. Since then, we've been more 'gluten light', try and avoid it but don't worry about small amounts here and there. Last weekend, DS was shopping with me and asked for a wheat-based cereal. They sometimes have cereal as a snack or after their protein breakfast. In this last week, I definitely feel a brain fog has descended and I'm linking it to the cereal, which he loves. He also is often constipated, looks tired with bags up under eyes, and has very spiky concentration. Thanks for that list Indigo, very helpful. Can I ask, were you very strict about it all the time, or did you allow small amounts on occasion?

Our next big worry is starting school. We are in Scotland and due to his birth date, I was able to defer his school entry by a year. He should have started in August. But, I can't buy him another year and he needs to go next August. Or be home educated, as we have been thinking that through too. I'm putting off visiting schools but need to get it done. I'm concerned that they will just view him through his dx, as that's what all the other 'professionals' do. The problem is his attention is still very poor if it's not something that interests him, and this has been identified as his major barrier to education. And the more I read about home ed, the more I love the idea and think it would really suit him. Not sure what we're going to do yet.

Well, if you've got this far, well done! I said it would be a big one!

Oh, I was going to ask about probiotics. I know some of you use them. Which ones? Robin recommended trying some as DS is prone to constipation. I bought one I found online but wondering if anyone else has a recommendation. Are some better than others?

IndigoB · 01/10/2014 21:10

Hi LooksLikeRain, Congratulations on your pregnancy!

I was very, very strict on gluten / dairy free. The thing with the peptides from gluten (I read) is that they can stay in your body for a long time ( well over 6 months) so I felt we couldn't risk any gluten.

This passage convinced me: "The peptides from gluten and casein are important because they react with opiate receptors in the brain, thus mimicking the effects of opiate drugs like heroin and morphine. These compounds have been shown to react with the brain's temporal lobes that are involved in speech and auditory integration."

this paper is also interesting.

The probiotic our nutritionist recommended is Optibac

IndigoB · 01/10/2014 21:12

August is a long way away. Apply for school when the time comes. And then decide in July whether or not you want him to start.

My kids have now been to 4 primaries, and they have all been very different. So don't make too many assumptions.

I've found the schools to be much better with Autism then with Dyslexia....

There are loads and loads and loads of days when I wanted to HE. But my DC refused to leave school......

Lookslikerain · 02/10/2014 10:41

Indigo thanks for those links. I am going to order some more probiotics and start moving towards fully GF. We have a few gluteny bits to use up in the fridge first, but we'll move into gluten-light until we can go the whole way.

Going GF isn't actually that big an undertaking with DS as he's never been keen on bread/sandwiches, and if we want cake/biscuits, I can bake GF ones. DH eats quite a paleo diet (as did I before pregnancy) so no issue there. The problem is my fussy 2 year old DD. She's not just fussy, she's extremely stubborn and fussy. She's one of the ones that would go hungry and starve! Getting protein in her is a challenge and she would live on carbs. And she was a fantastic eater for the first year after weaning. Sigh.

On the school thing, I think you've been talking to my DH! He thinks we should register him then pull out next summer, if we're not happy. Part of his concern is that he doesn't want us being seen as 'difficult parents'. He's probably right. I feel like we have to put so much trust in the school/teachers that they will actually try and teach DS, not just allow him to opt out. He's very good at disengaging when he doesn't like things, and I worry they'll just let that happen because of the dx. DS tells us nothing about what he has done at nursery so I would have no idea. It is such a huge decision.

Lookslikerain · 02/10/2014 11:04

I've done it! I just phoned our local primary! Someone pat me on the back, please! Smile

Badvoc123 · 02/10/2014 11:18
Anomaly · 03/10/2014 23:49

Can anyone help me with regards to the supplements. DS is on the vegepa omega 3 as recommended and floradix saludynam does he need a multivitamin too?

IndigoB · 04/10/2014 07:57

I can't remember what's in saludynam - does it have magnesium and zinc?

I think you need vitamin b complex as well. Or a multi vit containing lots of the Bs. Especially B12.