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Here are some suggested organisations that offer expert advice on special needs.

Children and Families Bill - CDC blog post

64 replies

inappropriatelyemployed · 26/06/2013 18:28

I am sorry but is this the best they can do?

It is completely unquestioning, pliably going along with the reforms and talking some bollocks about jam or marmite.

I am so glad they are representing parents interests.

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babiki · 04/07/2013 17:08

:) I'm in love with John!

TOWIELA · 04/07/2013 17:57

I am too! Are we sure he's not IE in another guise?

inappropriatelyemployed · 04/07/2013 18:33

No it is not but I think I know who it is!

New thread on CFB on blog now

Help me tweet it

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TOWIELA · 05/07/2013 13:33

Some great new comments on the CDC blog now. Do you think they may sit up and start to take notice?

inappropriatelyemployed · 05/07/2013 13:37

I hope so and I think all who haven't commented should!!!

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uggerthebugger · 05/07/2013 15:39

Sorry, I've been ridiculously busy this week. Have just given it what for down in the comments... Tennis

inappropriatelyemployed · 05/07/2013 16:13

CDC just twitted this an extra £9m for reform piloting. How will that be spent and how will it improve OUTCOMES????

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inappropriatelyemployed · 05/07/2013 16:22

Post on there too??

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inappropriatelyemployed · 10/07/2013 16:53

New uselessly wet response from CDC. I think they have really lost the plot on what their purpose is

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Summerhasloaded · 10/07/2013 17:32

We recognise that as Strategic Partner it would be inappropriate to hold a lobbying role which is why we channel our efforts through these existing mechanisms

Cop-out!

bochead · 10/07/2013 17:53

sounds to me as if they've decided to lobby alright - for the enemy!

All we want is the right to an education to be upheld for ALL children. It's not that complex a principle to uphold for an organisation that goes by the name of "Council for disabled Children".

I hate the fact that people like this earn a living off the existence of children like mine.

inappropriatelyemployed · 10/07/2013 18:00

We can't lobby but we will implement the reforms with them even if they override children's rights and pilots take away statements to implement legally unenforceable EHCPs.

Personally, I think they are either clueless or disgraceful but either way they clearly have little personal experience of supporting a disabled child.

I have posted a response and would urge others to do likewise and speak out.

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StarlightMcKenzie · 10/07/2013 23:29

They have urged me to contact them privately so that a relavent officer can help.

Why?

I'm happy to make my concerns public. What do they think they can do to help and why on earth are they afraid to do it publicly and transparently if it is ethical and honourable?

inappropriatelyemployed · 10/07/2013 23:53

I have had the same from CAF but I have asked them to state their position PUBLICLY on their involvement in these pilots. When I raised the EHCPs they referred me to the DfE but I had to say - they DfE won't be able to tell me what YOU think about it.

EHCPs have no basis in law at the moment so are unenforceable and provide no protection. They are also being used (as the SENCO recently posted on here) to stop existing statements.

Why won't CDC and CAF and all the rest of them taking the 'King's shilling' stand and publicly state their view?

Well we know why.

When I was pursuing SEN DPs and had to threaten JR to even get to apply the CDC did not want to know and were full of excuses about how 'confusing' etc it was for the Pathfinders. Who cares if my son was without effective SLT provision and a LA was breaking the law.

They were then linked into my emails with the DoE when I had given no consent to share my personal information with them at all.

I was asked to meet with them and then they were going to meet with my LA to 'share experiences'.

Of what? Unlawful practices? When I spoke to the CDC person, she listened to me but had nothing to offer in terms of support or anything else.

How on earth was this intervention in my son's best interests? What are they playing at?

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inappropriatelyemployed · 10/07/2013 23:56

This was the same person who sat and said absolutely nothing to support children's rights when a LA Director prattled on in self-pity to a Parliamentary Select Committee about how his LA wasn't 'doing statements' any more because they couldn't afford them

Even Baker Small tweeted - UNLAWFUL.

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StarlightMcKenzie · 11/07/2013 09:59

TBH I'm a bit disappointed in them as I did rate them. One of the biggest barriers for parents is the fact that they are deliberately isolated and made to feel that their story is a personal one, and a one off.

I don't want to have private messages with anyone about it. I want to get it all out their, bring together the issues in an open way. Secrecy and personal favours will not be in the interest of our children as a collective.

It's one of the reasons I rarely do MN PMs.

It's also a waste of resources for any charity to have the same conversation with thousands of individual parents.

Get the information out there. Get it accessible. Share it. Knowledge is power and this power should not be owned by Local Authorities OR charities.

bochead · 11/07/2013 10:06

When I can I'll do whatever it takes to break down that culture of isolating parents. It's their single biggest weapon against us, and I'm so angry that it enables them to rinse and repeat the same immoral, illegal practices time and time again against the most vulnerable members of our society.

A society that refuses to protect disabled children cannot call itself civilized in any sense. An industry that takes public funds & knowingly uses those funds to cause damage to those children, needs to be totally dismantled and rebuilt from the ground up as a matter of the utmost urgency.

TOWIELA · 11/07/2013 10:09

I agree Star - I'm very disappointed too as I had a business relationship with them many many moons again and they really impressed me then. But they seem to have now disappeared up their own backsides.

One thing they, LAs and the government have totally under-estimated is the power of the internet and in particular the power of social media. Social media (whether that be here, blogs, twitter etc) means that finally parents can have a voice. If we make enough noise then we will reach more parents.

Tbh, I don't think it is a waste of resources to talk to thousands of parents. As I said on their blog, 23 years ago I was involved in project which did exactly that - the NCB talked to thousands and thousands of disabled parents about their experiences of parenting. The result of that intensive research was published and did considerable good at the time.

StarlightMcKenzie · 11/07/2013 10:47

might have gone too far.

TOWIELA · 11/07/2013 11:05

Not at all! It is about time truths were told

I wrote a comment a couple of hours ago but they haven't approved it yet (funny as my 2nd comment was auto-approved)

Is there anyone reading (lurking Smile ) on this thread who could leave a comment? As IE says, lets make some noise!

Summerhasloaded · 11/07/2013 11:47

My post Disillusioned parent took 4 days to approve! I thought it had been censored!!!!

StarlightMcKenzie · 11/07/2013 12:11

I'm not getting why they can't lobby either. Has the government bought their tongue? Does their constitution no longer include aims for improving the lives of children with disabilities? Maybe it never did!?

TOWIELA · 11/07/2013 12:18

Playing devil's advocate here (don't shoot me down!)...

Perhaps they genuinely don't know? Perhaps they totally believe that LA act legally and morally and always totally follow the Education Act and the SEN CoP. Because, lets face it, parents are so afraid that speaking out publicly will have repercussions on their children, that we are all secret. No real names are used. No real cases are quoted.

StarlightMcKenzie · 11/07/2013 12:24

I dunno TOW. I'm easily enough identified. Both my old and new LAs knows online name as well as the DWP - the benefit fraud team told me they had hacked my computer and were monitoring my posts (yes really! Hmm)- and now quite possibly central gov too.

TOWIELA · 11/07/2013 12:31

It is terrible what has happened to you. But that's the 'system' who has done this to you - the faceless public servants sitting in their ivory towers of nonsense. Maybe a children's charity needs this harassment pointing out to them in no uncertain terms?