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TINSLEY HOUSE SUPPORT THREAD - PART 3!!!! :)

998 replies

Badvoc · 05/04/2013 08:55

Well, here is the shiny new thread for all of us either doing the TH programme, doing part of it, or thinking about doing it! :)
A brief synopsis of stage 1 of the programme can be found in the books "is that my child?" Or "the brain food plan" by robin pauc;

Stage 1 of the TH therapy consists of:

  1. Daily Multivitamins
  • Omega
  • Zinc & Magnesium
  1. Healthy eating
  • High protein, low sugar, no artificial sweeteners, additives etc.
  1. Specific neuro development exercises done 3 times a day
  • Takes about 4-5 mins

And that's it :)

Stage 2 involves computer programmes to sort out eye tracking and convergence which over 80% of children with reading/writing problems have.

  • www.engagingeyes.co.uk

We are coming to the end of our time doing TH I reckon...certainly by the end of the summer I think. It has been in many ways much easier than I thought at the beginning but of course takes commitment and time.

I am so glad we "took the plunge". It has made such a difference to ds and to our lives :)

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DaftMaul · 12/05/2013 21:36

Ruggles - sounds all good. What is Richard Scarry?

At long last we have moved on and started Lumosity today - yay! He seemed to enjoy it this morning but lets see how he reacts to doing it after school all week!

notapizzaeater · 12/05/2013 22:27

Evening,

Can I ask what magnesium you get ? bought some from Asda and DS is really struggling to swallow them (this from a boy who can put 10 tablets in his mouth and swallow the lot) They seem to start disolving as soon as he drinks then gets stuck ??? Ive had a quick look in boots/superdrug and they dont seem to be coated and look the same size

CalicoRose · 13/05/2013 06:00

NotAPizzaEater - I've recently made an exciting discovery. Berroca contains everything you want! Magnesium, zinc, Vit C and Vit Bs.

Very excited about this. My kids don't like the drink but there is now a tablet Berocca which they will take.

Badvoc · 13/05/2013 07:47

I get my mag zinc from holland and barrat.
They are quite small white tabs.
I got them from biocare before but they seem to have stopped making them?
Calico...do watch the sugar content of Berocca!

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CalicoRose · 13/05/2013 09:31

No sugar in the tablet you swallow.....

DaftMaul · 13/05/2013 09:36

CalicoRose - I also think that berrocca has aspartame in it which should be avoided at all costs.

Badvoc · 13/05/2013 09:52

Yes, additives in any form should be avoided.

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CalicoRose · 13/05/2013 13:23

Berocca Tablets

Sugar Free
Additive Free

Magnesium 90mg
Zinc 9mg

notapizzaeater · 13/05/2013 13:25

How much magnesium do you give them ? The tablet he cold swallow was 400g - would he need 4 berroca ?

PrinceRogersNelson · 13/05/2013 13:25

Hi al.

Ruggles - that is great that you are doing so much. Do you have trouble fitting it all in! That is a lot to achieve in a day. I must admit we find it hard, but are only doing chair, stairs and hemi -P

How long have you been doing TH? I can't remember.

DD is good. A bit tired and under the weather. She had speech therapy this morning and she said that DD is making remarkable progress.

DD is watching CBeebies and then I ought to do some of the darned exercises. She has been pushing back a bit recently and I need to take it slowly so she doesn't refuse altogether.

Ruggles · 13/05/2013 13:47

Hi Prince - It is lots and I felt a bit down about it the other day, but have gathered strength... (Thank you Badvoc for helping me along). The exercises don't take that long but we do have to be organised... DS has been doing TH for 6 months and DD for 4 months. DS had a bit of a wobble about the exercises a couple of weeks ago - he was still doing them, but not concentrating and being a bit silly etc. We've introduced a sticker chart which has all the daily exercises listed (so 3 lines for chair) and everytime he does an exercise well he gets a sticker. When he gets 40 stickers he gets a treat. So far its working really well (fingers crossed) so I've added in being kind and thoughtful - every time I catch him being 'good' he has another sticker. I can't believe how much better this is than doing it at the end of the day. Hope she feels better soon.

Daft - were using Richard Scarry as junior version of Where's Wally. DD is 2 so needed something simpler. I try to do her speech therapy at the same time but it doesn't always work!

Ruggles · 13/05/2013 13:59

Prince - forgot to congratulate you on the speech therapy progress. I think TH helps so much with this. DD has her speech therapy review on Wed and I hope they are pleased too. Smile

Badvoc · 13/05/2013 14:13

Great news about the salt prince.
Glad you are feeling better ruggles.
My turn for a wobble now!...since Tom has come back from his school trip he has been a bit lost/forgetful/not quite here iyswim?
I know he is shattered from the trip, and not following the diet as strictly (and found out yesterday that pils have not been following it with him either!! Angry) and not having his supplements, but it's a reminder of why we are doing what we are doing.
Felt quite cross with him yesterday...I asked him 4 times to do something and he just stood there with a dazed look on his face :(
Anyway, we are back on the diet, back on the supplements so hopefully he will perk up again.
Good news about the Berocca tabs calico. I rather like the taste of the drink! :)

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harrietv · 13/05/2013 14:19

Ok, it's Monday and he's at school so I've got a more positive spin on this at the moment. But my god DS was a HORROR this weekend!
Short fuse/tempers are not unknown to us - he's so sensitive and likes routines etc so blowups are always simmering but we have been making gradual improvements to handling himself and learning calming techniques over the past year or so. But what started with not wanting to leave a friend's house on Friday after play date, expressed by whacking me (urgh!)....developed into the most cheeky, lippy, defiant behaviour on Saturday. And he was SO grumpy all weekend.
In desperation I was pouring through the old TH threads and saw others have seen bad behaviour/cheekiness appear too. Tell me it passes and is the sign of great things to come!!!
I can see that maybe cheekiness and smart-arse behaviour could be seen as positive since it's new! Not so nice to live with though! Maybe it's like the terrible twos and we have to get through it to let his personality out!
On the plus side he dealt with a very confrontational boy who has terrorised him the past as DS is always so submissive, much better and did kind of put him in his place a couple of times at a party on Sunday. Again out of character so that side was good to see.
Mainly I am able to keep calm and think either a) he's coming down with something or b) it's change, and all change is good. But a little part of me thinks, as I dole out the supps in the morning, "What kind of a monster am I creating"!!!
Confused

PS Ruggles - look forward to seeing how you get on with Engaging Eyes. DS making progress. Still a bit headachy though. Finds it a chore but really wants to do better each time which I'm glad to see.

DaftMaul - glad things are moving on well for you :)

harrietv · 13/05/2013 14:41

oh and i've missed a load of posts since I last refreshed! Badvoc I'd say the lack of sleep on a residential school trip would make even the most NT child spaced out and in need of some downtime - so don't worry too much (easy to say when it's your DS not mine!!) I'm sure he just needs to get back to routine.

and I agree - it's SO hard to squeeze all this stuff in around school and homework. these 10 minutes here, 20 minutes there add up when you're supposed to do reading, homework, paino practice (yeah...right), actually have a bit of fun and downtime, eat, bath.....cook fresh meals all day every day! hoping it will become routine soon!

CalicoRose · 13/05/2013 14:45

NotAPizzaEater - The Recommended Daily Allowance (RDA) for magnesium ? Age 1-3yrs 80 mg, 4-8yrs 130 mg, 9-12yrs 240 mg.

So Berocca doesn't contain quite enough. The other thing you can try is Osteocare which provides more mangesium - but then you'd ideally need to also give him Vit C and a B Complex as well.....

Congrats to everyone who's persevering and seeing progress.

Badvoc - don't wobble. Tom's doing brilliantly.

Badvoc · 13/05/2013 14:52

Yeah, I know :)
Brought it home to me how far he has come really.
He is very tired - only 2 more weeks til end of term here thank goodness!

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DaftMaul · 13/05/2013 14:58

CalicoRose - sorry to bang on Grin, do a bit of googling about berrocca. The film coated tablets look to contain mannitol and poly-dextrose which I think are artificial sweeteners - hence why they can claim they are sugar free.

Basically, anything 'sugarfree' and sweet will have sweeteners in.

PrinceRogersNelson · 13/05/2013 17:40

Ruggles - did you say you were taking your Mum with you to see Robin this time? What did she think?

Ruggles · 13/05/2013 19:49

Prince - she was very funny. All the way there she wanted to know what would happen to DS if we didn't 'persue this' and what support would be available from a state school (DS in private nursery). What exactly is wrong with him? Who says so? etc etc Then we moved onto DD and had a similar lot of questions - all very nicely put but made me gggrrr. Then she asked if it mattered that they don't join in at parties and nursery etc. Apparently a little girl (whose Dad was in Shawaddy Waddy- yes really..) used to come to my sisters parties and refused to join in and lay behind the sofa. She is a company director..... She said I bet he wasn't doing all this stuff every day as he was too busy with his band... I resisted the urge to chuck her out of the car Grin Grin

Once there she really liked Robin and we had a goodish chat about it all on the way home. But then when we got home she told my Dad that DS was very over-excited and that it was Robin's fault as he was made him laugh, whereas at school they won't do that.. and so it goes on...

Ruggles · 13/05/2013 19:55

Harriet - it will all become part of your day. I think the first bit is the most difficult whilst you get into a new groove. We did our first Engaging Eyes exercise tonight - it looks great and DS was very keen - fingers cross it lasts, as he did wilt when we got to level 3!

Lookslikerain · 13/05/2013 21:39

Hi everyone. Haven't managed to get on recently. We've had a painter in the house last week and this week, my family have been visiting and my lovely DD hasn't been sleeping at all well.

We had a Skype with Robin just over a week ago and it went really well. He was pleased with our progress and the improvements in DS. We're now doing the Richard Scarry book as well as stairs and chair. He quite likes doing the hemi P. I described it as doing work on the computer like Mummy Pig does in a peppa episode and that seems to have stuck! He's still improving but it's baby steps, and like you all said, it's creeping up on me rather than being huge changes from day to day. His nursery place has been confirmed for August so I feel like I'm working towards that too.

prince - I'm glad your lunch date with friends went well. We haven't had any of those kind of problems with people we know, but I do notice the differences between DS and his friends when we meet up. I'm convinced when his language comes on a bit more he'll start to interact more with other children. DH and I think he's doing great and celebrate new things he does, then I realise that most parents don't celebrate the small stuff as they don't have to work for it like we do. Having DD also shows us the stuff DS didn't do. She's just started picking up something like a brick and pretending to eat it. Then she'll offer it to us to try. It's very cute but I now know he didn't do that. I feel like the innocence has gone as I'm kind of waiting to tick off all her milestone developments. Sad

Your DD sounds like she's doing really well! You must be so thrilled! Wrt to the exercises, and it might not work for you, but I try and do things like getting DS to do a spinning chair with his favourite toy before he does his go. Or (very occasionally) he does a spinning chair with me first then he has his turn, but it totally makes me want to vomit and he doesn't spin it very quickly at all! Just helps to keep it a bit more fun and less like a chore. Would that help?

ruggles you sound like you have similar problems with your mum as we have with my Mil and Fil. They love DS so much and think he's so perfect, and therefore can't see that anything could be wrong with him. They make excuses for the stuff he isn't doing that he should be, like having a conversation with them, and make his 'quirks' into 'normal' behaviours. I find it quite tiring.

badvoc don't wobble! You all picked me up when I wobbled a few weeks back and you were right. You and Tom have come so much further than us so think of where you started and the amazing progress he has made. You can see the light at the end of the tunnel now. You're so nearly there! Chin up for the last bit! Smile And I'm thrilled for you that he loved his trip away!

harriet I'm interested in your pancake recipe... Was it just a normal pancake batter but with an extra egg and a banana? Was that the large, thin type of pancake, or more your thicker drop scone type? I'm always on the lookout for new protein breakfast options for my egg refusing son.

Fingers crossed for an improvement in the weather. We had hailstones today though we are in Scotland!!!

shoppingbagsundereyes · 14/05/2013 12:29

Lookslikerain, I know what you mean about the milestones. With dd I'm always on the alert, constantly paranoid. Had convinced myself she had dyscalculia (sp?) when she was 3 because it didn't matter how much I waved a 3 at her she couldn't remember it was a 3 despite being able to count things beautifully. Of course she is perfectly fine and can recognise all her numbers now.
The other day I was reminded just how NT she is when we were leaving the swimming pool. As the automatic doors opened a little girl on her way in said 'wow'. Dd turned to me and completely unprompted said 'that little girl has never been here before so she was surprised when the doors opened all by themselves'. Ds would never have noticed anyone else at that age (still doesn't much) and certainly wouldn't have had the theory of mind to work out why she said 'wow'.
I do think though, that in a way, having one child with development delay allows you to celebrate the small things more for both dcs iyswim. We are grateful for little thing that ds and dd do that other parents would take for granted.

Badvoc · 14/05/2013 16:12

Tom has a sore toe.
It's looking a bit manky so i do my usual...savlon and a plaster.
I ask him if he hurt it in his trip or dropped something on it.
"No mum, it's because my shoes are too tight"
Arghhhh.....!
Why didn't he tell me!?
Men! (And boys)
:)
Weather here is rubbish. We had hailstones yesterday too lookslikerain and ds2 was very happy watching them bounce off the trampoline :)
I second what shopping says...the fist time ds had his hair cut without crying/major anxiety. The first time he had a shoe fitting without kicking the poor show fitter. The first time he realised he could get to sleep on his own. They dont sound like much to others I am sure, but to us were momentous because it meant another jigsaw piece had been put in place for ds.
My ds2 is also far far more advanced than Tom was at the same age (4). He can write his own name, count past 20, write numbers to 20 and is very articulate and clever.
It is bitter sweet sometimes.

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notapizzaeater · 14/05/2013 19:40

Has anyone been to the other tinsley clinics ? Lincoln is a lot closer ....