Gastrostomy support thread no.2! Tubefed children support thread

[Isitme1]

Welcome to thread no.2!!!

Everyone sign in please so we all know who is here

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OF s friend cheated on his wife. He moved out to be with gf. OF was housesitting £1 million house (which wife still lives in) while she is on holiday but is being sold because of divorce . OF was with cheating friend and gf while house he was supposed to be look after was 'alarming'. next door neighbour phones wife in a foreign country. wife phones me. i cant phone OF because of his crap phone. I phone wife to ask for exs phone number (embarrassment for me) where OF is finally tracked down having dinner with them. The idiot left the dogs roaming who set off the alarm. Don't think wife will give OF references so there goes a job opportunity and a week of peace and quiet for me .

Sounded mean of me as OFs friend is a lovely man (and a posh doctor) who fell in love with a nice woman after being unhappily married for years...Ahhh (should be in relationships section )

All that was for isitme, who has baby brain and is sorry she asked

I never knew you could buy baby gaviscon? Might be an idea for the elbear in the mornings. I think a lot with him is psychological. "Giddy...el hasnt been so oiky today"....retch..retch

Riiiigggghhhht I think I get it.
Baby gaviscon costs 4.25a box which is good.
Hes not fighting feeds anymore

Granny ot aren't involved. Glad you are getting 5days soon!!

Ds1 lost weight again. He looks awful.
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How is everyone

Phil and teds do a good double buggy. You can get some used ones in really good condition off eBay.

Does ds1 like his baby brother? Ell loves booboo and if he is upset about something we plonk booboo on his lap and he is all smiles . Maybe ds1 is eating less because of all the upheaval you get with a new baby?

Booboo has no trouble putting on weight he is like a tank! El also has gained weight and looks nicely covered with his BD.

Ds1 has just gone off food. He was doing ok then suddenly nothing abd now slowly we've managed to get him to eat small amounts.

I like the hauck duett. Looks nice. Not too bad on the pocket for q new one.

The mima kobo is amazing but 1250!! Used one on eBay for 500. Buut I can get hauck duett for less thsn 300 with rain covers and foot muff
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Ooo just weighed myself and im 3lb of pre pregnancy weight! !its still a high number but im happy that what I gained in pregnancy is nearly gone
Definitely going to carry on breastfeeding lol.
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Heelllooooo x

We're all off on holiday for a few days so pretty busy but all OK. El used the toilet x 3 today

going to be a shame to start school and toileting goes by the board til they sort equipment out. it is a bit too much though for the school when they have everything else to adjust to so we are ok to leave it a while.

weighed today for dietician and was 17Kg! On 25th centile for weight. Amazing blended diet

booboo is constantly described as a 'big baby' so breastfeeding is def good stuff!
xxx

Well my friends I am not dead
Life here manic, 3 yes 3 appts this week hospital 25 miles away but have survived, only 2 next week Ben has Vagal Nerve Stimulater on Thursday, What this is to do with feeding god only knows but thanks for listening.

DGD hope you are all OK and DGGS's are doing wellish.
Love to all scallywags XXXX

Hope you enjoyed your holiday

How were the appointments granny? Ds1 is well abd ds2 is sickly.
Gp wants to wait until 6-8weeks assessment to decide what to do regarding reflux.

How are you granny
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Been hectic here and had such a lovely holiday

Elliot started school this am and a minor disaster. Went off good as gold and had a lovely morning, but jess had to come in to set the pump up with the dreaded formula. He was OKish when she left but when she came back he was screaming the place down not sure why. Maybe the children left the room and left him with this strange woman! (his 1to1 who is lovely but a stranger) Anyway he puked all the formula down his new uniform because of the crying and some parent said 'oh someones having a paddy' Jess didnt kill her, mores the pity! Time she got to the car after cleaning him up, booboo was screaming and hot, she fell up the stairs at home and think she's broken her foot....I'm sure not she's such a drama queen....

Tomorrow is another day

OF got a £100 M&S voucher for housesitting which he gave to me so i've decided it all goes to good food for elbear's blended diet
xxx

Awww poor el.
I absolutely hate when dscis judged like that feel like saying to the bastards if you was in his position youd fucking scream the house down!
Ds1 is constipated again (a lot)
Hes had the duclax (pico sulphate) and liquid paraffin but nothing he keeps screaming when he tries to go and its just over flow

The double pram came today so far loving it and the boys do too

How's jess' foot?
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my foot is ok not broken but still painful especially when mum poked it will have a cracking bruise!
much better day at school today had ti go in to do the pump again but no crying when I left and I went to yhe front of the cue for pick up so could sort hin out first no puking but I did drom the volume of the formula down to 100 mls over an hour so not as much as he usually has but at least something and it stayed down first full day tomorrow without me going in either what am I going to do with myself?
poor ds 1 is isitme could you give a suppository maybe make it softer for him to pass?
love to you 2old xx

Spent about 7 hours over the last 2 days cooking blended foods...shattered but have about 45 200ml pots to be going on with. Peg nurse was very hopeful about doing BD in school once the button goes in...Yea!!!

I agree re the suppository.

What a good granny you are, I am really impressed but did think you were a bit unsympathetic about poor Jess's foot
Hope Elibean had a good birthday and hope school settles down soon but it is hard.

Well DGD how are you and my DGGS's. I much prefer suppositories gets it over and done with without a lot of belly ache.

Well I packed my 2 off to school yesterday their poor wheelchairs were piled high with equipment wheelchair services would have a fit with their legs in the air.
Ben's Vagal Nerve Stimulator was cancelled as surgeon ill but rescheduled for the 19th

Love to Giddy and boys. hope your foot is better

XX

The foots fine, a bit of a bruise....cobblers children and all that

How typical of the cancellation. Your child is well and the drs unwell!

xxx hugs

Well both boys awake after a promising start to the night, how can I keep el asleep? He wants to be asleep as he upset with himself for being awake, but can't drop off again. He's always been the same, thought it might get better with being worn out with school, but no.
Oh well, another day at the MIL to look forward to. I'd rather paint my hall!
At least school was much better after Tuesday, after initially liking the hoist he decided that he didn't like the pole thing. He'll get used to it I'm sure.
Alex is getting a bit vocal now and wants to sleep so night night xx

Hope eli had a good birthday.

its ds1 birthday next few days.
Havr been debating on whether or not to get ds1 the rota virus vaccine done privately so we don't have the same problem with leaking as last yr.
Its 100×2 for the vaccine. What happened last yr was he caught the virus and he then lost weight which meant his site became loose around the peg anf he lost weight.

Do u remember how long I had to fight and struggle to get jt sorted?
If we can prevent him losing weight then hopefully we can stop a leak

Oo I had some spare movicol still in date so im using that
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Ds1 has been on movicol for 3 dayd now.
Started on 3 sachets
Then 4
And today so far hes had 5 and will give another soon
Anf still nothing exciting except overflow.

If he wasnt constipated it would give him runny poo soon after having it but nope.im at a loss as its his birthday in a few days and I dont want him to spend it ij hospital x help :(

Have you tried a glycerine suppository, they are brilliant at getting the lower end working Jayboy often needs both;

A day of exploding colostomy bags not nice but DGC thought it amusing little rats

Take care scallywags
XXX

I know theres no way I will be able to get him still enough to do that he would riggle out of anything.

He still won't let me brush his teeth due to the aversion and stops eating when I attempt to do so. Imagine the damage id do if I tried that
X :(
Going to ring dietician tomorrow see what she says.
Last time she said if you add more fibre it will initially bung him up more which we don't want.

Ds2 is sickly plus very runny poos so im thinking cmpi??
Ds1 has it mildly but we want him eating normal food and as he eats very little hes not exposed to a lot. His feed is pre digested milk free feed.

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Asked dietician to check past letters and they said
'Endoscopy shows possible cmpi'
And blood results show the same too low iga is a sign.
And yet she didn't say anything about it before.
That to me is enough to say he can't have cows milk and soya.

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How is everyone x

Some babies are given roto virus routinely with their baby jabs. Have you checked at your GPs/HV? We know what its like to pay privately for jabs...so expensive.

Your poor little DS I don't know anything about food intolerances or reflux. Luckily we have been spared the gut thing.

We are all OK now. So odd with DGS at school am wandering around like a lost sheep. Lots of things to do but I am a but about where to start.

take care xx

They offer it at 15 and 20 weeks or something like that.

I just know how ill he will get. Hes started wirh the mucus stringy overflow again sorry tmi.
Ive found that readu salted crisp are fine for him to eat. Found a wonderful website last night with lots of ideas for food.
Hes had no breakfast but os currently eating crisp sat in bed lol.
Waiting for gastrics to ring to see what theu want doing.

Jabs are very expensive!!!

Aww its almost weird having 'spare time' once dc are ay school/nursery. You just kind of like sit there feeling like your missing something lol

Hows jess' foot?

Im sure I saw a post from gali here somewhere? ?
Wheres tooloud got to again?
Granny where are you?

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Jess foot is fine, it wasn't broken

Elli loves school and all the children know Elliot by name and fight to sit next to him

OF had the central heating on when I got home. Hahahah all those years of turning the thermostat down and moaning about the fire being too hot. I seem to be warmer that him lol.

Have done loads of cooking for blended diet. Elli has oats muesli, seeds, honey, and blueberries blended for breakfast as blueberries boost brainpower! Hope it works for school ,

Welcome to Vomit Villa
Annabel puking for Britain only Diarolyte since Monday but still manages to puke so since lunchtime introducing diarolyte at 10 mls/hr and increasing slowly now on 50mls/hr so fingers xed.
Had to cancel Jay's appt at Nottingham due to this.
3 Oldest at friends house because of appt and still wanted to go as Liz does better wraps for packed lunches than me

So glad Elli loves school and for blended diet (show off)
Glad Jess foot ok no thanks to you oldsneeze she had more sympathy from me and I am a hard hearted bitch

DGD hope things are OK for you, have searched my brain and I remember LO's with CMPI and we fed them a feed of Commuted Chicken (it was revolting) but it worked....Just a thought Love to my
DGGS's XXXX

Goodnight may we all sleep well (hope all Scallywags are listening)
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