Gastrostomy support thread no.2! Tubefed children support thread

[Isitme1]

Welcome to thread no.2!!!

Everyone sign in please so we all know who is here

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I've ordered an expensive blender (not the famous £500 Vitamix) but still £240 to blend DGSs food better and easier. They have shipped but not charged my credit card....so I have been honest and informed them My halo is still straight but i did consider waiting to see if I got away with it LOL!!

Hi saintsneezecakesmum AKA Oldsneeze Are you sure we are not related. Pleased to hear about super-duper blender

Sorry to hear poor little elibear has to see urologist as you say haven't these children got enough What are you hoping for part from nothing!!

Hope all is well Manic here
xxx

That was nice of you sneeze.

Hope all goes well with the urologist.

Ds seems to be put off food atm.
Hes literally eating crumbs.

ds1 birthday soon need to start thinking about presents.
Really need double pram but dh just can't see why.
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Bugger it. El needs an OP. only small and one day but a week to recover I think as its to descend his testicle, so it'll be sore in his chair with his extending. Also waiting for mini button fitting. Won't look good on school record all that time off. Typical but I guess it's not major so got to thank blessings in that way.

Isitme. You need a double buggy! Phil and teds are nice but expensive but lots of used ones on eBay.

I think the overnight feed el has makes him more pukey in the day. Will experiment with a DIY blend with goats milk and almond milk.

Xxxx to all

DGD
Re double buggy years ago if you a child with a disability that should be walking and you had a baby wheelchair services would provide you with a double buggy. Am seeing OT tomorrow and I will ask her.

Oldsneeze sorry about El could they not do the 2 ops together Annabel had her PEG changed when she had her colostomy done. Just a thought.

xx to all

I could cry, poor el, and his little boy bits, it's just one thing after another the ops are in 2 different hospitals so can't be done at the same time.
Still having a few wobbles here, bad week last week, hoping to feel better soon.

When Alex was brand new before 7 weeks as I remember telling FIL Elliot kicked Alex in the head whilst I was feeding him, I think it was mostly an accident but who knows.
They are good with each other now, just the occasional squeezing going on but nothing major.

I've carried on the trend of missing all of Alex's firsts, (smiled, giggled, rolled front to back all for mum) and this aft rolled back to front whilst I was with el at hospital. I think she shoved him over personally as he's not done it since!

Oh Giddy I could cry for you But hang on in there please
We were so lucky Our beautiful boy Stefen needed surgery and our brilliant surgeon had a "paper" morning and drove 60+miles to our "local" hosp to put a central line in and jej It still brings tears to my eyes.
Keep your chin up it is a bad spell that will hopefully pass.
XX
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Aww giddy I hope its straight forward and not too much faffing around.

Granny did you manage to find out?

Sneeze hope your ok too. .busy busy busy with 2 boy's lol.
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DGD XXX
Will post tomorrow you are all in my thoughts XX

Have (i hope) put some pics up of the boys triking....yes I know alexibooboo is only 4 1/2 months (bad us)
xx

Nope sneeze think your profile is private xx
Thanks granny x

It should be straight forward hopefully.
I just hate him going into hospital, and to go in twice for 2 general anaesthetics its just crap.

But in the good news front Alex rolled over again, and not to be out done Elliot did a wee in the toilet

Hope everyone is well xx

And then did another wee in the toilet

profile is up the spout again

2 pics are there now but unable to enlarge them.....o its all tooo much!

WOWEE FOR A WEE

Sour grapes wish it was us.

Love to all XX

Aww bless the pics are lovely! !
Alex is looking well and el is too!
Well done x

Just give ds1 some breast milk. For the 1st time since he was 3days old. Straight down his tube
Ds2 is a lil chunky monkey lol. Hes nice and long too.

How is everyone
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Nothing much here. alexibooboo rolling both ways, elbear peeing 3 more times on the toilet despite trying to hang on to it....a very funny little boy with CP trying to cross his legs lol!! Couldn't resist DD pushing on his bladder, she says I did that to her

.....pause....me answering phone..........!!!

Old fart is supposed to be house sitting but has buggered off to his friends for a meal. Said house's Alarm is going, home owner texting my home number from abroad somewhere, me having to phone her (at cost) asking for her ex's number (said friend is the ex!!! gf also at said meal ), me ringing ex and asking him to get OF back to his ex home to sort out the bloody burglers faulty alarm. Twatty OF of course has an even twattier phone which he never answers...I am very irritated on behalf of betrayed STBX wife who has entrusted her £1 million + home to an OF who consorts with her ex instead of looking after it!!! Should I put that in AIBU to be very irritated with him on her behalf??

Oldsneeze I think your OF beats mine so you ?win

Pleased about Alex peeing in the right place.
Life here on coast teeming with Grockles who stand in the middle of the narrow pavements so have to push wheelchair on road (carnival week too)

Hope all is well
XXX

Didn't quite understand that.
Will check in the morning when im not half asleep

Who me or Oldsneeze?? We are both barmy

xx

Grockles??, I've not heard that before but I like it

And she did push my bladder when I was little, especially hen we were heading out," do you need a wee" " no mum" crossing legs, being absolutely desperate, but also too lazy to go upstairs to use the loo!

No granny oldsneeze.
Whos ex did what? Must remember to read during the day lol

Ds2 is very refluxy like ds1 was. He was starting to refuse bottles. Bought him baby gaviscon which is helping a lil will take him to gp too
How is everyone
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Grockles are bloody holiday makers who stand round dithering and block aisles / pavements, bless them we would not exist here without them
What a wicked mother you have Giddy I hope she does not still do it!!

DGD all my home growns refluxed but stopped once they started solids but we started them so much earlier in the "olden days" Had a good friend who started her DS on Weetabix at 3 days but he was 11.5 lbs OUCH. How is DGGS 1 have you sorted out the double buggy yet, I spoke to our OT who suggested you spoke to your OT as some authorities will provide one.

All well here it has been a long hard slog this holiday as no respite since 2nd July and am knackered but both have 5 nights from tomorrow.
Both at school holiday club today £20 each plus 120 miles driving. OF has taken them I am supposed to be doing housework

X to all