just popping in to say goodbye and good luck

[devientenigma]

Hope everyone manages to get what they need out of life, services, education, therapies for their kids and their families.

Good luck, stay strong x

Where are you going?

deviant what's going on - usual crappness of life or something else?

please don't go, stay here and let us help support you?

Don't you dare go!

devient...I'm testing something, then I'll post properly (it's Lougle)

Ok, I'm back.

Devientenigma, I'm not going to tell you not to go, free country, but I will miss you if you do, and I for one would like to know what we can do to make this a place you feel comfortable in.

You matter, and your DS matters. It might not feel like that right now, but to me you both do.

I'm posting on the thread in Site Stuff, btw - I just did a test about the visibility of SN:Children, and although you can find SN:Children on the Talk menu, if you haven't opted in to SN, you can't see SN in the list of active convos. That's why I posted as Optin just now. I posted on your thread, then clicked 'active convos' and it didn't show up. When I logged back in as Lougle, it showed up.

I will be sorry to see you go, devient.

and more than that, I am sorry that I haven't been able to help more - eithr time wise or solution wise.

I hope you manage to find a solution (even if only a partial one) for you and your ds.

I will be sorry to see you go too devient.

I really hope nothing I have done or said has made you feel marginalised or patronised on here.

I often feel useless that when you post in real need of support I can't offer any advice, but the truth is you know far more than me about services (or the lack of) and what should be on offer but isn't or is but you can't access etc. I usually opt for letting you know that I do care, but choose not to offer any advice, precisely because I feel it would be patronising of me to even begin to think I understand what you are going through and offer potential solutions, everything I can come up with is something you will already know, have thought of or tried.

I wish I could be more help.

If you do go/have gone, I wish well for the future and hope that somehow, someone starts listening and and giving you the support you need for ds and your family.

I am really worried now

Was it Devient who said she felt like parking her car in a river with her and her Ds inside the other day.

Devient if it was or wasnt you please dont do anything without talking to someone first.

Yes. Devient often feels like that though, which is why it is a shame if you can't stay here Devient.

I suppose lots of us feel that we are there for you when we aren't really, because we read your posts, are in awe of your strength and largely think 'gosh that just sounds shit', but don't post that because it sounds so unhelpful and we are largely solution finders. When there appears to be no solution it makes me feel like I have nothing to offer, but perhaps an acknowldgement is important all the same.

What do you think dev?

I hope you are right star

Dev - come back. Please let us know you are ok.

That's what I was thinking @Ineed - and I too Star hope you are right.

Dev - stars much better than me in that she honk for you on your threads - I've been on this board and it's only now I'm feeling I know a little bit more that I can comment on other peoples threads - most of the time I feel stupid or saying things that are so basic that they're insulting. But I read your threads and I think of you. Maybe you could just come on and honk so we know you and ds are ok

dev Where are you going?
Please let us know if you are all right.

I have pm'ed deviant. I really hope she is ok.

She's fine, chatting with her on FB now.

Phew

I am not normally easily panicked but she was so down the other day.

Say hi to her

Here, here zzzz.

Iceflower - glad to hear that!

Phew! Honk via FB

thanks Ineed for the lovely message and prompt to look back at my thread.

Star is right, although I feel like ending it all at times, I wouldn't, as for being strong, if only.

and Ice randomly making sure I was ok

There was just a few things in a few different posts that got me thinking, I don't have anything useful, how can I when our life is so fantastic. Then I thought how can I look for help when the very people who should be helping are too busy arguing amongst themselves and haven't been able to help in the last 11 year. And if there was a way of helping DS then surely we would of found it by now. I also see people with similar issues to us, who have moved on and progressed, yet we are still battling, not that I don't want anyone to progress just do wish I could find the way of moving DS on.

I just feel I am a name people avoid and wonder why. I'm not that bad really. Just makes me feel more alone than what I am already.

Maybe I'm just having a woe is me day. As for the meetings, I didn't go to Tuesdays meet but the home tutor and DH did. They did not like what was being said and counteracted it. So the meeting got ended. Due to this, when the social worker found out, she cancelled Wednesdays meeting.

DH hospital appointments went well, however he is now on insulin for his diabieties, can't even spell it lol, anyway it's brought loads of meldowns from DS who doesn't like DH injecting himself.

Anyway to clarify all this, I am still here xx

I dont think people avoid your threads on purpose Deviant,

As someone said up thread, I look at your posts sometimes and think What could I possibly say that could help this person.

I think what you have said today will make us all think and at least post something, even if we have nothing useful to say.

Glad you are still here