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Here are some suggested organisations that offer expert advice on special needs.

just popping in to say goodbye and good luck

38 replies

devientenigma · 14/11/2012 09:40

Hope everyone manages to get what they need out of life, services, education, therapies for their kids and their families.

Good luck, stay strong x

OP posts:
KOKOagainandagain · 14/11/2012 18:22

So glad that you are still here - the importance of loose ties - I have grown familiar with you (if that makes sense) and I don't just tolerate you, I like you and I admire you. Smile

Sometimes it can feel like this is a close-knit community and you are on the outside. Sometimes we can seem 'sorted' but we stop communicating when we can't fake it. Sometimes we can feel like we are boring others with our constant misery and pessimism/realism resulting from day to day experience. Sometimes people don't know how to respond to our posts and stay silent/invisible in a textual environment. Sometimes we all feel crap. That's OK. But we care and so we worry and check on you and that's better than OK.

Welcome back Smile

Iceflower · 14/11/2012 18:57

Ineed is right. Quite often I read a thread and can't think of anything useful to contribute, usually because I don't have the experience or expertise, or because someone else has already said what I would have Smile.

Perhaps I should post a "honk" in future Grin, if that wouldn't be too trivial.

Glad you're still here, devient

EllenJaneisstillnotmyname · 14/11/2012 19:07

Honk for you, Dev.

moosemama · 14/11/2012 19:28

Glad you're staying Dev, as KeepOn said I am used to seeing you around the board and am genuinely very fond of you, not to mention in awe of your strength. I know you don't believe you are strong - but you are.

I have been around the last couple of days, but have been staying away from the boards a little myself recently, mainly because things aren't going so well for me and mine and I'm finding it hard to be anything other than a monumental moany grouch Blush but also because I feel like I've already asked all the questions I can about what's going on with my ds, so many times that I'm sure certain posters must grind their teeth to see me back again. I've had great support and suggestions from lovely people here, but if the so-called professionals lie, manipulate and refuse to budge, we are essentially powerless and stuck.

I felt bad about not being around, so I came back yesterday, but it seems I just made it worse by trying to offer advice when I really wasn't in the right headspace to do so. Sad

It's an odd situation this, communicating in cyberspace and becoming fond of people who we don't know in rl. (Although in truth we probably do know more about them than the people who surround us/them every day, as we tend to share things anonymously that we would never discuss with most of the people we see every day.) The fact that we all dip in and out as and when we can and disappear without explanation for days or even weeks on end makes it hard to maintain a cohesive friendship group - well it does for me, because I'm not on fb so don't have contact with anyone other than on here. But I promise you, at least for me, that doesn't mean I care any less and I often think of different people on here, you included and wonder how you are getting on.

I hope we've managed to convince you that you are a very valued member of this board and a lot of people here care about you.

Honk!

mariammma · 14/11/2012 19:29

dev, very pleased and relieved to see you back on your thread. stupid frozen computer wouldn't put the second set of posts up and I was really scared you'd ended up in that river. Apologies for your named sos thread, was all I could think of to do to help. feel free to report it and get it pulled (or I can if you want)

HONK HONK HONK
and you've been so sensible in the past that (although you might not know this) you've helped me and the dc hugely and I don't think i've said Thanks

porridgelover · 14/11/2012 19:38

devient, I'm sorry that things have got so heavy for you that you feel you cant carry on here.
As others have said upthread (more eloquently than I can) as wonderful as I find this board, the anonymity of it is also de-personalising. I do pick and choose what threads I post on based, not on the poster, but on whether I have anything at all to offer, and whether someone has said my thoughts already.
I certainly would not judge anyone on here for 'moaning' (although that is not my impression of you).

I hope you will stay (as you are one of the people I 'recognise'). Good luck.

pinkorkid · 14/11/2012 20:31

Just wanted to say I would miss you if you stopped posting and have valued your input in the past. I hope you feel comfortable enough and we others on here make you feel at home enough to stay around. I think you are not alone in often feeling isolated and that's understandable given the struggles you are facing to get help for your family. Hope it's just that you need a break.

devientenigma · 14/11/2012 21:09

thanks everyone, such kind words, you have me speechless. Anyway have another couple of weeks with a couple more meetings to get through, that I don't want to do but really looking forward to Christmas and the birth of our new granddaughter. So gonna keep those in mind. Glad some think I'm helpful, I just feel useless, so nice to hear, hope I can continue to help/support.

OP posts:
Lougle · 14/11/2012 21:11

devient, sincerely, the only person who thinks you are useless, both in RL and on these boards, is you! Come on my threads and tell me to get a grip - I'd be well encouraged Wink

cornycatona · 14/11/2012 21:24

dev I always look at your posts - I think you're amazing

whatthewhatthebleep · 14/11/2012 21:44

I'm fairly new around here and have recognised and appreciated many of your posts and I really believe it wouldn't be the same here without you...you have many supporters and many people who have and do appreciate your wisdom, insight and strength.
Please find this thread and all of the posters here brings you some feelings of comfort, value and kinship....
Don't leave and isolate yourself, especially when you feel low and struggling....so many of us know this in our lives and can be of the greatest support to each other at those times ((((()))))

lisad123 · 14/11/2012 21:58

Sorry, haven't been around much but just seen this.
I guess often I don't post because I have nothing to offer, no helpful advice Sad
However, when I see you and your lovely ds on FB I hope I offer some help xx

Sometimes you just need to step away from the PC and that's fine, but please come back soon x

coff33pot · 15/11/2012 00:40

Thought there was a draught here and someone left the door open.

Glad you came back in and closed it :) x

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