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Times article about Aspergers

67 replies

BabeRuthless · 11/10/2012 10:53

It was in the magazine last week and was written by Sophie Walker who has also written a book about about training for marathons while raising her daughter who has Aspergers. Its a really good article & the first paragraph about a daily battle over teeth brushing got to me as thats what happens in our house.

I've got a Times subscription (posh eh?) and I've copied & pasted stuff for people before. Let me know if you want it but replying on this thread & I'll pm everyone with it in the morning.

OP posts:
ouryve · 11/10/2012 20:01

Oh, I'd love to see that (and nice to hear that there's some sympathetic reporting in the Times for a change)

bialystockandbloom · 11/10/2012 20:11

Hello Soph, welcome to the board. What a nice piece in the Guardian. Shame the Times were rather more sensationalist (not much surprise there!). Your dd sounds great, well done her for the show & tell. And well done to you for the marathon. My dp has started seriously running this year and is planning on next year's. Did you know the charity Autistica do a half-marathon of London parks - think it's actually this weekend.

SophRunning · 11/10/2012 20:20

Hello all. bialystockandbloom - might the half-marathon you refer to have been the Royal Parks? I ran it on Sunday for the National Autistic Society and let me tell you there was NOTHING glamorous and lovely about it :-)

(though i am very flattered. photoshop is marvellous.)

I reallyreallyreallyreallyreally hope the book helps.

bialystockandbloom · 11/10/2012 20:27

Ah, er, yes that'll be the one. It's been a long day today...

SophRunning · 11/10/2012 20:36

yes, it has! who is your dp going to run for in next year's London marathon? it's the most amazing experience..

bialystockandbloom · 11/10/2012 20:53

I'm sure it is! cheering from the crowd with a pint won't be too bad either

Don't know yet, possibly the NAS, but I rather like Autistica so I might suggest them. He missed the boat signing up for this year's, didn't realise how organised you have to be!

bialystockandbloom · 11/10/2012 20:58

Btw I just read your blog page you linked to.

She says: "I've decided I'm really looking forward to the start of school, Mummy. There will be loads of interesting things to do before we get stuck into the boring old schoolwork and I'm thinking, hey, it will be good!" The forced enthusiasm and bravery in her voice skewer me.

You felled me at that point too

SophRunning · 11/10/2012 21:07

I don't know Autistica, I must look them up..

I'm doing a Q&A online with Talk About Autism on Oct 24. Do you know them? They linked with Ambitious about Autism, which is a child-focused group.

Sorry I made you cry. Sorry sorry! There is a happy ending. Sort of..

moremerlotplease · 11/10/2012 21:13

Just wanted to say your experience really struck a chord with me. Am convinced (and have been for the last 3 or so years) that my DS has AS. As he has grown, I have found it increasingly challenging to cope with the meltdowns, rigidity, quirky ways, sensory issues, etc, etc. I have been fighting to get him assessed, but due to cutbacks and the fact that I support him fairly well (have limited experience of working with some AS children) and he coped pretty well (on the surface) in his preschool setting, had to come to terms with the idea that he wasn't enough of a priority to get anywhere. This was despite other SEN professionals having the same opinion of AS as me.

I found that at the end of a tiring day, having battled to get through the day from getting him dressed to leave the house in the morning to getting him into bed, with his screams ringing in my ears, I would gratefully turn to a glass of wine to aid relaxation. By Christmas I realised I was happily drinking two bottles of wine every evening to shake off the tension of surviving the day with DS. I suddenly woke up to the fact that I either had to do something to get myself back on track or fall into mental health issues and alcoholism. I realised I was as unfit as I had ever been...

Despite hating running, (I have always been fit, but never enjoyed running) I thought it would provide the mental challenge as well as the physical challenge I needed to get out of my rut. I pulled my trainers out of the cupboard and got running. During the following months, I worked my way up from nearly collapsing after a km, to happily running 10 km and needing my daily fix desperately.

I found that while running I could completely shut down from all the stress, or work through my arguments, reasoning & fights with all those people who thought I was just a neurotic mother, release the tension of dealing with his obsessional stick collecting or the fact that it took 40 mins to not manage to get his coat on before leaving the house when it was -2. As OP said, I also found that my struggle to make progress gave me a better understanding of what DS had to go through every day, and my running mantra became, 'for DS, For DS, for DS...'

Now, despite having been injured for a couple of months and just about being on my way to returning to my new found pleasure, I am a stone lighter, have a much happier household with the effects benefitting all 3 of my DCs, have the ability to take a step back and think for a second longer about the best way to get him to brush his teeth or think about why his sister is crying after he has hit her, am only drinking two or three times a week (when I want to, not when I have to), and have more energy to enjoy my beautiful family. In the meantime, he has moved to a new nursery, who are taking his difficulties seriously and pushing for him to be assessed and properly supported.

I can thoroughly recommend running as a shortcut to sanity whenever you need it most!

Will be buying your book & reading with much pleasure!

SophRunning · 11/10/2012 21:18

moremerlot - loved your post. LOVED IT. so glad you are running and feeling the joy and also have found good and helpful staff to assess and support your son. long may it continue. hope you enjoy the book!

moremerlotplease · 11/10/2012 22:07

Soph - have just read your blog 'Finding Elsewhere' and felt like you had been reading my mind. I too saw that programme and watched with general interest until that family were featured. When I saw them, I watched with increasing discomfort, as it felt like I was a fly on my own wall. I couldn't understand why I found something so familiar so difficult to watch.

Looks like I'll be reading your blog from now on too. Looking forward to getting to know you and your wonderful family better!

BabeRuthless · 12/10/2012 07:31

Hi Sophie, it's really good to have you here. Thanks for the link to the guardian article too, I missed that one. Hope you don't mind me breaching the pay wall with your Times article. Smile

OP posts:
SophRunning · 12/10/2012 09:06

Hello Babe - not at all. I would of course recommend the book instead/aswell though, it's far more balanced :-)

moremerlot thank you, that's very kind. i found that programme very hard to watch, and was really taken aback by how it made me feel. it's reassuring to know you felt the same way.

BabeRuthless · 12/10/2012 10:02

That should be them all sent. If I've missed you out let me know or if you've got a jumbled mess of words let me know that too.

Sophie, I've got your book on my Amazon wish list, think I'll be treating myself today. Quick question, does legging it across a field to stop your son stroking a fearsome looking stafffy count as training?

OP posts:
UnChartered · 12/10/2012 11:12

thanks for the link Babe

i almost got to the end of the 1st paragraph without the tears tripping me Sad

Sophie - do you mind if i share that with our aspie girls support group?

SophRunning · 12/10/2012 11:37

Babe - definitely! sprints are a key part of your running training. as is carb-loading. now you need cake.

UnChartered - you've got an aspie girls support group???? o thing of wonder. where are you? how can we join? i've tried every possible avenue round here to find one for my daughter - including offering my kitchen as a regular venue - and have had no success. all our local support groups are full of boys, who are lovely, but not at all in the same situation my daughter finds herself.

By all means share the link, though I worry a little bit about it seeming so bleak. The Guardian article might be a more positive one to share or at least to counter it with.

UnChartered · 12/10/2012 11:42

have PMed you Sophie

Thanks
SophRunning · 12/10/2012 11:54

UnChartered - back at you Thanks

porridgelover · 12/10/2012 12:01

babe....just to say again, thank you for copying that article. i have read it twice and am in tears.
Sophie, I adore your writing. You seem to be inside my head. My DS has an ASD diagnosis and I am currrently looking at DD1 and wondering what the hell is going on. The conclusion that she is most likely also high functioing ASD is bearing down on me ( I have a lump in my throat writing that).

Girls on the spectrum are seriously under-recognised and under-represented in support groups. I relate to your post about going to the local group (and your honesty about 'not belonging' there) to find it full of computer loving boys.

I should have a wise conclusion to all this but am too worn out from the fight to get her dressed this morning.......

SophRunning · 12/10/2012 12:10

porridgelover come here and have a hug. you don't need to stress about wise conclusions at this point. just congratulate yourself for keeping on keeping on. that's the hardest bit. you are not alone. Please let me know if there's anything at all I can do to help.

My facebook page is here: www.facebook.com/GraceUnderPressure
It's mainly to do with the book - articles, Q&As - but I'm also using it to list useful references, most recently from the very marvellous MaryZed on whether it's useful to insist that ASD kids do homework, which has been my major battle and worry for years. I think sometimes you just have to step back from the fight and breathe ..

porridgelover · 12/10/2012 12:18

Aw thanks sophie.....I'm sitting here reading through your blog (with the dog needing walking at my feet......must get going). TBH hearing someone else articulate what I live with is help enough.

Hugs will have me in tears ...........

usernametaken · 12/10/2012 12:36

A friend told me of this article in the Times, I've been waiting to see if it becomes free...but alas, not yet. Is it possible to PM me with it. Many thanks.

usernametaken · 12/10/2012 12:46

SophRunning- I've just downloaded your book; it looks like it is going to be a very interesting read. My DD is 7.5yrs and has an Asperger dx, our girls sound very similar in some areas. I'm very much looking forward to reading your book.

SophRunning · 12/10/2012 13:08

Thank you usernametaken, I'm very touched and hope you find it helpful.

Ineedalife · 12/10/2012 14:10

babe, thanks for pm ing me the articleSmile

soph, I have only read the first bit but your Dd's story sounds very similar to mine. My Dd3 is 9 and was diagnosed last year after 3.5 years of assessments.

I am going to read the rest laterSmile