NEW Tinsley house support thread -part 2!!

[Badvoc]

Hello everyone!
Thought I should start a new thread as we were nearing 1000 posts! :)
Indigo is no longer posting as you all know, but I think it would be such a shame for the support thread to go too.
I know I find reading about all the ups and downs we all experience very helpful and it's so great to hear all the progress :)
So.
We go back to TH next month and can't wait. So interested to see of the tracking programme has worked. I think ds1s reading speed has improved and he is now reading proper chapter books!
He continues to show less anxiety, OCD behaviour and stress.
He is eating better and is generally a much happier chap.
Looking forward to hearing from you all over the next few weeks/months...X

Ruggles - absolutely do Epsom salt baths with your kids - Epsom salts are pure magnesium which is what we're trying to get into our kids.

And yes, these development problems are all related to an autoimmune problem. As far as I can tell what's happening is our kids can't break down food properly because of an enzyme problem. This leads to food getting into the blood steam. Which leads to development problems.

I'm just starting my kids on a digestive enzyme, will let you all know how it goes.

I found all this out by a DNA test on DD. she's missing something needed to break down enzymes. So I presume her brothers (and me) also are.

Missing these enzyme thing can cause Asthma and cancer. Well I've had both of those.

I'm not expecting any news about the school trial for 3 months.

The enzyme I've been recommended to try is Simalise.

Have had ds1s NC scores from his teacher...he is working at level 3s in all subjects, including reading and writing.
This time 2 years ago he was working at level 1s in everything.
:)
Very proud.

Badvoc - well done your DS. That means he's totally caught up and is working where he should be. You should be proud :)

Morning All!

Thanks for the thoughts Ruggles and welcome to new faces. We have had about 3 weeks off the ball whilst trying to stabilise ds' seizures and all suffering some Norovirus-type illness.

Thankfully, the seizures seem to have reduced, ds is now on a higher dose medication and has gone into school this morning - only his second full day in about 3 weeks! Ds started back doing the word tracking two nights ago and we will tackle HemiStim tonight too.

Dh and I are still feeling the after affects of the bug and I can only eat toast still but I'm hardly going to waste away!

It's full steam ahead to Christmas now - less than two weeks until the dcs break up! Dds Christmas concert today. Bless her, so much focus has been on ds recently, she has been so good. She got (accidentally) kicked in the face yesterday at school and has a red swollen cheek! Ds is singing at a local hospital with his year.

It is great to continue to hear all your stories of how you are getting on

Good to hear from you daft...hope you are all in the mend soon x

Badvoc - fantastic news, you must be bursting with pride . Such a brilliant achievement for anyone, but all the sweeter for your DS.

Daft - what a couple of weeks you've had. Really hope that school goes well today, and as you say its only two more weeks. Ouch to the red cheek. I hope you can re-energise before Christmas

Badvoc - interesting as my Mum is reading the Paleo diet book at the mo and keeps mumbling about how much milk I give my dcs. What do you give them instead at bedtime, in porridge, coffee bars etc?

Indigo - am going to give them a salt bath tonight! Do I use the same dose as for adults? My dcs are 2 and 4. How often should I give them one? Also, thanks for the info on automimmue stuff - I think this is fascinating. Autoimmune issues have been a problem for me and I used to take Simalise - I can't remember why I stopped but think we'll all start on some. Do you mind if I ask where you have the DNA testing done? I was thinking of doing this with Here DS isn't dyslexic but I've consulted this nutritionalist before.

I got the DNA testing at Sincere Health

It was very expensive, but worth it to me because I got a lot of answers.

I don't have any autoimmune problems but my Mum does and when the Dr was examining DD he said 'well it must have skipped a generation' - ie he believes all of our kids have autoimmune problems.

Not really sure how much salt to use - maybe half a cup every second night?

Re the Paleo diet, all 3 of mine have improved heaps since going dairy free / gluten free (on sincere health's recommendation), and I really would recommend it to all of you. I don't think it's necessary - but I think it will help get them 'there' quicker.

We are the only animal that drinks another animals milk.
Which is basically filtered blood.
I know my ds1 has been so much better since we stopped giving it to him...he used to have warm milk am and pm.
Ds2 has never had cows milk and has none of the problems ds1 has/had.
We have also really cut down in his carb intake. We can't go wheat free with him....too hard but we have seen improvements just by cutting down.
And dh and I have both lost over a stone in weight by cutting down on carbs and milk!

Thanks Indigo, it looks really interesting and I'm going to talk to DH about it. While we are doing a major diet overhaul it makes sense to make sure that we're doing the right thing for DS. We had the salt bath and they didn't notice until DS tried to drink it!

Badvoc - I'm going to think about going dairy and gluten free. We already have to avoid eggs, nuts and sesame and I find it difficult to be too limited, but the thought of losing a stone is obviously very motivating!! Well done you - that is amazing. A good excuse to buy some new clothes in the sales. How did you replace the evening milk? Did you substitute it with something? It is my dc favourite drink of the day and we have lots of rituals / traditions assoc with it. Is goats milk / cheese ok? I think I need to read the book

We replaced milk with chocolate coconut milk, which my kids love now.

But generally I try not to feed them straight before bed (they used to have cereal then) as I think that was feeding candida.

I didn't substitute it with anything...luckily for me ds1 seemed to just stop asking at night. Dh still gave him some in the mornings until asked him not to...ds1 wasn't asking for it so IMo didn't really want it.
It does mean he only drinks water now, but he seems fine with that.
Ds2 only drinks water and diluted apple juice.
I am sure I have a dairy intolerance. If I have full cream milk I throw up. And ds2 is the same.
I am also very sensitive to wheat.
Ds1 still has bread for his school,pack up and he likes flapjacks which have oats in. He has rice maybe once a week and GF pasta once a week, but other than that has potatoes and meat/fish/poultry and veg for dinner.
He has either: omelette, beans in toast or cheese on toast for breakfast. I sometimes make him pancakes as a treat.
His bowels are so much better :)

Thank you for your quick responses. I contacted Robin via email and he replied with the message below-

The objective of the initial consultation is to establish a developmental history and to discover the underlying cause of the condition.

"In some ways it is easier to treat adults as they want to be helped and therefore tend to be more compliant in terms of following the treatment regime. On the other hand it can be more difficult as the brain is complete in it's development and therefore harder to change and of course it depends on the underlying problems. I treat the learning and behavioural disorders only."

I'm just not sure if I can be helped because my brain at my age has formed coping strategies to compensate for my learning difficulties.
Should I just buy the book and follow the treatment plan before going for an initial assessment?
Or would you suggest an initial assessment as it gives you a better overview of how your child can be helped or not?
Does he provide a hearing test?Does the hearing test assess if your child is processing information?
I'm so confused.Would appreciate any input.x

Hi Urban,

I would start with the supplements, diet changes and simple exercises that we have all started on with our dcs whether we have seen Robin or not.

That way, you can see if there are any improvements/changes which might make it easier to decide whether to make an appointment with him or not.

We all saw definite changes in the first few weeks so, I think buying the book and starting off yourself is the way to go.

Good luck. Let us know what you decide and how you get on.

Ps. If you look back to the original thread, we had lots of talk about what supplements we were using - a wide range of different ones! I'm sure the book would point you in the correct direction regarding dosages. I bought my book second hand on Amazon!

Thank you for your reply.Should i buy -

Is That My Child?: The Brain Food Plan or Could It Be You?: Overcoming dyslexia, dyspraxia?
Do they both follow the same regime and exercises?

If it is an option for you I would always suggest going to see robin.
And it's never too late to address these issues urban.
Good luck x

There you go Urban, two opposing opinions, lol!

I would by the book aimed at adults 'Could it be you?'

urban - If you can afford it and the distance isn't crazy for you I think you should visit him.

If the logistics or money are hard I guess start with the stairs exercise and teeth brushing first.

They're on p35 of 'the brain food plan'

Advice please everyone. Ds is GRIM at the moment. Basically he holds his behaviour together all day at school. The school day is chaotic due to Xmas stuff and that makes it even harder for him to avoid melt downs (and amazingly he is avoiding them at school). But he is horrendous from the minute I pick him up until dinner time. Dinner or the routine of it seems to calm him down and we're ok til the next day after school. Tonight he screamed (proper screaming like 2 yr ols do) for ten mins because I wouldn't go back to get his water bottle ( I had driven 15 mins before he realised he had forgotten it so wasn't going to turn round), kicked my car seat, sobbed etc. Is currently 'helping' dd have her turn on the computer which basically means trying to control everything she does and yelling when she won't do what he wants. Am avoiding removing him from the room as it will cause another melt down but that's unfair on very patient dd tbh.
So is there anything i can do to help? We reduced the omega 3 to 2 capsules - do you reckon upping it again will help? Will extra repetitions of stairs help? Or do I just have to endure and look forward to next Christmas when we will be further along the programme?

Ok, this isn't going to help you at all, but I was just going to post that this time of year is so hard for our kids...school is disrupted, plays, church services, singing, lessons missed etc.
It's no wonder they don't cope well.
It's wonderful he is holding it together at school :) and of course he lets it out at home.
You love him and he knows that, no matter how bad his behaviour is.
Told you it wouldn't help, didn't I?
:)
Hang in there x

I don't think extra reps of the stairs will help.

Omega might help, why not try it.

But basically I think it's just the end of term and he's tired and you just need to hang in till the Christmas holidays.

Would a snack in the car on the way home help?

Low sugar oat cookie scoffed as soon as he gets in the car. Would be much worse without that. I think some days are worse than others if he hasn't eaten much lunch. Is compulsory school dinners though so I have no control over that. If it's roast or fish he eats loads but he struggles on days when it's stuff in sauce.
I suspected hang on in there might be the only option. I may swap his and dd's seats over so he can't kick my chair while I'm trying to drive. Frightens me and then I end up yelling which of course makes everything worse. He finally shut up when I said I would pull over on the hard shoulder and make him get out! Poor parenting. Good job he didn't call my bluff on that one.

I think so shopping.
It's tough, but ride it out.
This too shall pass. :)

:)

Shopping, it must be really tough at this time of year for our dcs who prefer routine. Luckily my ds is ok about school changes generally and I think has got better at doing things at short notice at home. I do still give him lots of warning about things if i can e.g. For a recent dentist appointment, dd was told about 15 minutes before we had to leave. Ds was told the week before, 4 days before, two days before, etc!

Could you bring dinner forward a little too shopping? It might cut down on the time he has being upset.