NEW Tinsley house support thread -part 2!!

[Badvoc]

Hello everyone!
Thought I should start a new thread as we were nearing 1000 posts! :)
Indigo is no longer posting as you all know, but I think it would be such a shame for the support thread to go too.
I know I find reading about all the ups and downs we all experience very helpful and it's so great to hear all the progress :)
So.
We go back to TH next month and can't wait. So interested to see of the tracking programme has worked. I think ds1s reading speed has improved and he is now reading proper chapter books!
He continues to show less anxiety, OCD behaviour and stress.
He is eating better and is generally a much happier chap.
Looking forward to hearing from you all over the next few weeks/months...X

Great news!

Hi everyone.
Daft...I hope your ds is improving?
Very exciting news from indigo isn't it? :)
Not much to report here..poor ds2 has a really nasty chesty viral ilness which means he will be in steroids for days...:)
On a brighter note, ds1 came home from shcool yesterday and showed me his new reading book (he was most disgusted that he "only" got 09% on the quiz!) and he had already read 39 pages of it at school.

:)

Argh! That should have read 90% on the quiz!
In my defence I am in my 3rd nit of no sleep due to ds2 so am allowed to post silly mistakes, ok?
:)

Argh...3rd night!
Right, that's it, am off to bed!

Hope everyone's dcs are feeling better. A quick question for indigo but someone else may be able to answer too.
My ds is boring. I know that sounds awful but he has the typical aspergers thing of monologuing incessantly. Generally it's about Lego. At the moment I think it doesn't make things too difficult socially since 6 year old boys tend to go on about stuff anyway but I worry about his teenage and adult years. So the question is: is it likely that Tinsley House will get rid of this ASD trait too or should I start looking for ways to limit the monologuing now?

:)

TH will get rid of this trait. This is all stuff in the pre-frontal cortex and TH works on that.

We're just doing pre-frontal cortex stuff now, and we've been going for a year.

And DS has finally stopped going on about politics the whole time. :)

Brilliant! I sometimes wonder if I've made it worse by showing interest but there needs to be someone who wants to listen to him, so it tends to be me. Is amazing to think he will be able to chat like other people do. At the moment he answers questions then quickly steers the conversation back to what he wants to talk about.

Shopping- Yes your DS's Aspie trait's will go. You only have a few more months of the Lego thing to endure and he will mix properly with the other children at school long before they notice anything is odd.

My DS doing really well this week. Got stars for both BI and BO today ( first time!) But the really exciting thing for me was the conversation we had which went something like this:

DS. Mummy, I am much happier, my brain has started to work.

Me. That's great.

DS. Yes, it is only half upside down now.( had been much talk and despair about upside down brain in June/July which resulted in us going to TH)

Me. Wow....and why do you think that is?

DS. ( slight gap to think) I'd say it is partly because I am growing up and partly because of Robin.

Shopping- My DB is Aspie but has never been diagnosed and doesn't know. He has talked about cars constantly for all my life. Over the years I have indulged him, acted indifferently and told him to stop. Nothing has made any difference. Your DS is so young and it will stop as Robin will get rid of it. Will be spending time with my DB over Christmas. Just sorry that my DB has not had this wonderful intervention.

Thanks Beautiful possum, so encouraging.
Eye tracking is going really well. We're on the harder word level and he is whizzing through. Skype appointment with Robin on 17th Dec. really looking forward to getting something new to do.

Hello everyone had a busy week!

Daft ? you?ve been on my mind lots this week, how have you been getting on?

Worrierprincess ? I hate hearing about school people being so negative and just accepting it all ? in fact, the attitude is thoroughly depressing. I am in a very similar place to you and seem to swing between really upbeat and then my worries tumble out and over. We just need to keep doing our bit, each day. I love the idea of you planning a bonfire - maybe we should all do the same and dance around the flames?

Badvocsanta ? how is your ds feeling? 90% that is AMAZING!

Beautifulpossum ? what a brilliant conversation with your ds. It really is so encouraging to read all your progress and good news.

Thanks for all your lovely comments about DS. It?s strange how quickly things come on / change. He always used to sleep so well and over the last 3 weeks he?s started to wake up crying ? not every night but 2 out of 3.

We have a really lovely teacher at nursery who we get on well with, but she doesn?t like too much chat about specifics? I don?t want to make her feel defensive and we?ve had a couple of mis-communications. I try and tell her what we?re doing and how proactive we are being and she responds with what they are doing and is quite defensive ? we just seem to miss the connection in the middle. I really liked your ideas and may suggest them next week. I had our parents session chat last week and she said that DS is behind with numbers / letters / pencil work / concentration and that it why he doesn?t enjoy nursery.. I know it?s not a surprise but I do feel that it?s all so negative from them. I feel it at pickup and find it depressing / distressing and worry that he has a drip feed of this all day.

A friend said something really lovely about my DS last week and it made me realize that is was the first time in ages that anyone had said anything nice about him.

Had some good news this week - our DD 2.6 spoke her first few words. Her speech has been delayed and hearing her first words has been just overwhelming

Ruggles - pleased to hear your DD spoke her first words - but sad to hear her speech is delayed.

Not good that his teacher is so negative about him. But remember in a few months he'll have caught up. By reception he'll be fine. And that's the important thing.

My DD (Y5) still looks back on nursery as her best year of school. Ie every other year has been blighted by her dyslexia. :(

Sure she's pretty much fine now. Very, very close to being totally fine. But she's lost the last 5 years to dyslexia.

Anyway, my news is that my 2 have started the exercises for the pre-frontal cortex and yet again I'm amazed by the changes in them.

They have both become very cuddly! DS is 12 and for the first time ever is wanting to snuggle up to me or DH!

DDs reading and writing has improved tremendously. For example she wrote fantastik and reads all the signs we pass.

DS is just becoming more reasonable and easy to talk to. Stopped going on and on about how evil capitalism is.....

Oh and DSs eye contact is now fantastic!

I can't believe how much of a difference it makes.

Lovely to hear such great progress reports, especially from the older children who have had to cope with their DDS for far longer than my DS.

Ruggles- I know it is hard and you must feel frustrated but your DS will be fixed before he goes to school and he won't remember any of this! In that respect he is better off than all the rest of our children.

We go back to see Robin on 8th. Really excited...

Thanks Indigo and Beautifulpossum - your positive experiences are so good to hear and as ever, reassure me! I really enjoy reading about all of your progress. I think I just need to pack up the worries and get on with it all and focus on having a good time over Christmas and then into next year. I'm also going to limit my time on here

Beautifulpossum - was it your ds who has a babinksi sign present? My ds does and I'm not sure what it means.

Well by reception your ds will be just fine ruggles so dont take what nursery say too much to heart (easy for me to say I know)
Ds2 is still poorly sadly and I seem to have caught some sort of plague too and dh is away this week....weeps :(
Feeling very fed up ATM.
Ds1 is a star at school - he really is :) he got a scientific achievement award on Friday - he and his friend have designed a website about Space travel! :0
Ds1s speech was delayed too and he - literally - never shuts up now and his vocab is amazing :)
Tomorrow he is singing in the choir at the church hall :)
It's just lovely :)

Hi Everyone,
I desperately need advice on TH clinc. Do they treat adults?I am 26 years and I have recently been diagnosed with Auditory processing disorder similar to dyslexia.I have suffered from learning difficulties from a young age.The disability affects my ability to process what people are telling me, to retain information, to follow instructions or conversations.
I also suffer from a expressive and receptive language disorder which affects speaking fluently (often experience a speech block "getting words out"),I often experience a word finding difficulty.
I also suffer from poor coordination (accident prone),poor short term memory,low energy and poor self esteem.

In the past I have tried TLP and AIT sound therapy but it did not work.
I know the thread is strictly for parents but I just wanted to find out if any one has been treated at TH clinc as an adult/heard of any personal experiences
Sorry for the long message,just desperate for advice.I hope to hear from you soon

Ruggles- Yes, DS has ( or had) a retained babinski reflex. This can be checked by running a sharp object longways along the side of the foot. The normal reflex is for the toes to curl down but a retained babinski results in toes separating and big toe lifting up. This was identified by Hemispheres the OT's I went to before Robin. It is an early reflex and should go within the first few months of birth. You don't need to worry about it- all TH kids will have retained prmitive reflexes- they indicate immaturity in the CNS. Robin explained to me that after completing the TH programme our kids primitive reflexes will be gone and the adult reflexes will emarge and mature- their brains will work normally. I had a massive panic as I went to Hemispheres at the point that my DS had a complete meltdown and was behaving really really strangely. I stupidly read some stuff about babinski which scared the life out of me , but Robin was able to reassure me at our first appointment.

Had coffee with someone I met at postnatal group and her DS1 has Aspie diagnosis and she is also concerned about her DS2 who was very speech delayed. Good news is she is going to take them both to Robin,

Hi Urban - welcome to the thread. All welcome here.

Robin has written a book " Could it be you?" which is about adults with DD. Maybe get it and see what he says?

evening or good morning! I was looking at a site regarding making craft soaps and I came across this add for Epsom salts in larger quantities so thought I would put it here as it could be cheaper than where some people may be buying it x

www.justasoap.co.uk/catalog/epsom-salt-fcc-grade-25kg-p-3066.html

sorry its rather random but it may save someone money :)

Urban - I'm fairly sure Robin does treat adults. Ring him or email him.

neurodevelopment exercises work at any age, because the brain is always capable of changing.

Badvocsanta - it sounds like you have your hands full at the mo. It's horrid when our dc are ill and dh aren't here to share the load or cheer us up. Hope he's on the mend. Well done DS1! I hope you keep all this stuff in a big scarp book. Really enjoy his singing today, he sounds totally lovely

Welcome Urban - sorry to read about the troubles you have been having. Robin's book is probably a good place to start. Do phone him for a chat - he is very approachable and easy to talk to. This is a very friendly place with lots of helpful folk.

Indigo - any more news about your school trial?

Coff - thanks for the link. I love Epsom Salt baths, but had never thought of giving the dc one. I always have an incredible sleep after one - as if I've been drugged!

Hello Daft / Worrier - how are you both?

Thanks for that coff x
Welcome urban. Do phone robin and have a chat to him. I am sure he could help you. The most recent research has shown that we are capable of making completely new nural pathways in our brains - more so than was ever thought. Lots if the research concentrates in stroke victims and is fascinating.
Ruggles...yes, it's been a tough few weeks. Ds2 went full time (5 mornings) at pre school in sept and has been pretty much constantly ill since :(
I am very busy too with church/school activities in the run up to Xmas...

Beautifulpossum - thanks for the info on the reflexes. I can totally understand your panic as I had done some googling too and was beginning to have (yet another) panic . It's interesting how many little signs there are that the CNS is immature. I'm going to ask Robin about the link with allergies and asthma. I had both of these as a child and grew out of them. DS has severe allergies plus some asthma and I wonder if there is a link with the immune system?

That's great about your friend. We're doing the diet, chair and supplements with our dd and I'm sure it's helping with her speech. She really enjoys it and wants to join in. She tries with the stair too, which is very comical as she can't quite bring herself to shut her eyes, so screws her face up instead.

Do not read paleo diet book.
It will freak you out!
Milk is now banned in my house!