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My DS, possible SN issues and problems at school

7 replies

AngryFeet · 02/03/2012 11:01

Hi,

Sorry this is the third time I have posted this but I have been told I may get some help here :) I have already had some good advice on the other threads which I am thinking about but the more help I can get the better!

Here is my first thread

Feelign very upset this morning as I was talking to another Mum about the problems DS is having and she mentioned that her DS had been told by some other kids not to invite my DS to his birthday party as he is a "smelly, smelly boy". Obviously she had serious words with him although he did not agree with the boys anyway.

I just feel like a failure in every respect right now and I don't know what to do :(

OP posts:
PolarEyes · 02/03/2012 13:33

I know it is hard but please don't feel like a failure! The school sound very proactive and supportive which is a massive positive. It is incredibly hurtful to hear those comments (I had a child approach me and tell me my son (who has ASD) "was well weird"), but I try and remember they are just children and still learning social skills themselves. I'm sure 99.99% of the other mothers would be horrified if they realised their DC were saying such things.

WRT getting a dx, do go to your GP and ask for a referral. I would mention the need for a separate chair at school, the hand flapping, speech issues and being marginalised socially. I see you have looked into ASD a bit, have you looked at dyspraxia? Your son may well not fit neatly into any particular dx but some of the strategies used to help children on the ASD spectrum or those with dyspraxia may be useful for him. www.dyspraxiafoundation.org.uk/services/gu_symptoms.php.

If you go ahead with private SALT may be worth considering finding one who has experience in social difficulties and getting him observed in school. That way it would speed up getting some useful strategies for school to use and also some good evidence for you should you need it later at any stage.

Good luck, I remember the churning, anxious feeling around the time my DS1's difficulties really came to light all very well.

lisad123 · 02/03/2012 13:49

children are cruel little monsters sometimes.
Im sorry to say and rush off, but you might want to consider something like sensory processing, Autism spectrum or communication disorders.

AngryFeet · 02/03/2012 14:42

The only thing that bothers me about any kind of diagnosis is that he is fairly 'normal' at home. Yes behind in his speech and does the hand flapping thing but it is only when he is in a social situation or away from us that he seems like a different little boy. So awkward with no or little eye contact, mumbling or not speaking at all.

I think I will definitely see the GP next week - should I take him or go on my own?

OP posts:
AttilaTheMeerkat · 02/03/2012 15:28

I would suggest you see the GP on your own if at all possible.

Good luck next week, keep us posted.

HolyCalamityJane · 02/03/2012 15:53

I initially thought dyspraxia as well when reading your post the OT can dx this but yes it could well be co-morbid with something else. It may well be one ring leader coming out with the "Smelly" comment so definitely the teacher needs to nip this in the bud. It sounds like you have great support from the school which is great.

AngryFeet · 02/03/2012 16:18

Yes I think there are one or two ring leaders in the class who are encouraging teasing by the others. The teacher was on training today so will be sitting them down all next week for a talk. The two boys who are causing all the trouble are getting known for being violent which concerns me. One hurt a child from another class and he was scared to come back to school for two weeks.

In the car earlier DD was saying how she had been ignored by her friends all day as one was calling the others babies for liking a TV show and they all backed down but she didn't. I said she should be proud of herself and she said yes it is good to be yourself but I was sad my friends won't play with me today.

DS piped up that he would tell her friends it was bad to be horrible. So I thought I would quickly use the opportunity to ask if anyone was horrible to him. He said "No. Oh yes actually when they are playing they are horrible. I say don't be horrible then I tell the teacher". He didn't seem upset at all which is good. I think the only person upset here is me! (in private of course).

Yes I had looked at dyspraxia and a lot of the symptoms fit so I will mention to the GP. Thanks :)

OP posts:
moosemama · 02/03/2012 17:32

Please don't feel like a failure. You are obviously a very caring, loving mum, which is why you are here asking for help.

Obviously none of us can say whether or not your ds is on the spectrum or perhaps has dyspraxia or a communication disorder, but I can tell you he sounds a lot like my ds at that age. He is nearly 10 now and was diagnosed with Aspergers in January last year and then tested on the cut-off point for dyspraxia a month later.

When he was five he pretty much played alone in the playground and was horribly bullied. Things improved a bit in year 1 and by year 2 he had a best friend, who remains steadfastly loyal to him to this day. Smile

He also struggled a with sitting on the carpet and had to lean on a table leg for support.

He was slow to start to read at that age, but by the end of year 2 he was made the youngest free reader the school ever had and was given a reading age of over 12 iirc, could have been 13 - well as high as the scale they had could test him anyway. (This has since settled and he is now high-average in terms of reading skills.) Whereas he has always struggled with writing and fine motor stuff.

Re your point about him being fairly normal at home. There is an expert on Aspergers called Tony Attwood, who once said that as soon as you put someone who has AS in a room on their own, their AS disappears and the same is often true within the family for children who are higher functioning, because their family understand them and are used to who they are and how they feel and behave in different situations. We tend to compensate without realise we are doing it and to not notice things about our dcs that other people might find odd.

When our dcs are at home with us, they are at their most secure and relaxed and therefore less likely to exhibit so many of their coping strategies (hand flapping etc) a lot of the time and will of course be more relaxed in their social interactions. My ds can give eye contact to the close family - although he doesn't always, but not to people outside of his close circle.

It sounds like the school is proactive and the teacher supportive, which is great. As others have said, she needs to take the lead in quashing any name calling and bullying, especially as they are such young children. I would have thought perhaps buddying him up with a slightly older child at playtime might also be a possible way forwards for him, as the little ones at school always think its really cool if someone has a bigger boy for a friend.

In our case, we went to see the GP without ds first and took a list of our concerns with us to discuss. Then we booked another appointment and took him back to meet her, at which point we were referred to the Paediatrician, who then referred us on to the multi-disciplinary ASD team who diagnosed him.

Good luck and let us know how it goes. Smile

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