Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

I want to buy some of the wonderful vitamins that help our children with behaviour, can you please remind me the link

44 replies

timetoask · 20/02/2012 12:44

Hi All,
Very keen to start ds on these vitamins, I remember InigoBell mentioning a online shop that had the right balance. But I cannot find the thread sorry....

can someone please remind me?

thank you!

OP posts:
IndigoBell · 20/02/2012 13:23

I've written up the TH recommended vitamins here:

www.dyslexiaadvice.co.uk/vitamins.html

timetoask · 20/02/2012 13:53

Thank you.

OP posts:
ArthurPewty · 20/02/2012 14:29

This reply has been deleted

Message withdrawn at poster's request.

Becaroooo · 20/02/2012 14:36

I get my floradix kindervital and saludynam from amazon!

ArthurPewty · 20/02/2012 14:39

This reply has been deleted

Message withdrawn at poster's request.

appropriatelytrained · 20/02/2012 14:59

Just had a look at the Tinsley House link. I don't mean this as a criticism, it is a genuine query - what qualifies them to give diagnoses and dole out 'treatment'?

I can only see a mention of the quy who runs it who appears to be a chiropractor which is contentious field of 'expertise' at best.

Sorry, I don't want to sound like I am criticising people who are clearly getting something from this but it does sound like these people charge pretty substantial fees and I wondered what the basis for their expertise was.

IndigoBell · 20/02/2012 16:12

AT -

  1. He doesn't charge substantial fees. He's the cheapest therapist I've seen, and his hourly rate is very reasonable.
  1. He's a Chiropractic Neurologist, which means he's qualified in disorders relating to the following: the brain and its environment, lobes of the brain, the brain stem and cranial nerves, the spinal cord, the peripheral nervous system, the autonomic nervous system, the cerebellum and vestibular system, the basal ganglia and limbic system, muscular/neuromuscular junction/receptors, sensory systems, neuroendocrine systems, neuroanatomy and neurophysiology
  1. This is his therapy. He's invented it. That's what makes him qualified.
  1. Everything he recommends is totally safe. You will not feel nervous about anything he says.
  1. He's the most knowledgeable therapist (or NHS professional) I've ever seen. He actually knows why our kids do all the things they do (eg tip toe walk, only eat carbs) - no NHS professional has ever been able to answer those questions.
  1. Everyone in the NHS is too specialised to be able to help. They all only know about their speciality - whereas Robin is looking at the whole child. No one in the NHS does that.
Becaroooo · 20/02/2012 16:15

I have to hold ds1's nose as he takes it leonie Smile

appropriately Whether you think it "contentious" or not is irrelevant tbh. The vast majority of people who are going/have been to TH have gone down the NHS/so-called expert route...and yet here we are, our kids still suffering and, in many cases, we as parents are at the end of our tether.

AIT and RRT (which ds1 has also done) also charge - just our of interest, what do you class as "substantial"??

Becaroooo · 20/02/2012 16:17

indigo is spot on.

He is the only person in 8 years to tell me why my son tip toe walks.

8 years of going to NHS HVs, GPs, Paeds etc and none of them had a clue/completely dismissed it.........what a waste of time!!!

EllenJaneisnotmyname · 20/02/2012 16:25

Okay, I'm interested now. Why do they tiptoe walk? Grin

zzzzz · 20/02/2012 16:32

This reply has been deleted

Message withdrawn at poster's request.

IndigoBell · 20/02/2012 16:52

how he knows why? - because he's studied the brain. He knows exactly which bit of the brain controls what. The answer to all of the questions lie in the brain.

(I hope I've got the following right - obviously you should be asking Robin and not me)

A brain that develops normally desires a healthy range of food. If your kids only desire carbs it's because their brain hasn't matured enough to desire a balanced diet - specifically the cerebellum hasn't matured enough.

Tip toe walking - each muscle has an opposite muscle. Ie when one muscle contracts another relaxes. The cerebellum controls all the muscles. It should be sending out the message of which muscles to contract and relax - but it's not working properly, so the muscles stay
in their default position which is the strongest muscle contracted and the weaker muscle relaxed - so you end up tip toe walking.

EllenJaneisnotmyname · 20/02/2012 16:56

Thanks Indigo. Smile

WarmAndFuzzy · 20/02/2012 16:59

I also think someone asking questions politely should be able to do so - therapies may sometimes work for some but not others and surely it's in everyone's best interests to disseminate as much information as possible, good or bad.

Also, appropriately trained wasn't saying the therapy at Tinsley House was contentious, just the field of chiropractice (I can't really comment as I know nothing about it) :)

I'm using Behaviour Balance liquid on my two btw (with a LOT of bribery) - still waiting to see a difference but it can't hurt!

appropriatelytrained · 20/02/2012 16:59

Thanks. I thought I'd read that someone was paying £350 for a first visit and than in excess of £200 for a follow up. That seemed alot to me.

If it works for you great. I'm not trying to criticise and I am genuinely interested at the background to this.

I'm afraid I haven't a clue what a chiropractic neurologist is! Is he a doctor? Or is it just another description of a chiropractor?

Becaroo - I did point out that I wasn't trying to be difficult or critical. I think whether there is any evidence base to an intervention is important to some people and some do see chiropractors in the same vein as homeopaths - unproven in method and treatment. And I couldn't work out at all why a chiropractor has any relevance to treating these disorders.

We constantly question interventions on this board and I like to ask questions where I don't understand. That shouldn't be taken as criticism but as a wish for greater understanding.

IndigoBell · 20/02/2012 17:20

He's not a doctor.

As far as I can tell it takes 4 years of university study to be a chiropractor - during which time you'd study the whole body. Then the nuerology part is a further qualification on top of that which is about another 3 years of just studying the brain and how it works.

(I think)

the first appt is £250, for 2 hours.

First appt at sound learning centre is £400.
First appt with my OT was £400. And both of them were also 2 hour appts.

I spent 1 hour at the behaviour optometrist and he charged £150.

ellie4 · 20/02/2012 17:35

Please excuse the thread hijack but I have a question for IndigoBell. Could you please explain what is unique about the Floradix vitamins and Calcium etc that are recommended? Why are others not recommended? Obviously they are colouring and additive free but what else is it? Also if I remember correctly it used to be the Osteocare calcium that was recommended.

I've been having a look at them and it looks like it works out at nearly 2 pounds a day just for these alone. And that is before postage to the Middle East is counted. Am going to order the Vegepa though and buy the Brain Food plan.
Actually its two questions as I was wondering about why Calcium is recommended? I mean obviously its an essential mineral for everyone but how does it help our children?
Thanks

IndigoBell · 20/02/2012 17:58

It's not £2 a day I don't think.

The floradix range is recomended because it contains no artificial sweeteners - all the other brands do.

However, my kids don't like it so I'm giving them osteocare instead.
(which does contain sweeteners )

I don't think you need calcium in particular - it's just that that's how floradix packages it.

If your child is good at swallowing tablets you can buy adults zinc and magnesium instead.

wigglybeezer · 20/02/2012 18:12

I have bought Biovea calcium and magnesium capsules ,as i can open them and mix the powder into drinking yoghurt, much more economical than the Osteocare (which DS dosen't much like). I wish he could just swallow tablets though! Fish oil based stuff is the hardest to get in a palatable and inexpensive formula. I have also found a vitamin D oral spray which is quite good. DS liked floradix but it is expensive.

ellie4 · 20/02/2012 18:17

Thank you IndigoBell.

I think I saw one of the floradix on a different site and it was about 12pounds for a bottle. I've seen now on Amazon it is much cheaper but I don't think they would post here. Seeing as we're not sweetner free anyhow then no point.
I'll check out plain zinc and mag as he is good at swallowing tablets.

Becaroooo · 20/02/2012 18:21

Erm....I dont think I was rude was I? Did I swear/call names?? Was I nasty???

Are chiropractitioners suddenly seen as frauds or something??? (I missed that!) Why is their treatment contentious?

Anyway, I have reckoned up and I think it will have cost approx £750 by the time ds1 has completed the TH programme. Some would consider that a "substantial amount" I guess, but thats a very personal thing isnt it?

I have spent FAR more over the years (since he was 5.5) on remedial reading programmes/computer programmes/AIT/RRT etc so I consider this money well spent.

Note: That figure does not include the supplements per month...I get mine from amazon and boots. I estimate I spend £22 per month on those.

indigo has already answered the tip toe walking thing ellen but I cant tell you have surprised I was!!!! Shock I just stood there gaping like a loon when he told me...WHY dont GPs and Paeds know this stuff???? Sad

AFAIK the reason TH recommends floradix is that it has not artificial sweeteners/colours etc in it.

Becaroooo · 20/02/2012 18:29

....and I certainly would not compare chiropractors with homeopaths!!!

AFAIK anyone can decide to call themself a homeopath? There are no qualifications needed and the science behind it is - well - questionable to say the least.

I personally havent found chiropractors helpful in the past for my back problems but that doesnt mean I would automatically assume they cant help anyone

I think the thing that appeals to me about the TH regime is that it seems to combine all the various strands of thought that I know help our kids....neuro exercises/supplementation/diet/computer based visual and audio interventions....does that answer your question appropriately ?

ellie4 · 20/02/2012 18:34

Thank you IndigoBell.

I think I saw one of the floradix on a different site and it was about 12pounds for a bottle. I've seen now on Amazon it is much cheaper but I don't think they would post here. Seeing as we're not sweetner free anyhow then no point.
I'll check out plain zinc and mag as he is good at swallowing tablets.

Becaroooo · 20/02/2012 18:37

ellie Amazon is the cheapest I have found for the floradix (£8 per bottle) If you contacted the seller they might give you a discount if you bulk buy?
I get the Eye-Q from boots on the permanent 3 for 2 offer (so £22 for 3 bottles)

ellie4 · 20/02/2012 18:38

Oops double post