Tinsley House Support Thread

[IndigoBell]

An awful lot of us are now doing Tinsley House, either by going there, or by following the recommendations in The Brain Food Plan

So this is just a general support (and hopefully good news) thread.

Stage 1 of the TH therapy consists of:

1. Multivitamins

• Omega
• Zinc & Magnesium
• Multivitamin

1. Healthy eating diet

• High protein, low sugar, no artificial sweeteners, additives etc.

1. Specific exercises done 3 times a day

How about eye Q? Thats vanilla flavoured.

Do the swallowable Vegepa contain orange oil too? Could you just pierce these onto something if not?

Oh, and great news HCJ!

HCJ - amazing news about your DD. she's gone from not holding a pencil to drawing a proper picture in 3 months! And 4.5 good behaviour stars! When last parents evening they asked you if you'd considered a special school !!!!

Sphil - a 5c in reading! Very well done.

I just asked DS how he was and he said "life's great" . I have never heard him be that positive in his entire life. He also asked DH for a hug :)

HCJ Fab news!

indigo Lovely

Dh back today, thank goodness!

You know what? I think DS is starting to feel proper emotions. Happy and sad. Whereas previously all he felt (all the time) was angry, stressed and anxious.

But those aren't emotions. Happy and sad are.

I think the next bit of his brain is being switched on :)

I am so happy. DS is now happy.

and I am happy you are happy that ds is happy

Such exciting times..........

Poor ds1 still really struggling with the backwards stairs Might take a while.......

He is really pleased when he gets his stars for his VT...so obv which exercises he has problems with though..amazingly its the ones that deal with tracking!!! As I have been telling anyone who would listen since he was 6!!!! Aaargh......

Happy St Patricks day everyone x

Well done to everyone's DCs, seems there has been a lot of progress recently I asked DS's teacher about progress last week but she says he is still the same. He seems healthier to me so I'm happy but obviously an improvement in school behaviour would be excellent too.

Just about to set off to TH, I'm quite excited but a bit cross with myself that I can't find DS1's red book It isn't where I thought it would be (DS2's is there though!!) and I haven't seen it for a couple of years so not much hope of finding it in the next half an hour!!

I have a mild st patrick's day hangover too, hope Robin doesn't ask me too many difficult questions

jalapeno Oh dear...were you on the guinness?? I didnt have a drink yesterday as still feel pretty dodgy but sang a few bars of "The fields of Athenry" whilst the rugby was on!

Let us know how you get on at TH x

Ds1 made me a lovely card at school...such neat writing and no spelling mistakes!!! :)

Good luck jalapeno.

DS has been taking the supplements for about 2 weeks. He is been really 'over the top' silly for most of these two weeks (getting louder and louder - he has sensory issues with noise and touch). Is this normal to get a hyper reaction from them? Do you think it will settle down???

MrsB - Are you taking Vegepa, Floradix Kindrvital and Floradix Salyndum? If so I think you should ring / email Robin and ask him what he thinks.

Good luck Jalapeño.

Always makes me laugh when I am asked to take my red book somewhere. There naff all in it!

Robin was a bit surprised when I had to think very hard about ds' birth weight

Got to keep ds awake for half the night tonight ready for a prolonged EEG tomorrow. I'm exhausted already! he has spent ages playing with Lego today and building his own stuff - that is a new thing for him.

Eye Q, and the 2 Floradixes...

Does EyeQ contain any artificial sweetners?

No I don't think so (spent a lot of time looking at labels!) - though I will double check.

Ok. I think You really need to discuss it with Robin. He won't mind.

I know some kids are very sensitive to artificial sweeteners. Apart from that I can't understand what's going on.

(post back and tell us what Robin says if you do speak to him)

Happy mother's day all

Not guiness just wine but enough to make me feel eurgh. Had a glass of vino with dinner as a hair of the dog though so ok now

It all went ok, we have the stair and toothbrushing exercises to do and he failed the eye test 4/4 times so need to do that again at our next appointment. Everything made sense but now I've forgotten everything he said about brain bits did any of you ask for it to be written down? I'm a bit of a geek and like to research things like that but my memory always lets me down!

Glad it went well.

I'm sure he would email you some info if you ask. He replied to my email quickly after I forgot to pick up the exercise sheet.

Did he see you today? Good to know if he does weekend appointments.

Glad it went well.

The first bit of the brain you're trying to fix is the left cerebellum. When I googled cerebellum and dyslexia I found quite a few papers hypothesising it was a cause.

Although there are many hypothesis about the cause of dyslexia, and no consensus amongst the dyslexia professionals - from wht I can tell.

He said the cerebellum controls gross motor skills. And I'm really sure you'll see an increase in co-ordination over the next 2 months.

Apart from that Robin said that we're fixing the brain in layers. The only other thing I remember is that the last bit of the brain we're going to fix is the prefrontal cortex. (which controls social and emotional stuff)

I don't know the name of the bit of the brain my kids are working on - but it's about midway up the brain :) and it's fine tuning their vision.

I'm getting really interested in it, and am starting to read books about the brain. But my concentration isn't what it was so I MN instead

If I finish a good book I'll let you know.

My son preferrd the vegepa chewables to eyeQ

MrsB - DS2 has been sensitive to many brands of fish oil, including Equazen
( that was the worst) and EyeQ. His behaviour was the same as your Ds's - very hyper, almost manic. I have no idea why.

Indigo: There were about 4 different bits that he pointed out on his brain model that weren't up to speed with DS. I've forgotten the names and locations and would just like to have a look at the bits online, I'm an information junkie.

Took DS to his paed appointment today, she was very nice and thorough, longest NHS appointment I've ever had with anyone and all the way through it I felt like she was going to get to the end and tell me off for wasting her time as he behaved well and didn't fidget much!!

However, at the end she says she will refer to OT and write to school and ask about his behaviour there, she thinks there may be some ASD traits there which isn't presenting itself fully in a room of adults as he was today but at school he may have problems interacting with his peers, especially with his iron will and stubbornness. Depending on what the teacher says she will refer to CAMHS (sp?) if required. There is definately something sensory going on from her tests and questions and he has very loose joints so all that will be addressed now through the NHS pathway.

It's amazing how two healthcare professionals assessing the same child for the same thing on two consecutive days can be looking at this from such different angles. One made me feel really positive and the other a little bit like shit tbh and I had a quiet cry in the loo on the way out The doctor seemed very nice and good, don't get me wrong, but it seemed so much less about DS and what can be done rather than just sending us onto the next healthcare professional. I suppose that's what you pay for with TH!

The only positive thing from all of this is that they both (TH and paed) think that whatever it is is mild enough to not be a huge problem for DS and I thank my lucky stars for that but at the same time a month or so ago I didn't think there was anything wrong and I'm concerned things may not be as bad as they are going to get. Whatever, we know about it now and forewarned is forearmed or something and he seems to be taking all this in his stride.