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"Mummy...when will my brain be ready to do jumping?"

98 replies

Lougle · 25/10/2011 23:50

..said my 5 year old Sad

Sometimes, I think children like her are the most 'disabled' children out there. In that awful place where they is 'disabled' enough for their lives to be different, but 'able' enough to know it Sad

OP posts:
FanjoForTheMuahahammaries · 26/10/2011 16:24

anyway the important thing is

FanjoForTheMuahahammaries · 26/10/2011 16:24

ThanksBrew

thefirstMrsDeVeerie · 26/10/2011 16:25

I think you are right fanjo

I think its all a bit on edge on SN at the moment.

Time for a bit of Kum by ya?

Smile
Peachy · 26/10/2011 16:26

Hope you get a sleep soon fanj

There are times when I would give anything for ds3 to have the chances ds1 might, but otehrs where I would possibly horribly accept more severe ASD for ds1 if he's just stop hurting people, as you know my biggest fear for him is prison: he seems to have develped a knife obsession now which is scary.

I don't think Sn and what anyone should ro shouldn;t feel about it is ever possible to really quantify

FanjoForTheMuahahammaries · 26/10/2011 16:27
Peachy · 26/10/2011 16:27

Maybe we should all skip to the bit MrsDV where we all sing someone's sleeping? Wink

or better still someone's kids are all back at school Wink

Peachy · 26/10/2011 16:28

Maybe we should all skip to the bit MrsDV wh

ere we all sing someone's sleeping? Wink

or better still someone's kids are all back at school Wink

Peachy · 26/10/2011 16:28

Apols

ds4 moment there!

FanjoForTheMuahahammaries · 26/10/2011 16:30

i really dont mind if people's kids are more able than mine or if they have an easier time..not being defensive...just on the whole hideous "top trumps" subject...the less people having a shit time the better IMO even if I am not one of them

thefirstMrsDeVeerie · 26/10/2011 16:30

Can I just say......

I rang home from work today and DS2 (8) answered the phone and HE KNEW IT WAS ME!

First time he has recognised my voice

I know its not relevant but I thought it might lighten the tone.....

'someones sleeping Lord Kum by ya......EVERYONE is sleeping (please) Lord, Kum by Ya....'

FanjoForTheMuahahammaries · 26/10/2011 16:30

i think thats how we all are really

FanjoForTheMuahahammaries · 26/10/2011 16:31

that is fantastic MrsDeVeerie!

2011RWC · 26/10/2011 16:34

Just wanted to add again I never meant to be harsh, and I have apologised to Lougle. Sorry for you having to explain Fanjo :)

One thing this board has taught me is that we all face huge challenges.

(and I too could do with some sleep - exhaustion and tough times making me overly sensitive)

2011RWC · 26/10/2011 16:36

I can't sing - so can I hum along?

FanjoForTheMuahahammaries · 26/10/2011 16:37

hope lougle comes along soon so we can sing to her too

thefirstMrsDeVeerie · 26/10/2011 16:39

Thank you Fanjo. I was well pleased.

It usually goes like this

'hello'
'hello whose that?'
'mummy'
'what MY mummy'
'yes darling, your mummy'
'oh'
'can I speak to daddy?'
'um ok' rustle rustle 'DADDEEE your mummeee is on the phone' Hmm

This time

Hello
Hello darling
Who is that?
Guess
Is that Mummy?
Yes!!

FanjoForTheMuahahammaries · 26/10/2011 16:39

Aww I am teary too now!

DD called me "mummy" properly for almost the first time the other day. I am usually "deddy" or "mummydeddy"..

Unfortunately I was about to wash her hair and she was shouting "mummy NO"

Grin
thefirstMrsDeVeerie · 26/10/2011 16:44
Grin

DS used to merge names. My best friend is Tracey and her DD Sophie. He called them both Traysoph for ages!

I had a nice visit with a family recently. The DC is really coming along and eye contact and interaction is developing beautifully. A few months back you wouldnt have imagined it.

I see it a lot at work because I see the DCs over such a long period. It can happen and it does. Its just so hard when you are waiting and wondering Sad

Not that I would ever say 'dont worry they grow out of it/into it' Had that said to me TOO many times over the years!

Peachy · 26/10/2011 16:49

It's easier to see as well I think if you;re not there every day

We ahd a fab assessment at ds1's new school the otehr day (ASD Base)- behaviour thriving.

It's not yet translated into home (did I ever mention IT'S THE SCHOOL HOLIDAYS ARGH) but still- wow.

thefirstMrsDeVeerie · 26/10/2011 16:52

They LOVE DS at school. He is a flippin angel. This is a Good Thing but I cant help thinking they reckon I make up all the stuff he does at home.

Makes applications tricky because I cannot exepect the school to write about his challenging behaviour. He doesnt break stuff, steal stuff, hit people, climb out of windows, throw eggs over fences etc at school.

Saves all that for me Hmm

Good news about DS's assessment though peachy. Its a start isnt it?

FanjoForTheMuahahammaries · 26/10/2011 16:52

that is really good!

Peachy · 26/10/2011 16:59

It IS a start

though by the time his dla comwes up i'll lay money thewy'll have seen what we see

Marne · 26/10/2011 17:06

Lougle- my 7 year old cant jump either, we are not sure why, maybe due to low muscle tone plus she has hypermobility, she gets ready to jump but then just puts one foot out and steps instead Sad, she gets very upset that she cant run very fast and cant play the same games as her friends Sad.

justaboutstillhere · 26/10/2011 17:17

This reply has been deleted

Message withdrawn at poster's request.

Marne · 26/10/2011 17:28

Thats true, i offten argue with dd1 as she says 'i can't join in with anyone in the playground because i cant run or jump' but when i look around the playground most children are running, jumping and chasing each other Sad