"Mummy...when will my brain be ready to do jumping?"

[Lougle]

..said my 5 year old

Sometimes, I think children like her are the most 'disabled' children out there. In that awful place where they is 'disabled' enough for their lives to be different, but 'able' enough to know it

Sounds complicated.

Hope her brain lets her jump soon. It might - walking off the edge sounds like the development stage just before jumping off the edge .... :)

Wishing you good luck - and lots of patience.

Not having a neat label sounds like it also makes life support harder.

We're much luckier than some - DD1 goes to a fantastic special school, where they don't care about 'labels' or 'diagnoses', they just meet the needs of the children. She is loved and valued.

I guess it will be easier when DD2&3 have grown out of the rapidly developing stage. Once they are streets ahead, there won't be a comparison.

I think we're in a similar situation - my DS1 has global delays with no diagnosis and I have a DS2 who at 20 months younger is leaps and bounds ahead of his big brother. I apologise if I was harsh and for misunderstanding - if it's any excuse the good days have been few around here.

Anyway, hoping you are ok!

No excuses needed, 2011RWC. Life is hard wherever you are on the journey.

Perhaps it's the curse of a short OP. Ponder something for hours, write a very brief version to avoid boring people, yet manage to offend half a community with something that was never intended to be there.

advanced in any area is good in my book, my DD is, well, was advanced at drawing, I cling on to that.

Anyway I personally wasn't offended by the OP.

(the reason she isnt advanced at drawing now is that she is trying to change her grip and its all gone to pot)

anyway i am absolutely crap at judging what is advanced or not tbh, my DD's peak of communication at the moment is if she calls me "memmy" instead of "deddy". Not being bitter, it'sjust true, 2 year olds seem advanced to me.

Anyway I will shut up now as I am just waffling and the whole subject seems a minefield so wouldn't want to cause offence where none was intended in any way.

Oh Lougle that must have been so hard to hear.

I totally get what you meant, made me tear up a little.

I know just how you feel Lougle, i have one dd who is very aware that she has Aspergers and often gets upset because she's different and gets upset because her hypermobility stops her from doing things other kids don't even have to think about, then i have dd2 who has Autism (more severe than dd1) but doesn't understand that she's any different than others and doesn't care, she's always happy and nothing really gets her down (apart from change in routine). I spend hours crying for dd1 as its heart breaking seeing her upset .

Each child is different and each child with sn's have different challanges (a lot far worse than what mine do), but we are not here to say 'who's got it tougher than who' we are here to support each other and offer advice (well thats what i'm here for), Lougle is upset as her child notices that they are different and anyone who has been or are going through this will know how heart breaking it is to see your child upset because they know they have sn's (its a horrid feeling).

to lougle and to all of you, we are all parents of children with some kind of disability, lets just support each other not bash each other.

i dont think anyone wanted to bash lougle though? I certainly didnt. Was just discussing the subject. :)

Every ones entitled to their opinions (i understand that) i'm just saying that no one is worst off, we all have our own bundle of problems with our dc's that we have to deal with. Lougle just wanted a and some hand holding as she was upset that her dc was upset (which is understandable). My post wasn't aimed at you Fanjo, was aimed at everyone who thinks they have it worse than anyone else because i don't think Lougle wanted to start a debate (just wanted some hand holding).

Thats all everyone said though, that noone is worst off. Noone said they had it worse than Lougle. I was saying positive things about her DD to cheer her up a bit. I don't believe anyone on this thread said anything other than noone has it worst.

anyway will leave this thread, all I am trying to say is noone was getting at lougle, it appears people think that people were, and I dont think anyone was!

am trying to be nice but it is coming out all wrong, I blame the 2.5 hours of sleep I had

Hugs Lougle

One of mine is aware he has SN, the other seems to have no clue. ds1 not having the severity of ds3's dx is in no way a comfort when ds1 is sobbing his eyes out asking why he can't do things ds2 can, or has no friends, or couldn't go to the same school as the rest of his class.

DS1 isn't less disabled by his ASD than ds3 is, but he 8IS* more traumatised by it. That may well change should ds3 cotton on to his differences, it may also be linked to us having kept ds1 in MS a lot longer who knows?

And I am not sure Sn is a place ofr opinions, it's support / safe moaning etc. We have the whole rest of board for bickering or challenging.

Lougle is she getting good OT and physio input?

OOps X post with Fanjo!

Hope Fanjo 'knows' me well enough to know wasn;t emant abdly!

I wasnt bickering or challenging.

in fact I said some nice stuff which got totally ignored.

And now am scapegoat for everyone supposedly having been mean to Lougle. Will just zip lips in future especially if tired and can't express myself properly.

Just to illustrate a situation has cropped up just now:

ds3 has no idea that other kids his age go out to play, partly helped by his SN Base being a good 8 miles away but also because his brian doesn't seem to realise that although a child who was in his Yr1 class comes over to knock for ds2, that could translate to him.

DS1 is currently very, very angry as yet again a child from his old MS yr 6 class has just kncoked for him; she only started in the last term so does not understand ds1's issues as she met him just after we got constant 1-1 put in aplce IYSWIM. But ds1 lacks the cause and effect to understand why his behaviour causes him to not be allowed to play out, and when this girl calls (bloody all the time, does my head in!) he gets angry and or upset in an I hate my ASD sort of way.

Different kids different challenges but of all the situations we face this is one I particualrly hate.

FANJO

I crossed posts with you madam! I didn;t mean you at all. In fact I took so long to type my posts what with the mince pies to eat general hubbub that I saw your posts afterwards.

now shhh or I shall chase youa round MN with big hugs

i can imagine it is a crap situation, and dont even need it to be demonstrated how crap it is by being told of situations, I know it MUST be horrible see your child suffering from their awareness...as i actually said earlier several times :)

(that roughly equates to sorry btw)

lol OK, sorry, I am just tired, and felt I tried to say nice stuff and it got ignored and then I thought everyone blamed me and I NEED A SLEEP

methinks this is a thread where everyone was just feeling sensitive at the same time