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If your child has had an MRI scan how long did the results take?

40 replies

used2bthin · 19/10/2011 22:07

Following from my other thread as getting mixed messages from the hospital.

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r3dh3d · 19/10/2011 22:54

It depends entirely on the backlog the radiologist has. Has generally taken around 2 weeks for us. But if it's a relatively simple scan and an urgent need to know (eg has this child's brain cancer returned?) I know it's possible to get informal results at that level within 24 hours.

used2bthin · 20/10/2011 20:08

Thanks its a brain scan but the neurologist said it wasn't to look for tumours it was to try to get to the bottom of her SLI and other issues. So I guess their guess of a week was a bit optimistic as it isn't urgent.

DD had one before but not on her brain and we had the results in a couple of days (had "forgotten" about that as it seemed unrelated being on her kidneys etc not brain!)
I think I will have to tell myself three weeks and then maybe I will stop expecting THE CALL every day.

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used2bthin · 20/10/2011 20:09

PS hope your results were ok. I am vague about exactly what they may find so expecting it to be abit scary.

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TheNinjaGooseIsOnAMission · 20/10/2011 20:33

dd3s took a couple of weeks, the waiting is awful you have my sympathies Wine

moosemama · 20/10/2011 20:41

I am having another brain MRI myself in a couple of weeks time and was told last time to expect 2-3 weeks for the result - longer if they need to double check anything.

A friend of mine's ds recently had a brain scan to look for abnormalities which might explain his developmental issues and they've been waiting for 4 weeks now.

used2bthin · 20/10/2011 20:55

Thanks ninja it is unbearable. And made worse by the hospital being unclear about it. Its the worry of it could happen any time too, its never going to be that I am sat at home able to take the call then recover after, I'll be at work or with DD or someone else.

moosemama hope yours goes well. And your poor friends waiting over a month I'll have either gone mad or will have repressed the memory of waiting for any test result by then!!

DD's eeg took over a month actually and that was pretty awful too, in fact this year has been test after test result. The geneticist just sends letters which has the result of making me burst into tears but at least post just comes once a day so I don't have the call hanging over me.

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happydayyay · 20/10/2011 21:21

Oh feel for you ours took just over four weeks I did phone though so may have took longer if not. Hope your results give you some answers.Smile

used2bthin · 20/10/2011 21:30

Thanks happydayyay did they tell you to expect them to be that long?

I have already phoned two different secretaries asking just to know roughly when but the actual secretary is away till the 31st so I suspect it will be after that. Although I suppose the results are being analysed by the neurologist and then a doctor on the team will call so maybe it won't make much difference the sec being away.

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WetAugust · 21/10/2011 00:52

A week - but the consultant accompanied us to the MRI scan so this probably speeded things up.

used2bthin · 21/10/2011 20:16

Thanks wetaugust we were told to expect a week by the ward but they were maybe being optimistic. It will be two weeks this coming tuesday.

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golemmings · 23/10/2011 19:21

DS had an MRI scan last week (at 2 weeks old) following an initial diagnosis of "likely mild encephalopothy" at birth. We were told that unless the scan threw up.something significant and unexpected then we won't hear anything until his consultant appt in January.

I guess when and how you get results depends on what they are looking for and where your child is in the system.

used2bthin · 24/10/2011 15:02

Yes that makes sense. DD also had one at two weeks, did they swaddle and let him sleep? They did with her I was amazed she slept through it!

I still haven't heard anything so will ring if still haven't next week-we have an appointment in dec so I hope they aren't going to wait for that. I know they want her to start epilepsy meds or it is a possibility at least so I wonder if they will call regarding that at some point and do it all in one call. Really want to get it over with, bet you do too. Hope you get good results, such a hard wait.

With DDs first one we had results very quickly but it was to confirm something so I guess thats why.

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BobLoblaw · 24/10/2011 16:27

DDs was about half an hour when urgent, but just the next appt with consultant when routine. I hope you hear soon, the waiting is horrible.

2old2beamum · 24/10/2011 18:20

Please don't take this as gospel but DD had heart MRI and when we arrived home 'phone message to take her back and she had a pacemaker the next day.However DS had brain MRI results given at next appt. So my philosophy is no news is goodish news. I may be talking total rubbish BTW.

golemmings · 24/10/2011 21:08

Used2bthin - yup. He slept through and was swaddled. Only time anyone has managed to swaddled either of my children. He moved on a couple which had to be refine but I was amazed how calm he was given the noise.

How long ago was your DS's scan?

Hope you get the results you want and the appropriate treatment if required and I hope you hear soon.

used2bthin · 24/10/2011 22:52

bobloblaw and toooldtobeamum those are good reasons to feel reassured, if any surgery or similar was needed urgently they would have been in touch.

We had first OT appointment today which threw up some interesting stuff i'd not considered so I will see what the scan throws up. I am not exactly hoping for normal results due to the geneticist wanting to then start testing for metabolic conditions (dd already has a pretty serious one of these so the prospect of another, and the accompanying wait for yet more results is worrying me)BUT of course I don't want awful news from the scan either so i think no news probably is good news or at least not scary scary news fingers crossed.

Golemmings thats good, I remember DD's surgeon asking to anaesthetise her and the aneasthetist saying no thanks not at two weeks old and with her condition. So much better if they can sleep and I guess at that age they are used to noise from being in the womb. This time at age five was a different story! This latest MRI was two weeks ago. So not that long really but feels it.

And thankyou I hope you get good results too, lets hope not too long a wait for any of us.

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benbow · 27/10/2011 17:46

Hello mums, I'm a first time user, and reading this has put my mind at rest. I have been going out of my mind waiting for results from my ds brain scan. It's been 3 weeks tomorrow and the wait is excruciatingly painful. I am assuming no news is good news but it still leaves you with some huge doubts. So until I have been told nothing is wrong it still worries me!!!!

used2bthin · 27/10/2011 19:27

benbow hi and sorry to hear that you are waiting too, it is awful. How old is your DS? I've still not heard, spoke to the secretary covering the neurologists secretary yesterday and she said they are snowed under due to people being off and that the doctors meet on fridays to discuss scan results so it could be they discuss DDs and call me next week.

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golemmings · 27/10/2011 19:32

Hi benbow. The waiting is hard isn't it. My DH is happy working on the theory that there is nothing wrong until somebody tells him differently. I tend to plan for all possible outcomes and I know I have another 10 weeks of wondering about the extent of

golemmings · 27/10/2011 19:41

Brain damage that DS might or might not have experienced and wondering how, if at all it might impact on his life and what we can do about it.

I think DH probably has a more sensible approach tbh. Still only 8 weeks till Christmas and then I will be utterly distracted and the last couple of weeks will fly.

Do you know when you might get results benbow? Have you got an appointment lined up?

golemmings · 27/10/2011 20:14

Fingers crossed for you, used. Hope you get good news next week.

used2bthin · 27/10/2011 20:22

Thanks golemmings. Interesting as both dd's dad and my DP have the same attitude, they say lets not worry till we have something to worry about (aside from her list of already fairly serious issues lol). I just can't do it, like you. I want to know best and worse case scenario and all the inbetweens.

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used2bthin · 27/10/2011 20:23

really feel for you with ten weeks, maybe you could ring and just say you wanted to check.

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Davros · 27/10/2011 20:28

I always fall asleep in them and they don't swaddle me at the age of 51! Do they just "give" you the results rather than make an appointment specifically to follow up the scan? I would have thought that would work better. My last one took 2 weeks for us to know the outcome but that was at a pre-arranged appointment with the consultant. I tend to think that no news is probably good-ish. Good luck.

used2bthin · 27/10/2011 22:18

thanks Davros yes that sounds better, two weeks I could have dealt with I think, after my dds eeg they called me to say probably epilepsy but I had to wait three months for the appointment to discuss it with a neurologist, awful time.

This time will be a phone call, they have no appointments till our next one mid dec. I guess it depends what it is for, with the first mri we were waiting before we could start certain things so they rang in a few days. This time they have already said they aren't expecting tumours (!) but want to look for structural abnormality of the brain causing her learning difficulties or linking all her issues together. Scary to me though!

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