If your child has had an MRI scan how long did the results take?

[used2bthin]

Following from my other thread as getting mixed messages from the hospital.

Hello guys, my ds was 6 a few days before the scan. We have an appointment with the consultant at the eye clinic in a months time but have told them I don't want to wait until then to hear news good or bad..This is our 1st experience with mri scans and whatnot, so we're not well up on procedures, I have called a couple of times and don't want to appear like an overbearing mother, so next week when consultants back off holiday I may hear then!!! Our poor little lad, the 3rd of 3 boys is the one that seems to have everything thrown at him and thankfully takes it all in his stride!!!!!

We waited a week for dd's MRI results however she was still in hospital so it was easy to see the consultant. Hers was done 1 week after birth due to HIE.

Good luck to those on here waiting for results - it was the longest week of my life so I have every sympathy if it takes even longer..

my ds2 took about 3weeks but rang the consultant at cdu

For those with short waiting times, did you know what they were looking for? If you had to Chase and phone for results, were the hospital able to say yes or no to epilepsy, tumour or whatever?

Whilst I am doing myself no favours in imagining the possible effects on DS of what they might find, unless the scans come back completely clear, then what they tell us will be largely out if the blue and I'm not sure I want that conversation over the phone. Mind you, I'm not sure I want to completely break down in front of his consultant either so I don't think I want the results face to face.

I just don't want to be in this situation and I don't want it for DS. But I do need to stop crying about it and go and get dd some breakfast.

golemmings - our results were as expected - some mild brain damage due to hypoxia. However, despite having the MRI done no-one can tell you how things will turn out 100% of course. It was still a wait and see game for us (and still is to a certain extent).

Hope all is well with the results..

golemmings, dd3 was just coming up to 2 when she had her mri, we waited 2 weeks for the phonecall, I don't think either the geneticist or ourselves had any idea what it would show. When the geneticist rang she had the full results in front of her and they'd been seen by whoever it was that needed to review them. We weren't expecting the results to be clear given the issues we were already aware of but they were pretty grim as it happens and really not great news. BUT given that dd3 was 2 the geneticist said that actually dd3 was doing really well, if she'd have had the mri at birth they would have given us a very poor prognosis. There was a thread a while back discussing the plasticity of the brain and how it can rewire and learn ways round things, might be worth having a search for it.

once we'd had the phonecall we also got a follow up appointment which was good as it gave us time to think and compose ourselves. I still honestly think the waiting was the worst bit, at least once we had the results we could get on with concentrating on therapies, sorting provision etc for dd3.

Hi everyone, sorry not been on here lately-mid house move and can only get on every now and then as having to stay with family till the mortgage goes through (or doesnt but thats another thread)

So DD's results appear to have come back normal. The neurologist will call when he is back and has gone over them himself if there is anything to report but his team ave seen it and judged it normal. Which I am am not sure how to take. Of course it is great and a relief but after the initial relief wore off-she still has these issues so we still don't know a cause and now they are beginning metabolic testing. I am also sharing a bed with her and noticing jerks at night of around 30 secs or so so thinking I need to agree to meds for the epilepsy now.

May start a new thread but any idea whether it is fairly usual for MRI's to be normal when there is obvious learning disability? If a child had cerebal palsy would it show on MRI? How about autism?

Sorry long time till our neuro appointment. Hope everyone else has had results and are ok will now read thread properly.

We have just had the results of Alex's mri scan. I expected to have to wait until his appointment at 3 months (ie a 10 week wait) but had a letter today after 7 weeks. It was reviewed by the local team and by Alder Hay and it is completely normal. I am over the moon.

Golemmings, so happy for you must be a huge relief. Used2bethin, my ds aged 10.10 had MRI 9 Nov, results came back normal. I phoned to get result cos couldnt wait for appointment. Im unsure what they mean by normal as ds has severe autism, GDD, low muscle tone, ADHD. They were checking for cerebral palsy i think due to him having intermittent dystonia, legs seem to stick at times. Im unsure if they mean normal as he does not have cp but havent checked for other abnormalities. Surely my ds mri cant be normal he is almost 11 and doesnt communicate at all, cant dress or feed himself and is still in nappies, pretty much a baby really. Due to see neurologist within next few weeks so hopefully get answers then.

Hi shazian. That sounds really confusing for.you. hope the neurologist can come up with something helpful for you.

golemmings that is great, really pleased for you!

Shazian we have neurology appointment tomorrow and I am going to ask the same as you because obviously my dd's brain doesn't work as it should otherwise she wouldnt have her learning difficulties, it is confusing. Also I am going to ask if her brain was normal but small-she has a very small head so they said it was possible her brain is small. Also need to sort out meds for epilepsy. And getting bloods and urine sample done to be sent off for geneticist to test for metabolic and amino acid disorders, not looking forward to it she's had so many tests her veins collapse.

Hi used2bthin, how did your dd get on at hospital appointment today? Hope all went well.

Hiya, not too bad thanks although it was all fairly traumatic at the time.

The neurologist is faxing a prescription for anti epilepsy drugs through which terrifies me. I aske dabout how the MRI could be normal, given DD's issues and he said because it would show up reasons for the developmental issues if they were structural. If that makes any sense! So I think if there was anthing causing the issues that was to do with how the brain was made. I think! They didn't really give me a straight answer on her head size just that her brain wasn't too small for her skull but that her head size is still small so needs keeping an eye on. Confused still tbh !

Glad its all over for now, traumatic times eh. Hope goes ok with the drugs. Always a worry, and sooo confusing.

Thank you, hope you get more answers than I did at your neuro appointment.