I feel for you.
I had a meeting with the LA Ed Psych recently and she asked me about how I envisaged DD's future. I told her that I wanted her to live a life, a full life, as "normal" as possible, which means, living independently, having a job, and a relationship. Normal, in the everyday sense of the word.
She looked at me as if I was from the planet Zog or somewhere! But that is my aim and that is why I will keep on battling and fighting so that she gets the help and support that she needs now, so that she has a future, other than sitting in a day care centre, rotting away....
I often have tears in my eyes, when I see DD going into school. (Mainstream, 25 hours support, won at Tribunal, LA just itching to reduce!)
You see, I know that she is so brave. She is going into a world which often makes no sense at all to her, but she goes and never complains and always tries her best. She is beautiful, and funny and clever, just not in an academic way.
She has a long way to go, she is nearly 9 and she can't tell the time, can't do days of the week, has no concept of the value of money...I am starting to think that she may develop better "life skills" in a special school placement.
She is self aware and she knows she is different and we work hard on her self-esteem, which so far, is good.
Being a parent is hard. Why does the system make it so much harder for parents of children with SN?