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Has having a child with sn affected your health?

76 replies

Claw3 · 13/09/2011 13:31

There is obviously a lot of stress associated with having a child with sn's. Whether that is dealing with behaviours and needs, dealing with school, statements, tribunals, DLA etc, etc.

Ive just been for a dr appointment, as i havent been able to go the gym (my stress relief) for about a month as i was getting out of breath easily.

The dr did one of those blow into tests and apparently 73% is bad, she has given me asthama medication, ive never suffered with asthama. My weight has also dropped from 60kg to 50 something or the other and she feels lack of nutrients in my red blood cells could be causing my breathing difficulties and i have to go for a blood test to check my sugar levels etc. I also had a chest infection that i wasnt aware of, so now have antibiotics (i put it down to having a cold)

Her conclusion STRESS.

Anyone elses health suffering due to the stress of it all?

OP posts:
TheNinjaGooseIsOnAMission · 14/09/2011 12:35

brandy, you should have asked if he was offering Grin I think that would have ended that discussion.

sign, fab news!

VeryLittleGravitas · 14/09/2011 17:31

My Lupus, which has been in remission for years, is back with a vengeance. Ditto my Sjogrens...

And I've started sprouting clumps of white hair. FFS, I look like an elderly badger. Buggering bloody autism.

magso · 14/09/2011 18:42

Ooh yes I suddenly aquired a silver streak! But at least I have hair - it was falling out for no good reason before that!!
Amongst my circle of (sn parents) friends almost all have health difficulties.

hope you had a lovely morning Claw.

coff33pot · 14/09/2011 19:26

I am not sure if its the child with SN but more the proffessionals/school/LEA that has caused the most stress!

I seemed to be fine for 2yrs until starting this road of statementing and battling with a school that is clearly hard of hearing.

Went back on fluoxetine this week as finally cracked after the last meeting with school who dropped DS in the deepend by dumping him in a full class out of the blue first day of term. Caused the biggest meltdown I have ever experienced. Rang various proffs and insisted EP came to school and she did and read them the riot act on how exactly DS is feeling. Fair enough they have been put on a more understanding path but the pressure of dealing with it all finally made me crack up.

Did stop smoking and disgusted with myself that I have taken it up again, dont drink apart from the odd baileys but it is tempting lol and regularly forget to eat. Dentist? hmmm no time in the day and to be honest I just dont have the money to put it all right so I only go if I am crawling in agony lol.

However not been out by myself for 3 years but actually agreed to play darts with some girls this year which starts in a couple weeks so here goes to a social life Grin

brandy77 · 14/09/2011 19:34

coffepot i think your right its the professionals we have to continually hound for support/reports/apts that cause the most stress. Hope you enjoy the darts! I dont go out either but ive just ordered a pool table for my living room lol

coff33pot · 14/09/2011 19:40

ooooh! Brandy! I used to play pool for a league with my DH years ago I am soooo jealous!!!

Envy
brandy77 · 14/09/2011 21:20

lol coff33pot, get a pool table! i used to love playing when i was younger and was pretty good.Took my 16 year old son for a game the other sunday when the youngest was at his dads, and he was impressed with his mums pool skills Grin

brandy77 · 14/09/2011 21:21

im fortunate that my youngest with ASD does like pool BUT makes up his own rules, obviously! and i have to let him win but when hes in bed i can have a more serious play on my own Smile

coff33pot · 14/09/2011 22:04

Hmm I wonder if DH would notice if I exchanged the dining table for one and just put a cloth over the top Grin You wouldnt believe it I am actually looking at my extension with a tape measure in hand now Grin

Could use the excuse that DS likes playing ping pong but our table is too small..............its...........looking good...now to just put DH in a submission headlock......

pigletmania · 14/09/2011 22:16

smug I have hands of an 80 year old because of eczema, and have developed psorisis

smugtandemfeederispissedoff · 14/09/2011 22:26

piglet, they've given me hydrocortisone cream, its doing nothing to stop my eyelid falling off..... I have the eyelid of an 80 year old.

It's all a nasty vicious circle, you get ill because your child has a disability and its hard work, then they tell you your child has problems because you do.

The spa was nice today though. Lovely and relaxing. Except that clothing is optional. Everyone wore swimwear except one rather liberal middle aged lady who was rather large, so large she had to carry her bosoms. I did not know where to look! piglet, they've given me hydrocortisone cream, its doing nothing to stop my eyelid falling off..... I have the eyelid of an 80 year old.

It's all a nasty vicious circle, you get ill because your child has a disability and its hard work, then they tell you your child has problems because you do.

The spa was nice today though. Lovely and relaxing. Except that clothing is optional. Everyone wore swimwear except one rather liberal middle aged lady who was rather large, so large she had to carry her bosoms. I did not know where to look!

smugtandemfeederispissedoff · 14/09/2011 22:27

Sorry stupid phone is posting everything twice!

Claw3 · 14/09/2011 23:56

Good for you Smug and Grin at lady carrying her bosoms!

I had my eyebrows threaded today, ouch but it lifts my face, i look 10 years younger, i think it also makes me exaggerate slightly too!

OP posts:
madwomanintheattic · 16/09/2011 01:16

well, it's been one of those days here. nil by mouth and kidney/ bladder scans all morning, and an eye test this afternoon. results in a few days via the doc, and a potential hole in my retina that might need lasering. goodo. (oh, and as usual the lovely optometrist showed me my nice squiggly - tortuous or something i think the term is - blood vessels and asked if i had high blood pressure. no shit.) feck all to with sn per se, but i honestly do feel just generally a bit knackered, really. it can't help.

unpa1dcar3r · 16/09/2011 08:37

Yes most definately my health has been affected. I don't get to go to sleep like those with NT 13 n 14 yr olds and always have an ear cocked, so 14 yrs of not sleeping properly has an impact for sure, I'm always knackered by lunch time.
Also smoke, would most likely have stopped if not for stress involved with boys. So now I'm feeling the impact of that, my chest is bad, my breathing not so good...sometimes feel like I'm dying!

Also generally for many, the emotional effects; lack of social life, lack of employment opportunities, finances etc...these cause a lot of mental health problems for some.
The stigma associated with having a disabled child or children, the way society views us as carers...causing lack of confidence and low self esteem.

It's not simply physical.

BakeliteBelle · 16/09/2011 09:13

It's the teeth - and the sleep. And agree with unpa1dcar about the mental health problems and stigma. I have a good respite package now which is enabling me to look have some sort of life beyond the four walls.

I think I have also reached for easy solutions to the stress, e.g., a large glass of wine or two and I have put on weight over the years. Lack of sleep really effects your physical health and coping strategies

unpa1dcar3r · 16/09/2011 12:56

Yes it does Baker, if you're tired everything is 100 times worse and it's difficult to think straight or to concentrate and remember things...Apparently fish oils help with the memory and if I could remember to take them I'd find out if they worked! Wink

BakeliteBelle · 16/09/2011 15:28

As the Scots say, our heads are full of mince

Claw3 · 16/09/2011 17:44

Ive just been told my blood test showed high cholesterol levels. Im not sure how that happened, im not overweight (underweight if anything) i dont eat things high in sat fat, such as pies, sausauges or any red meat, prawns, eggs, cheese etc, i might eat the occasional cake or biscuit, but very rarely. I go to the gym at least 3 times a week (although i havent been for about 3 weeks, due to not feeling well.

Can high cholesterol be due to anything else, other than diet or lack of exercise?

Apparently i have to follow a diet sheet from my GP for 6 months, then test again.

OP posts:
madwomanintheattic · 16/09/2011 17:52

yy, we have family history of high cholesterol, so def genetic. i get tested regularly as it runs down dad's side. have they offered you meds? it's quite easily controlled... usually diet first though, so they're prob covering all bases...

Claw3 · 16/09/2011 18:02

My mum has high cholesterol, but kind of something that she has got as she got older, she is in her 70+, more a recent thing for her, she didnt have when younger.

No meds, just a diet sheet. I havent picked up the diet sheet yet, but i should imagine i dont eat any of the things on there already, so wont be able to cut them out. Seems a bit pointless following a diet sheet of things i dont eat already for 6 months! Still i should show willing i suppose.

OP posts:
madwomanintheattic · 16/09/2011 18:05

mm. frustrating though. i'd check once you get it and point out if that's the case. waste of time.

madwomanintheattic · 16/09/2011 18:06

how the frick do you get a hole in your retina, though? i've held off googling so far, but i don't know how much longer i can hold out. i've def stopped googling kidneys and bladder. Shock

unpa1dcar3r · 16/09/2011 21:22

Claw did the doc actually tell u which part was high?
Because it is in two parts, you've got good and bad. My bad is high or it was last time I checked it out but the overall result was very low.
Might be worth asking.

zebrafinch · 16/09/2011 22:31

teeth a mess as dentist went private and I was put on NHs waiting list and never had the time to follow it up, ended up having 2 extracted at emergency community dentist. Still no personal dentist, must chase it up on to do to list.
back at risk from lifting- muscle spasms and sciatica. Have hoist now.
Tennis elbow(positioning child).
Putting on weight through comfort eating.
On the positive side, now sleeping properly and no longer a zombie as night time care arranged a few nights a week . Have started swimming which gives me half hour exercise, thinking time and shower afterwards for £3.60 which am finding expensive but gritting remaining teeth as "I'm worth it"