INPP retained reflex/sensory integration, how do you get a non-compliant child to do the exercises?

[Sops]

We are wanting to start some RR/SI for our ds (5.3).
I've read around a lot and I'm convinced he would benefit. However, he is VERY demand avoidant and I wonder if we would actually be able to get him to do the exercises.
It's a massive struggle to get him to get dressed/clean teeth/walk to school/get in the car- everything. So how we would get him to do a series of exercises every day is a real concern. It won't work if he won't do them will it?
Anyone else got any experience of getting a non-compliant child to do this sort of thing?
Also, we think we might go to INPP in Chester. Can anyone tell me about their experience there?

Thing is, lots of posters on here have it soooo much harder than me I feel a bit of a fraud coming on here and bleating away

I hate complaining too as I feel it makes me sound ungrateful for what I have - we are lucky ds1 is even here!!!

Some days are better than others but we have a VERY stressful summer coming up - hols, house move, appts galore....will be glad when its Sept

I hear the terms SA and DLA and I just panic....dh is so in denial about ds1 and I hate arguing about him....I feel so alone sometimes. Without the MN SN/SEN boards I would be alone

Hijack away, I don't mind
Thanks for those links Ben10, I've ordered some behaviour balance- it sounds good. I have high hopes as I (virtually) cured my own psoriasis with supplements so I know they can work.
I'm going to look at those fizzy links too.
Lenin, so sorry to hear things are so hard for you atm. I thank my lucky stars that at least ds sleeps OK. It's hard to cope with average dc when you're sleep deprived, let alone a more challenging child.
Can you and dp take it in turns to get a good nights sleep? Maybe go and stay over at friends or relatives and have a peaceful night and a huge lie-in. If that's not an option maybe just in the spare room with some ear plugs . I know it's not exactly a magic wand but might help you a bit.
I too have mixed feelings about the hols, in a way I'll be glad to get him 'back' and a break from school will certainly help with his stress levels (and mine too without getting ready and picking up dramas). I'm always full of good intentions of wonderful things to do with the dcs but often actual life gets in the way. We've got lots on too with our big building project (hopefully) coming to an end in a few weeks and then moving back home after being at gps for 3 months!

lenin I know what you mean re: going out ds1 get s very anxious/unhappy if dh or I go out.

Dh is moving roles at work later in the year and it will mean foreign travel...should be fun

lenin I think ds1 has asd, apd, dyspraxia and dyslexia. (very long back story here and I wont bore you but ds1 has had lots of issues from birth...at first it was thought had CP)

He is having RRT and has completed a course of AIT. We just cant afford any other therapies right now so I will working with him over the summer (which I am dreading) on his literacy.

Its odd. School say they have no concerns (but he is very behind his peers) and then at the same time say he has improved loads over the last term (since he had AIT). I think because ds1 is a "good" boy he is overlooked

I sometimes feel that, with ds1, hcps and teachers all admit he has "issues" and yet none of them seem "bad" enough for him to get any help!!!

Am giving it another few months as school have requested and then applying for SA. Fuck 'em.

Ah.

See, I now also think ds1 has PDA

Becarooo, how old is your ds?
We have PDA as number one suspect here too, alongside possible dyspraxia and non-verbal learning disorder. Likewise, everyone admits he has 'issues' but not bad enough to get any help.
I think we will never get any real professional help- he doesn't have any typical ASD characteristics (he has very good eye contact and is articulate, doesn't mind changes in routine and does enjoy playing with other children, as long as they are the compliant type).
We have just had his report back and although he scores very poorly in social and emotional aspects he 'excels' in knowledge and understanding of the world. When you add up his total score it seems fine, but that's far from the full picture.
We now do have a paed appt, 6th Oct But I'm guessing that it will be a case of 'Let's wait and see how he gets on. Come back in 6 mths' so I'm not getting my hopes up.

lenin and SOPS Our GP referred him to the child dev paed in March at my request. Agreed I had cause for concern (although I think his main concern was that ds1 had undx mild CP)

Saw the paed in May. Doesnt think ds1 has mild CP. Initially he asked for ds1 to be seen by the spld team and the EP (due to his issues with reading and writing) and "subtle asd traits".

HT rang paed and spoke to him and now the paed has agreed that ds1 does not need to see an EP but is being seen next term by the dyslexia team only. If ds1 does not make "adequate progress" next year then they will get the EP in....and we are yet another year down the line.

Sigh. I cant fight them all.

On the one hand I think "Fine. Give them another year! Keep doing the therapies with him and document everything, then apply for SA with proof of inadequate progress with their support". On the other I just want to scream "Somebody PLEASE help my son!!!"

He has no behavioural issues (other than anxiety), is a good communicator, very friendly and enjoys playing with his friends.

He is also very anxious, very controlling and very immature in some ways. He is currently reading/writing at a reception level although - as the school say - he has made progress since being there (7 months)

Going back to see paed in August and am going to make it very clear I am not impressed that he has backtracked on his referral requests Wish we could afford a private EP assessment but a) we are moving house and have NO spare money atm and b) I think they would ignore it anyway.

lenin ds1 has MAJOR vestibular issues and retained Moro (along with several others!)

Am glad we are doing RRT and have done AIT - there is more I could do in the future which is good (cranial osteopathy and behavioural optometry)

Without the paed OR the school on my side I am just tilting at windmills I think

Lenin, thanks I'll pm you. Our family support worker was going to send us a dvd on this stuff but she's just sent me a note to say they've run out. That said, I've done a lot of reading around myself so getting up to speed on it I think. The more reading I do, the more convinced I become that it's hugely relevant to ds.

We could do David Mulhall just as easily as INPP practically, they're both about 2 hrs drive away. Mulhall apparently trained with Peter Blythe at the INPP so he may be covering much the same ground. He talks about the foetal reflexes as being the most important. I might buy some of those surgical brushes and try it out just to see if he would tolerate the sensation. I'm guessing that the body brushing must be quite pleasant else it wouldn't be a very easy therapy to use if it wasn't.

sops Peter Blythe is lovely.....he assessed ds1 back in March.

My OT gave me a couple of these body brushes which she got in the US. They are more expensive but much more robust. They cost £8 each but they are still as good as new compared to the ones available here in chemists, which fell apart quite quickly for me.
www.nationalautismresources.com/wilbarger-brush.html

Hi all, I'm trying to find an INPP therapist or someone else trained in foetal reflex treatment in the tyneside area or at least the north east - can anyone help? I can recommend plenty in the south east!

INPP is based at Chester - is that any good????

It really isn't that close but I can't find anything else yet......thank you for your help though

Its a 2 hour drive for us each way

Nightmare..... perhaps you could consider a new career..........

wowo thats great! thank you for sharing us those links.

thanks!
www.carlmontpharmacy.com