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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

Hey hey it's Friday! how was your week?

63 replies

signandsmile · 20/05/2011 18:13

Yay I get to start the thread again! (I am def not a night owl, so I need to get in early )

well, we went to the seaside, and ds was a star! had a few days in a caravan, (I made the rule no shouting in the caravan, we were quite close to others, and I said 'the man' from the caravan park would be cross. and hey presto quiet(ish) signlet!

had an proud mummy moment on way back, as little voice in the back said 'I wan sea! I wan sea, I sad!!'

recognising his emotions yay ds!

Altho had a moment too, as ds gets more speech he is getting more echoalia, I made wrong turn, said SHIT! and little voice from the back said 'sheet!' Oops . have not had to worry thus far, but will now have to monitor speech...

Got statement review next week and oodles of marking for work, but have made a HUGE list and so feel more in control, (sad I know).

How has everyones' week been?

OP posts:

moosemama · 20/05/2011 21:38

Anyone still around? If so, would you mind taking a quick look at my thread and seeing if I have just taken monumental offence for no reason and am being unreasonably stroppy?

I have no idea after the week I've had.

moosemama · 20/05/2011 21:38

Linky please babyheave - I can't find the thread!

nenevomito · 20/05/2011 21:39

Yes I will go and have a look. You go and read my story while I read your thread and then we can meet back here.

...

nenevomito · 20/05/2011 21:39

Hang on. link on its way.

creatovator · 20/05/2011 21:40

Babyheave. I'm intrigued... what does OTBT stand for? Can't find it in Acronyms.

moosemama · 20/05/2011 21:40

Smug, I think manic is a good description of how I felt then - er ... and now actually, although its sort of peaks and troughs these days rather than one long manic panic.

nenevomito · 20/05/2011 21:40

on this thead here

moosemama · 20/05/2011 21:41

Bless dh's little cotton socks, he's just come back from the petrol station with a bar of chocolate for me.

Right, am off to read.

EllenJaneisnotmyname · 20/05/2011 21:46

I think you've pretty much answered her question, moosemama! Very comprehensive and totally justified. Though I suppose she's either pretty new or has been away for a while.

StarlightMcKenzie · 20/05/2011 21:46

Smug, you're welcome but it's a double edged sword. You can pretty much expect the result to make you angry and depressed so when it arrives remember it is a tool/weapon and nothing more. Think how best to. Use the info for your ds, don't get hurt and defensive.

EllenJaneisnotmyname · 20/05/2011 21:48

Oh yes, I'm back from DS3's concert. Poor love fell asleep on stage! It was rather late.

creatovator · 20/05/2011 21:50

babyheave - just read your story. Very few things make me laugh out loud, but that did .

Moosemama - going to read your thread now.

StarlightMcKenzie · 20/05/2011 21:50

And smug, it's normal to be manic at this stage. You're trying to get familiar with systems and processes and the clock is always against you. But you might not see it ATM but once you have figured out where you are and where you are going and how to get there it all gets easier and calmer.

nenevomito · 20/05/2011 21:51

I checked out your thread and said something much less eloquent than you. I think you said it all.

moosemama · 20/05/2011 21:54

Thanks Ellen, I was rather more than a bit ranty though wasn't I. Touched a nerve I guess. - just felt like I was being told my son not getting any help was my fault because I haven't secured a statement for him.

Ah, poor ds falling asleep on stage. At least its Friday - ds had his school play on a Wednesday night and the whole year was like zombies the next day.

Babyheave - have commented on the other thread - but thanks again for being the only person to make me laugh this week!

smugtandemfeeder · 20/05/2011 21:54

Star I know she will write lots of crap about DH and I being upset about DSs birth and DH being upset about his childhood and hence being soft on DS. I know lots of it will make me angry but I quite like things which make me angry as they make me who I am. I get things done. I find a way to make things happen where others give up. That often happens when I get angry.

Hopefully CAMHS will have documented where I told her I thought DS had ADHD as I would like a record of that. And her response cutting me to shreads that there was nothing wrong with him. She had seen lots of boys with ADHD and he was nothing like any of them.

I dont know what it will achieve but it might help with something. Perhaps she will have documented his behaviour in her notes. She certainly wouldnt send me a list of behaviours she had seen in the letter I requested.

I have been angry with her for months now. Can I get any more angry with her?

smugtandemfeeder · 20/05/2011 21:56

Moosemama I didnt think you sounded ranty. Maybe you felt ranty when you wrote it but reading it without the emotion you felt inside I thought it just read like an eloquent and intelligent response which gives enough detail to understand. I really didnt know you were ranting. If I had ranted it would be much more obvious it was an rant!

nenevomito · 20/05/2011 21:59

My pleasure. I don't have much advice to give anyone as I'm only just starting out. All I have is the most embarassing moment of my life. Its a small thing and I am glad it helped.

smugtandemfeeder - that sounds so frustrating :(

moosemama · 20/05/2011 22:00

Thank you smug. It definitely left my fingertips as a rant - I feel anything but intelligent and eloquent at the moment.

moosemama · 20/05/2011 22:02

Babyheave, thanks for posting on my thread as well. I'm not much use with the advice and support at the moment, I do my best but 9 times out of 10 I can't remember what the thread was about by the time I get to the last post.

Your support is really appreciated. Thank you.

StarlightMcKenzie · 20/05/2011 22:02

Well smug you need to send in a data request to all the people she is likely to have written or spoken to. As she will deco weed what she gives you.

smugtandemfeeder · 20/05/2011 22:07

It is frustrating. She spent a year and a half in my life. Fortnightly visits. She is qualified and really her only purpose is to spot mental health issues and learning problems and yet she spent the whole time telling us it was our fault. I have had it with CAMHS. I have already said no more CAMHS in our house. She was a distraction. No more distractions. No more parenting courses.

She put me in mind of a sandal wearing vegan who couldnt quite muster the energy to go out and vote for the liberal democrates. (no offense if any of you are sandal wearing, vegans or nearly lib dem supporters. We are all inclusive here)

creatovator · 20/05/2011 22:11

Moose - I've posted on your thread. Not much advice to give I'm afraid. Sorry it's such a battle for you just now.

creatovator · 20/05/2011 22:13

PS - Makes my week seem easy compared to yours.

creatovator · 20/05/2011 22:16

Ooh! DH has come home with apricot cheesecake and . Going to have it.
Nite nite.

Moosemama - Hope things get better for you.

Smug - just caught up with your chat. Hope things get better for you too.

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