If you are a parent/carer for a SN child or children?

[YouaretooniceNOT]

How many hours/days/nights respite do you have?

My son has 2 alternate Saturday mencap 19am to 3.30pm

4 weekdays respite care - every school holiday - 9am to 4pm

10 hours per month direct payments - £171.00

I need more - i would like a weekend to myself every 3 months - i am going to ask the SW tomorrow
Any tips what i can say to her?

I m a lone parent with NO support network or other family.

I have one son whom is blind, severly autistic, no speech, doubly incontinent and dependent for all cares.

Thanks x

The OP has been stomping around the forums on many different threads with a somewhat blunt approach to issues, and has been fairly rude to a number of posters who responded in kind.
The burqa thread was where I noticed you first, YouaretooniceNOT.
I think you have a lot on your plate OP, and many unresolved issues about relationships and how to communicate with others, so I hope you are either looking for or receiving counselling.
Can't help with the respite info, but I do think the problems you have are much wider than that.

i will delete my account

bye bye horrid people

this is why i don't post here

errrm over 200 posts in 24 hours but you dont post here?

bah bye love.

You would have acknowledge my actual advice if you wanted real advice OP

Mamazonhereggsclucking you are a sad troll

beiong jealous over my son's respite

people i know get lots more than we do - in posh house, married big incomes

darth - gleaning info from threads is not difficult - now get the facts right

you are mostly 9not all) a spiteful lot of women with bitter hearts

bye bye losers

Mamzon's a troll? really

hahahahahaha

fuck someone caught me.

best get HQ to delete my, what is it? 8years of posting history then huh.

I did say that she has Big Issues and Wide Problems.
Move along folks, nothing to see here.

Well, at least you are persistent Mamazon, eight years is a long time to live under a bridge. You have stamina!

I've never been called a troll.

I wanna be a trollllllllllll

Oh no someone did 2 years back

as you were

Good grief! Trolling on the SN boards, they are everywhere lately!

OP/Troll, I think you are lying about the amount of respite you get. Honestly, nobody gets that amount of respite, ever! You should really do your research.

Mamazon, I always suspected you as a troll

She really didn't know how truly dire the respite situation is for those of you that use it. She thought that the deal she created had was a poor one.
Poor preparation for a launch.

it's not so bad. i use the dripping sewer pipe as a water feature.

being a troll isn't quite so glam Peachy. all you have to do is point out that someone is talking utter shite and voila.

Oh, and in answer to your question, I get 6 hours a week, during school holidays only.

And that is the MAXIMUM anyone in my area is allowed.

Mamazon, have you considered a little moisturiser, foundation and nail varnish? Does wonders for a girl.

communitiesonline.homestead.com/files/troll_2.jpg

Goblinchild

just be grateful i was seated when they took the pic.....i've not done my bikini line in ages

I'd like a tail, perhaps I should change my name to Trollchild. Or Mamatroll.

I am sorry I can't leave this.. Am I a troll?
My ds recieves 10hrs support in term time, 20 hours per week in school holidays plus 4 nights a month overnight respite.
He is not on any child protection registers, there are other children in our borough who recieve similar levels of support.
I do not bring this up because I realise it would be upsetting to others who get nothing but it does happen.
In fact I don't often post on this board and for the way the op/troll whatever was treated I know why.

PQR the diffewrence is you ahven;t accused us of being too lazy to fight ahrd enough or ignored actual advice

PQR, it is not just the amount of respite that the Op is stating, it is also stating others are jealous of the fact she gets it.

I have since been corrected about the respite, so apologies if my post has upset you.

I have 3 sons with autism, one has a co-morbid of adhd and is given to violent episodes, the other has sever speach delays and is incontinent, the other is a runner. I get 16 hours of dps a month.
I get nothing else. Apparently I don't qualify for holiday respite since I home educate two of them (because school had started restraining them).
I won't be asking for more though, social services around here are shits.

PQR, you're not ignoring the supportive replies and shouting down anyone who disagrees. You haven't, within the same 24 hours, started a thread saying how much you want another child, then another saying how you can't cope. And you haven't put yourself across as completely ungrateful for the support you have.

We all, carers (like me) and parents, have a lot to face when dealing with the agencies. A sense of humour and teamwork are the things that gets us through, generally. The OP has portrayed herself as lacking both which leads to accusations of troll.