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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

DLA cane through, great news

33 replies

Marne · 10/02/2011 10:19

Higher rate care and lower mobility .

Never expecterd to get mobility and was worried we wouldn't get higher rate care.

So happy , now i can go and buy some bits for dd2's sensory box.

OP posts:

bigcar · 10/02/2011 10:21

fantastic

intothewest · 10/02/2011 10:23

well done-have fun shopping for the sensory stuff

Al1son · 10/02/2011 10:32

Well done!

Did you get through much wine and chocolate doing the form?

Original poster

Marne · 10/02/2011 10:34

A few tons of chocolate and a couple gallons of wine .

Dh will be pleased, he has been stressing abount it for weeks. I will wait for him to get home and the tell him . I might have to save the mobility to buy a new Mac major for the summer.

OP posts:

devientenigma · 10/02/2011 10:43

I can see why you didn't use , when you are drinking it by the gallon, obviously a glass isn't big enough lol
Well done x

bettyboop63 · 10/02/2011 11:06

wtg such relief when you find out isnt it it makes such a difference getting it

coff33pot · 10/02/2011 11:11

Really pleased for you :)

NorthernSky · 10/02/2011 11:59

This reply has been deleted

Message deleted

starfish71 · 10/02/2011 12:55

Great news!

asdx2 · 10/02/2011 13:20

Great news dd's came through today too HRC and LRM for five years thank goodness. Only 9 days since I posted the form too

Original poster

Marne · 10/02/2011 13:23

well done asdx2, thats great news , dd2's is for 5 years too.

OP posts:

chuckeyegg · 10/02/2011 13:26

Good news. :)

ArthurPewty · 10/02/2011 13:26

This reply has been deleted

Message withdrawn at poster's request.

asdx2 · 10/02/2011 13:56

The DWP do seem super efficient at present. Wonder if they are worried they are going to lose their jobs?

superfantastic · 10/02/2011 15:20

YAY! Love all the good news. DWP does seem efficiant ATM.

Jodie0Louise · 10/02/2011 16:24

Posted ours a week ago and was going to ask how long it takes but it would seem not too long! Got a letter today though saying they are dealing with our claim and to get in touch if not heard anything in 8 weeks!

brambleschooks · 10/02/2011 16:28

Ours went in a few weeks ago. Got an acknowledgment but not heard yet.

Good news, am pleased for you.

HecateQueenOfWitches · 10/02/2011 16:29

Oh great news.

I sent my eldest's renewal through the other week. Got a letter this week to say that they are looking at it.

atm he gets hrc and lrm. I am arguing for hrm due to him being unable to be anywhere without adult support as he would be a danger to himself.

I have heard so many bad things about them taking dla away that I just have my fingers crossed that they won't take away what he gets now.

Jodie0Louise · 10/02/2011 17:03

What sort of things do you spend the DLA on?

asdx2 · 10/02/2011 17:05

Good luck Hecate with the HRM I do get HRM for ds and have done from age 5 when we went to tribunal when it was decided he had an arrested development.The best option for us as he has an average or even above average IQ.Have an indefinite award now so no more renewals thank God.

HecateQueenOfWitches · 10/02/2011 17:07

me?

support for clubs and groups, transport, access to activities, aids - he has also got erbs palsy and has a daily physio regime involving a ball, a wedge a theraband, tubes, small balls..., replacements of things he wrecks, underwear (new pants almost every time. he soils heavily) recently new bed. Again. he has lots of appointments seeing people re his autism and his erbs, there are travel expenses. his specialist is in london (we are in derbyshire) when he has to go down there it involves quite a lot of expense, special diet - he is gluten intolerant and we get certain things on prescription but everything must be gluten free, etc etc.

why?

asdx2 · 10/02/2011 17:23

For us DLA covers the extra expenses so extra clothes when they get destroyed by chewing or pulling, extra costs for holiday as we have specific needs to ensure their safety and comfort so isolated 4 bedroom bungalow with secure garden and hot tub or pool, wi fi etc costs much more than an average cottage or chalet that we would be able to use.Ds needs a sitter if he is left even though he is 16. Extra food costs because of severely restricted diets. Neither of them go to local schools so extra transport costs ds is transported but have to go to the unit 30 miles away regularly. We pay half into a trust fund to cover costs as they get older and they both get extra treats and rewards to motivate because they have a tough life and I like to make them smile.
Why do you ask?

HecateQueenOfWitches · 10/02/2011 17:29

oh yes. holidays cost much more!

dla doesnt cover anywhere near all the additional costs, does it asdx2? but it is cerainly a help. for which i am (we all are arent we) very grateful indeed.

asdx2 · 10/02/2011 17:35

no it doesn't cover it all Hecate we most definitely don't profit from it but life would be unbearably hard without it.
We should of course remember that we are paid the princely sum of £53 for providing round the clock care for two children with ASD though and be very grateful

Jodie0Louise · 10/02/2011 17:37

Just because i realised i didn't really know what is was meant to be spent on. I read it wasn't to cover costs of things like hospital appointments or turning the heating up. I guess it's things I pay for already like transport to groups and toys to help him. Stuff like that.

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