Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

SN children

Here are some suggested organisations that offer expert advice on special needs.

Flip

1 2 3

Original poster

About Amberlight

73 replies

amberlight · 04/02/2011 09:33

Just in case people wonder where I am, I'm undergoing treatment for breast cancer at the moment (eek)(not one of the simple sort, we think so far, but not totally disastrous so if they can hammer it with enough chemo and surgery I should be ok after 8 months or so). Operation yesterday to investigate it a bit more so a bit stiff and sore today. I'm hoping to be able to write something useful for the autism community about how to navigate through this stuff, since I don't think there's a thing out there (and 1 in 8 women, autistic or otherwise) now get breast cancer at some point in life.

OP posts:

IndigoBell · 04/02/2011 09:47

Very sorry to hear that. Will be thinking of you.

Please keep us posted so we can pass on big hugs to you as you need them....

MarioandLuigi · 04/02/2011 09:47

Wishing you all the luck in the world with your treatment Amber :)

bigcar · 04/02/2011 09:48

oh amber, I'm sorry to hear that. Wishing you a full and speedy recovery and sending you hugs x

donkeyderby · 04/02/2011 09:50

Amber, really sorry. How hard for you. I'm not much of a hugger, but lots of hugs for you xx

5inthebed · 04/02/2011 09:52

Wishing you all the best Amber.

You're experince if you can word it would be very helpful for the ASD community. You're one brave woman.

coppertop · 04/02/2011 09:55

I hope the treatment goes well, Amber.

Good luck with the writing too.

pinkorkid · 04/02/2011 09:57

Hi Amberlight, Hope everything goes as smoothly as possible with the breast cancer treatments. It will be very interesting and useful to read about your experiences, both for other women with autism going through the same thing and for their families.

Timeforateabreak · 04/02/2011 09:58

Amber, I'm so sorry to hear about this.

Please keep posting so we can support you if you need to vent.

You have helped me a few times on this board and many others too, so I'm sure people will want to know how you are getting on. I know you are very well thought of on here.

How are you feeling today post op? I hope you are not too uncomfortable and wish you a quick recovery.

Sending hugs.

lisad123isasnuttyasaboxoffrogs · 04/02/2011 09:58

so sorry to hear that hun, its a hard thing to deal with. How long have you known? How are kids? If you need anything, just give us a yell, I can recommend a few books for the kids if you like.

Original poster

amberlight · 04/02/2011 10:06

I feel ok after yesterday. Hugely relieved to be home with family. Not really in any great pain, maybe because the nerves are numb under that arm now anyway (often happens)(but who honestly needs to feel under their arm! Least of my problems ).

Poor DS is really finding it hard, though, even at age 18 now. He's always seen me as the family's 'rock' and the idea of me having medical stuff for 8 months has panicked him. His school are being great about support and I'm keeping talking to him lots, though.

I've known for about 3 weeks now. Found lump one day, saw GP the next, at rapid diagnosis clinic on NHS 6 days later, then a whirlwind of tests. Wow, they do everything!! But such lovely people. Shocked to find out that despite regular checks, this lump was quite a size but hiding.

Get 'em checked, ladies.

OP posts:

lisad123isasnuttyasaboxoffrogs · 04/02/2011 10:18

Im glad your home, make sure you take it easy and keep yourself well.
I check mine often, and found a lumo last year but wasnt anything to worry about. Living with cancer sucks but make use of any help you are offered.

purplepidjin · 04/02/2011 10:22

Keep strong xx

moosemama · 04/02/2011 10:23

Sorry to hear this Amberlight.

Wishing you a speedy recovery.

Original poster

amberlight · 04/02/2011 10:24

ooo, choc and wine! Splendid!

OP posts:

Marne · 04/02/2011 10:28

Good luck with the treatment Amber, will be thinking of you and your family, take it easy xxxxxx

Phlebas · 04/02/2011 10:28

Amber, I'm so sorry to hear that, wishing you the very best.

Original poster

amberlight · 04/02/2011 10:33

I'm hopeless at taking it easy but I'm certainly having to work very differently now.

Weirdly the thing they found that doubles the chances of recovery is a supportive group of friends and family in the first six months after diagnosis. Huge research by scientists, so seems accurate. They have no idea why. It concerns me for people on the autism spectrum, because of course we find it the hardest to make those big social networks work for us. Much to think about when writing this stuff...

OP posts:

Tiggles · 04/02/2011 11:07

Good luck, will be thinking of you all xxx

mumgoingcrazy · 04/02/2011 11:10

Wishing you a very speedy recovery xxx

macwoozy · 04/02/2011 11:31

Wishing you all the best Amber x

someoneoutthere · 04/02/2011 11:39

Good luck with the treatment, hope everything goes well.

Floopytheloopy · 04/02/2011 11:42

Best wishes Amber. xx

yoshysmum · 04/02/2011 11:43

Wishing you luck and courage Amber, and a big unmumsnetty hug (()))

sugarcandyminx · 04/02/2011 11:44

Sorry to hear your news amberlight, but glad it's being dealt with quickly. I've known a few women who have had successful treatment and they've all praised the speed and care they've received.

Wishing you all the best.

justaboutfrayingattheseams · 04/02/2011 11:45

This reply has been deleted

Message withdrawn at poster's request.

Flip

1 2 3