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2 year old not understanding anything

82 replies

farri · 24/11/2010 15:43

hi
My son is 2 years and has not as yet been dx with asd. I just feel like he cannot understand anything I say at all. Has anyone else had a similar issue and what can I do to help him? I am paying for private speech and language therapy and have a lady from portage coming to see me next week.

He says a few odd words here and there but I always feel its without meaning. TBH the not speaking is not the problem for me yet its the lack of understanding.....any suggestions would be much appreciated

OP posts:
yi3o8 · 19/12/2019 15:17

Just wanted to join in. Hard to find similar cases so will keep updated. My done is 2 next Friday and has no words. He'll say eeeeeeeeeee when excited to eat. Dahhh Dahhh Dahhh sometimes. Make dinosaur noises. He follows some directions when he wants to but no 'simple' directions like take this to mom or give this to me. He will do those things on his own. He listens to no when he wants. He listens to use the spoon when eating if he's caught sticking his hand into food. He's been seeing speech, pt and ot for a year.

I also didn't talk until I was 4. Mumbled so bad virtually Noone could understand me. Couple years of speech and I was fine. But I always followed directions well since I was 2. Everything someone told me so it wasn't an issue. Also, I has fluid in the ears so that could have contributed.

Worried about ds for same reason everyone else is here. He does not flap hands. Sometimes flaps arms but not super often at all. He gets upset waiting on good when hungry but no real fits or anything. He sucks his thumb, I did too. He brings us toys and books a lot. Loves playing independently and with other kids. He's a happy baby. He's had hearing test and was a late walker because his head has always been 99.9 percentile.

Any words of encouragement and/or questions are welcome.

yi3o8 · 19/12/2019 15:22

Sorry for misspellings. Can't edit because I'm on phone?

I'll add one thing that probably doesn't matter. He's good at figuring things out like opening doors and is generally curious about how things work. He also helps when getting dressed. The not understanding simple directions is the main thing other than no words.

Fr0thandBubble · 21/12/2019 23:57

Some hope from me too - my DS didn’t understand a word at 2. He was diagnosed with autism at 19 months. I was very worried he would never talk or communicate in any way.

He’s just turned 7, is entirely fluent and understands everything (in fact, scored way above average in a vocabulary test age 5!). Is in a mainstream school with no additional support and is getting along fine. Not going to end up at Oxbridge but is doing fine. Most importantly, he has friends. He’ll always be a bit quirky and his motor skills aren’t wonderful, but he is a very different boy to the boy I thought he would be age 2 or 3.

kellbelle92 · 13/01/2020 10:40

In the same boat here too! 23 month old ds , no speech at all, no babbling , no understanding apart from maybe 3 things , no pointing , no gesturing other than holding his hand to hold mine and pulling me. I’m so worried and cannot seem to bring him on at all 🙁

yi3o8 · 13/01/2020 12:19

We need to keep hope. My son has something called cavernomas but the neuro surgeon said non were in a bad spot.

As mentioned, I didn't talk either. Until I was 5 or 6.But could understand everything and was said to be great at listening to all directions by my caretakers.

From.what I've learned, my ds does show shared attention in some ways but no pointing which is usually how kids ask for labels in order to learn. When I offer him two food choices, he'll grab for what he wants and get frustrated if he doesn't immediately get it. He doesn't throw a fit, but I'd like to see him look at me for an explanation.

He has another speech appointment today and will keep putting updates here for anyone (possibly) in the same boat.

Olliesmum2017 · 14/05/2020 17:49

This sounds exactly like my son, we have been referred for speech therapy. I worry so much about him😞

CP2701 · 17/05/2020 20:14

I would love to hear some updates from this thread if possible.

yi3o8 · 18/05/2020 01:35

We went in for an mri Tuesday which was little to no change. Relatively good news.

Haven't been able to attend speech therapy due to covid. He's 2 years 5 months and still no words. He says eeee if he wants to eat. He's expressive but doesn't understand verbal commands. He's fine with nonverbal routines and he knows how to get what he wants. He's compassionate when he wants to be. Will grab your hand and put it on what he wants to use or bring your shoes to go outside. He has been covering his ears the past few weeks when something like the vacuum comes on or other whooshing noises. Not sure if it's a sensory thing or he's just experimenting.

Been trying speech blubs app

Jadecruiz · 17/07/2021 12:44

Hi , just wondered if you had an update? As we’re in the same situation x

Frankie2007 · 17/03/2022 20:45

Hi my little boy is the same he's 2. 5 and no receptive language it worries me so so much

Mumof22020 · 21/03/2022 15:02

I'm having the same problems with my just over 2 year old DD, she doesnt understand any instructions and has no words at all she just babbles. We've been to see a pead and due to go back May sometime and she will decide then if she'll be reffered for asd. Had her hearing checked and it was fine and shes been referred for speech and language. I was so sick with worry I had to be signed off sick from work and took anti d's for a few months, so worried about her future it keeps me awake at night. Shes such a lovely little girl and it just worries me will she be able to make friends when shes older.

starfishmummy · 21/03/2022 15:09

@Mumof22020

I'm having the same problems with my just over 2 year old DD, she doesnt understand any instructions and has no words at all she just babbles. We've been to see a pead and due to go back May sometime and she will decide then if she'll be reffered for asd. Had her hearing checked and it was fine and shes been referred for speech and language. I was so sick with worry I had to be signed off sick from work and took anti d's for a few months, so worried about her future it keeps me awake at night. Shes such a lovely little girl and it just worries me will she be able to make friends when shes older.
@Mumof22020 You would probably be better off starting your own thread if you want some support.

The original post on this thread is from 2010 so the 2 year old will now be teenager.

Mumof22020 · 21/03/2022 16:13

Thanks @starfishmummy just seen the last post was on the 17th March.

Frankie2007 · 21/03/2022 16:24

My wee boy is the same he seems to be very visual, he can copy doing things I show him but can't understand what I'm saying

Mumof22020 · 21/03/2022 17:25

My daughter doesnt copy, point or do any simple instructions. She babbles alot but no actual words but shes been reffered for SLT. I worry about her all the time and its on my mind 24/7 but I've read a few positive stories so just trying to be hopeful x

Frankie2007 · 21/03/2022 19:20

My wee boy is the exact same, he's in speech and language atm, his referral came through and he being seen for a 90 minute assessment on the 8th of April, I worry round the clock it's in my head alday everyday

Mumof22020 · 21/03/2022 23:17

Is the 90 minute assessment with a peadiatrition? My daughter had this and she said she was showing autistic traits but because she was under 2 she couldnt refer her for asd but she would see her 6 months later when shes over 2 and make a decision then if she'll be reffered which I think she likely will. Hows your son getting on with SLT does it seem like it will get easier with the speech? Sorry for the late reply I'm just in from work.

Frankie2007 · 22/03/2022 05:56

He's 2.5 he's non verbal she dies play with him and he gets on well, alot of babbling, I worry ick about the future, thwm I read alot of positive stories and I then get positive, it's so hard, what does your little girl do to communicate

Mumof22020 · 22/03/2022 08:06

If she wants something like a drink or food she'll pull me by the hand to the kitchen. This has been goin on for a year since autism was mentioned by the health visitor so to try and bring her along we put her in a playgroup for a few hours a week but she just plays by herself, hasnt brought on her speech but has made a slight improvement in things like eye contact. It is really worrying but like u said try and let the postive stories make us feel better and theres still hope that they will talk x

Frankie2007 · 22/03/2022 15:19

My wee boy has come on he was totally mute but he babbles away like he's talking to you, if I show him coat etc he knows what it means just not what I'm saying, how is your wee girls understanding? I hope he speaks would break my heart if I never heard his wee voice, it's so hard to communicate because he doesn't have the understanding

Mumof22020 · 22/03/2022 16:03

Shes always babbled since she was a baby and said mama and dada but it was just part of her babbling, like if u said wheres mama or dada she wouldnt look at us. She understands no only when she wants too but other than that no understanding of anything else really, she doesnt even turn to her name. I most of the time feel sick with worry but my DP thinks theres nothing wrong with her and she'll be fine but i think he just says that so i'll not worry as much.

Frankie2007 · 22/03/2022 16:14

My partner thinks he is OK I have 4 kids and I know he's no where near where he should be, he has only recently refusing to sleep in his cot, he won't go in the pram and won't get dressed throws tantrums, I work 3 days a week so it's very hard.
He pulls me to things are puts my hand to things he wants, he wants outside from morning to night oh and he used to love the bath but hates it now, I thinks he's becoming more aware of his surroundings

Mumof22020 · 22/03/2022 16:32

Thats the same as my wee girl she'll put my hand on things, like if shes watchin tv and wants the channel changed she'll give me the remote. I have a 2 kids and my oldest is 12 and at her age she was saying full sentences and able to count she was extremely bright. I know i shouldnt compare cause all kids are different but shes way behind in speech and communication. I cant wait to get started with SLT and hopefully it wont be to long before she starts speaking. She has the odd tantrum but i would just put that down to age and she used to hate the bath but now i cant get her out of it. Whats the speech and language therapy like? Is it useful?

Frankie2007 · 23/03/2022 05:58

Sorry for late reply I never stopped after worked yesterday, yes I find it great hecfukky engages the whole time playing with her which I was very surprised at because he doesn't at home with me, he's going every two weeks now, the play that do is great.

Mumof22020 · 23/03/2022 09:10

Thats sounds good, my wee girls the same she prefers to play by herself and shes no interest in me if i sit on the floor and try to play with her. She also just plays with random things but no imagination play she just moves things around the room. I cant wait till she starts speech and language and i can get some tips that'll hopefully make her engage with me more. Theres over 10 years between my 2 kids so its not even like they can play with each other.