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If you could go back to when your SN life started

40 replies

ShadeofViolet · 04/10/2010 11:21

and give yourself some advice, what would it be?

OP posts:
SparkleRainbow · 04/10/2010 11:24

Work at celebrating all the good days.....there will be bad ones

TotalChaos · 04/10/2010 11:26

)put in written complaints about waiting lists, rather than meekly accept a severely lang delayed child being left to drift for a year by the system.
2)get private salt as soon as I was worried about DS.
3)pull DS out of private nursery rather than be grateful they would have him
4)look into melatonin for a child who regularly went to bed at 2 am...
5)make more effort not to pile on 4 stone in weight.

5inthebed · 04/10/2010 11:28

Write everything down, it will help in the long run.

silverfrog · 04/10/2010 11:28

agree - definitely enjoy and celebrate the smallest of victories.

relax in the tiniest of peaceful moments (it won't stay that way for long!)

bear in mind that you're in it for the long haul - you can't do everything all at once, so prioritise, take stock, and move onwards slowly but surely.

SparkleRainbow · 04/10/2010 11:31

TotalChaos.....point number 5 is my life! Grin Anyone fancy a biscuit?

SweetGrapes · 04/10/2010 11:37

When I resigned and my employer offered me leave without pay for 2 years - TAKE IT!!

imahappycamper · 04/10/2010 11:40

Not keep thinking it was just immaturity and he would grow out of it.

SweetGrapes · 04/10/2010 11:47

Push the doctors and ohp and not take waffle for an answer.
Don't doubt yourself - if you think there's a problem - there probably is.
and of course, the long haul thing. It's a marathon - not a sprint.

SweetGrapes · 04/10/2010 11:48

The DLA form is not difficult as it looks - letting it lie on the shelf for 1 year is not a good idea!

sarah293 · 04/10/2010 11:52

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2shoes · 04/10/2010 11:53

have a C section, or a different midwife, so that your baby doesn't end up brain damaged.

sarah293 · 04/10/2010 11:54

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mariagoretti · 04/10/2010 12:09

Sad Riven... Wish I could say something that wouldn't sound like a cliche. Pls do message me about the wheelchair thing. No promises but I know a little bit more about bucking the system than I'm comfortable posting.

midnightblues · 04/10/2010 12:21

I second what 2shoes said. They didn't give me a c section either...

sarah293 · 04/10/2010 12:26

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2shoes · 04/10/2010 12:28

i wasn't offered one, I just wish I had been to posh to push.
normally I don't dwell on it, but mn is making me feel poor and a scrounger today

troutpout · 04/10/2010 12:30

I would say
'He will be ok'

roundthebend4 · 04/10/2010 12:44

Don't let them fob you of demand the help sooner

oh and the other don't ask ss for anything they will drive you close to a breakdown

roundthebend4 · 04/10/2010 12:47

Riven 2 shoes

I had the csection after they insisted trial of labour and somehow in that trial even though midwife mentioned csection as heart dropped and one dr swore was not his head he could feel amd was pooh popes by another

I had 12 hrs trial etc with drip in end ds by csection as I first bloody wanted he wax tranverse breech

Mitchell81 · 04/10/2010 15:51

Ten years ago today I was in labour with DD at the time I knew nothing about the life she or my family would go through. Now 10 years later after many operations, epilepsy and scoliosis. My angel little girl is still happy and smiling and we are blessed to have her in our life even though it was definetley not the life we chose.

StarlightMcKenzie · 04/10/2010 16:01

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StarlightMcKenzie · 04/10/2010 16:03

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SanctiMoanyArse · 04/10/2010 16:09

OOh me too with teh 4st- satrted rosemary conley last week though so fingers crossed!

All those years doing jobs with people who had SN, needed help or whatever weren't wasted portential income lost through over developed morals as the ex said, but the best training ground possible.

Don;t just sned the kids to teh school with spaces becuase the LEA say when you move into the area. When an ofsted highly rates school with a very posh rep has spaces at whitsun there's domething very, very wrong afoot....

IndigoBell · 04/10/2010 16:57

When the nursery teacher says horrible things about DS - listen to them, rather than assuming she's just being nasty :(

When DD doesn't learn anything at school, don't assume it's because they start school too young in this country and she'll learn when she's ready ( Just realised today that 7 year old DD still can't write her name - only the shortened version :( )

Compare your children to other children to find out what they actually can't do.

Be a pushy PITA mum.

StarlightMcKenzie · 04/10/2010 16:59

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