<sigh> DD's first day back at school

[KatyMac]

Poor DD, no 121, her little friend that used to help has been moved to another class

So she is wandering around lost, late for lessons, doing no work when she gets there

She won't go to Student Services, "Can't you sort it out mummy?"

If they continue with the 'CP'line then our family & my job

I phoned Parent Partnership to talk about removing her from school & the fact that if she is hurt I will very publicly sue the school for not protecting her - they were a bit ed

I would explicitly ask them toput in writing what the CP issues are

Have you spoken to CAB?

No - not CAB

Wrt CP when I asked they said there were no issue I asked why they had been brought up & they said well there might be

The treatment for conversion disorder is psychotherapy.On top of that she should still be supported at school.

and DLA isn't diagnosis dependent. It's need dependent.

They sound useless

Katy-Ireally think you need to be making detailed notes - names, dates, times, quotes.

And keep on fighting. As saintlydame says, the treatment is psychotherapy

Is there a PALs linked to the hospital?

I am not an SN expert so my suggestions may be useless. Just trying to think what I would be doing in your situation

I think I would be goibng down the lines of asking why they are not treating her diagnosed 'conversion disorder' with psychotherapy

I also think if you asked them to confirm in writing the CP/none-CP issues,they would back down....

Yes although the treatment is psychotherapy it doesn't mean she's doing it on purpose!

Have you seen proper experts?

katy, I'm sorry but it sounds like they are using the cp to scare you off. If they had solid concerns you would have been investigated by now. As far as basic safety around school goes, I would consider reporting them to ofsted, they take safety of the children very seriously.

what'syour gp like?
He/she shouldhave a copy of DD's discharge letter, as should you.If not,I would request one in writing

am just googling

there is a consultant in edinburgh with aspecial interest in conversion disorders....Iwould betempted to approach himwith a letter/email if it were me....

shy girls get nowt:)

also
unexplained visual loss
Consultant Liverpool (NHS/Private)
St Helens (Private)

Ophthalmology, Cerebral visual impairment, neuro-ophthalmology, paediatric ophthalmology, ocular motility, optic nerve disorders, craniofacial disorders of children, unexplained visual loss, non-accidental head injury, visual abnormalities following

unexplained visual loss Consultant Bradford
(Private)
Leeds (NHS/Private)

Ophthalmology, Neuro-ophthalmology, optic nerve disorders, unexplained visual loss, field loss, nystagmus, diplopia, cataract surgery, refractive cataract surgery, uveitis, developing country ophthalmology, scleritis, iritis

this appears to be your man

Dr Jon Stone
Dr Jon Stone is a Consultant Neurologist and Honorary Senior Lecturer in Edinburgh. He trained in Edinburgh, Leeds and Newcastle. He has been working in the area of functional symptoms in neurology since 1999 and collaborates with Michael Sharpe, Alan Carson and Charles Warlow. He has a particular interest in 'conversion disorder', especially the symptom of weakness (for a general clinical review article see Stone et al. Functional Symptoms in Neurology. JNNP; 2005; 76 (Suppl 1): 2-21)

read firstsentence inthe abstract ofthis

bpsu.inopsu.com/studies/Conversion_disorder/Protocol_Card-Conversion_%20Disorder.pdf

Thanks for all this - I can't read the abstract but they are calling it functional vision loss rather than conversion disorder now

DD came in - she has spoken to Student Services; thank goodness - hopefully they will listen to her

The CAF is meeting next Friday; I am dreading that

Sorry I didn't mean to sound dismissive but I am struggling so much with this; I had calmed down considerably during the summer and it has all gone pear-shaped again after 1 day

functional vision loss and conversion disorder are in my understanding the same thing.

Jon Stone looks well worth contacting. It's amazing what having someone on your side can do.

I know but he is for adults - do I just email him?

Yes that can work. Or usually they have a secretary you can ring. They might give you details of someone who can help.

I have emailed countless doctors/researchers over the years. About 75% reply and are very helpful.

I googled him

I thought email because it's easier

definitely email

These people are theones who carried out the study i linked to below:

Principal
Investigator
Dr Cornelius Ani,
Consultant Child and Adolescent Psychiatrist and Honorary Senior Lecturer
Academic Unit of Child and Adolescent Psychiatry
Imperial College London
Norfolk Place, London W2 1PG.
Telephone 02078861145, Fax No.: 02078866299 E-mail: [email protected]
Coinvestigators
Prof Elena Garralda. [email protected]
Dr Richard Reading. [email protected]
Richard Lynn. [email protected]

hope youcan get some support and answers

DD went to school much more positive today

& DH & I really need to seriously discuss HE

Although I don't think I can do anything before the CAF

When is the CAF?

Week tomorrow