Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Bibic those who have been

36 replies

TheArsenicCupCake · 14/07/2010 21:23

Can I ask how soon after the telephone interview did you get the date for the assesment days?

Been given a date for interview and I forgot to ask the waiting time between that and the assesment.

OP posts:
SanctiMoanyArse · 14/07/2010 21:27

At elast I don't have to list accomodation for you Arsenic LOL!

I think typical is 3 months, but if you can take a cancellation you can get sooner and 4 months if very, very busy

HTH

TheArsenicCupCake · 14/07/2010 21:32

Thanks sancti.. I reckon half of mumsnet are down there lol.. Telephone interview is for October!.. Although they did say I can pop in and do it and have a look about at the same time lol.

Awww I gutted your not going to list b&bs for me

OP posts:
mumgoingcrazy · 14/07/2010 21:34

It depends if you are restricted to school holidays. We have to book them months in advance to get a school holiday booking, in fact we asked them in April for an October half term booking and they were full, same for Xmas hols and were at the time taking bookings for the Feb half term, so we are now taking the girls out of school in November.

As sancti said, you could go on their cancellation list.

TheArsenicCupCake · 14/07/2010 21:38

I will ask to go on the cancellation list as we live about 30 mins away from the centre .. Hence sanctis comment about accommodation

so we also won't be restricted to school holidays either thank gawds by the sounds of it.

OP posts:
mumgoingcrazy · 14/07/2010 21:41

Oh very handy, you probably won't have to wait too long then.

Hope it goes well for you, it's the best thing we've ever done for DD2, the program they set us has brought her on leaps and bounds! Good luck!

TheArsenicCupCake · 14/07/2010 21:51

Thanks

That is exactly what we want from them.. A seriously good programme so we can really help ds2

I always feel as if we are stabbing in the dark a bit with what we are doing.. The only saving grace has been that the phsycologists ( ed and clinical) have said keep doing what you are doing .. It's the right thing.
But a programme I feel would really be of great help!

OP posts:
TheArsenicCupCake · 14/07/2010 21:52

Psychologists *

OP posts:
tribunalgoer · 14/07/2010 22:03

This reply has been deleted

Message withdrawn

roundthebend4 · 14/07/2010 23:43

Yes think I was lucky we only waited a month from phonecall and the call was 2 days after contacted them , me thinks they could here the desperation in my voice.for me in early days they were great and gave me things I could fo to help ds.

SanctiMoanyArse · 15/07/2010 07:02

I think it was 3 months for us and nobody lives closer than we did PMSL (you know themotorwat roundabout? yep we lived there ). That was eyars ago as well though, 5 and 3.

Hope it he;lps Arsenic. We pulled ds1 in teh end as he got upset about teh diets and we took his threats to bite the therapists seriously but they did help enormous amounts

tracey001 · 15/07/2010 07:37

Why on earth would anyone want to go to BIBIC? If you look at their website at the 'therapy team' page, the highest relevant qualification is of 'A' level standard! One of them does have a degree, but that is in zoology!

DO you really want your children in the hands of people with qualifications like that. I don't!

keepyourmouthshutox · 15/07/2010 07:51

Called them in May, told the telephone will probably happen in Sept/Oct and will probably be seen in Jan.

Maybe will get myself on cancellation list.

SanctiMoanyArse · 15/07/2010 08:19

Tracey my experince of them is good

But what would I know? I only

Grew up close by

Visited them in two different professional capacities over the years

Attended with 2 children

HAve a good and relevant qualification myself (post grad cert in ASD, working towards MA)

And you are wrong about their therapists; for more mainstream therapies (eg SLT, GP, Ed PSych) they buy in professionals who also work in the NHS. There is no professional training fotr the system they use but it has been developed over more than 30 years and has an excellent rep locally. Crucially it is not a susytem that could cause any direct harm and in fact a lot of popular therapies now (eg sensory integration) are tending to follow BIBIC techniques.

but hey, what would I know

SanctiMoanyArse · 15/07/2010 08:20

Actually we also brought them in at the charity i worked for to delvier relevant training to our staff and volunteers.

theyw ere excellent.

roundthebend4 · 15/07/2010 08:33

They gave me more. Help than any so called qualified specialists did .First time I felt that I could help ds by time we got to see any so called qualified specialists they was like oh where you learn that , carry on with what you learnt.Was also first time has real idea where ds strengths and weakness were

I don't go now as ds needs are very spefic but would have no hestitaion in recommending them.

roundthebend4 · 15/07/2010 08:36

Oh and they were the first to spot that dsdid not have simple gdd they even mentioned Cp And put in reports that ds needs be seen by a neuro yet took the nhs 4.6 years to spot that

tracey001 · 15/07/2010 09:24

The only people I found who were qualified were the Delacato Clinic, who specialise in autism www.theautismcentre.co.uk

Snowdrop, - a former parent who took the time to get qualified and who provide something called neuro-cognitive therapy. www.snowdrop.cc

and the BIRD Centre, which work on suppressing primitive postural reflexes www.b-i-r-d.org.uk

Oh and there's always the Bobath centre, who provide a type of intense phsiotherapy programme.www.bobath.org.uk

There is also 'Footsteps' www.footsteps.ltd.uk, again a type of physio.

The rest just aren't qualified.

The others simply aren't well qualified enough

tribunalgoer · 15/07/2010 09:57

This reply has been deleted

Message withdrawn

roundthebend4 · 15/07/2010 10:05

you nly need to look on here at a small sample of people and see what they have given s parents

See in some circles footsteps or bobath are considered not suitable or a bit alternative .If it provides help for the dc and for the parents I personaly can not see the harm and it works

debs40 · 15/07/2010 10:09

TG I agree they offer support and a practical programme at a time when the NHS and Ed auths are letting parents down.

I understand that qualified people (e.g. SALT, OT etc) used to work for them and provide this service but that they no longer do unless you ask specifically to see someone at your own expense.

I recently spoke to one of their consultants who worked their in a professional capacity when the therapists were all trained and qualified. She has a good relationwhip with them and does extensive Tribunal work. Her view was that the reports will not hold much sway at a Tribunal if compared against a qualified OT, SALT etc.

I think this has got to be true but, having said that, their reports are helpful while you await reports from helath professionals as they can flag up key areas etc.

Their one comment about DS's IQ has been enough for our ASD team to recommend a Stat Ass.

They are lovely, helpful people but there are limitations attached to their suggested provision which cna be rather generic. But they help when no one else will.

roundthebend4 · 15/07/2010 10:22

think its in the early days where they are good , they empower parents to help there dc.

Not using there stuff for triubunl as know , to easy to be pulled to pieces am uusing ican reports though , they was enough to get Lea to agree to give ds place in speech unit

tribunalgoer · 15/07/2010 10:24

This reply has been deleted

Message withdrawn

roundthebend4 · 15/07/2010 10:40

Only reason not using mine is have reports that are specfic to ds needs ie speech , ot pd rather than sensory and physio as thats where ds needs are

but intresting wnough lot my problems are stemming from the nhs rather than the lea as such

TheArsenicCupCake · 15/07/2010 11:11

having a quick coffee break from work anD popped on to have a catch up.. Wow thread has moved on!

Thanks for the replies

for us we are looking at bibic to be able to fill the gaps that the professionals aren't or we are still waiting for.
The mere nature of bibic I already know will suit ds2 and us as a family. It is also going to be very useful to see where ds2 strengths and weeknesses have changed and were we can improve or add to what we are already doing... While we wait for the right teams of proffessionals to have time and budget for us.

I don't expect bibic to cure ds2 issues or to provide dx etc . More I need to add to what we are already doing to improve ds2 life and he needs to feel comfortable in the setting that is going to be used.

Having had a chat with them and knowing what others experiences are of bibic ( including someone who worked for them and an ed psych).. I have a strong feeling that they will suit my family.

Hope that answers why I want to access their services.

OP posts:
debs40 · 15/07/2010 11:31

TG I think the supplemental point is key. I think the therpaist's point is (and I agree) that on its own the report would not be suffiicent evidence as the therapist preparing it is not necessarily an expert in the field e.g. they are not a SALT, OT or Ed Psych. However, BIBIC as an organisation does have expertise on which it draws and I think that is what adds the weight.

My only concern really was that I also think that they kind of tell you what you want to hear. But then I suppose it is a change that anyone understands that!